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U.S. Turns Spotlight on Medicine's Most Puzzling Cases
Date:5/19/2008

nostic tests requested by the NIH. The estimated 100 patients a year who meet the program's criteria will undergo additional evaluation (which may take up to a week) at the NIH Clinical Center.

In organizing the program, the NIH has contacted patient advocacy groups that provide information and support for people struggling with mysterious conditions.

"We hope to build upon our strong working relationships with many patient advocacy groups. These organizations provide a crucial link in our nation's efforts to improve health through biomedical research," Stephen Groft, director of the NIH Office of Rare Diseases, said in a prepared statement.

"We hope that this new partnership of NIH researchers, advocacy groups and patients will give hope for many Americans who now face troubling medical symptoms with no clear diagnosis," Groft said.

More information

Here's where you can find the Undiagnosed Diseases Program.



-- Robert Preidt



SOURCE: U.S. National Institutes of Health, news release, May 19, 2008


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