Navigation Links
U-M to develop guide for parents of children with disorders of sex development
Date:1/16/2013

"We want to support parents becoming actively involved in making those decisions, and reduce the likelihood of future worry and regret about decisions that have been made," he says, adding that the guide will educate families about sex development of the body, how disorders are diagnosed (especially how to interpret genetic test results), and possible relationships between diagnostic/genetic testing, decisions about care, and known consequences of those decisions on their child and entire family.

Sandberg plans to introduce the decision-making guide into care for persons affected by DSD and evaluate its effectiveness through an existing network of medical centers supported by the National Institute of Child Health and Human Development. The DSD Translational Research Network is comprised of health care providers and researchers at the University of Michigan/C.S. Mott Children's Hospital, UCLA, UCSF, Seattle Children's Hospital and other medical centers.

PCORI funded the project as part of an effort to help patients make better-informed health decisions.

"Today marks a major milestone in our work as we build a portfolio of comparative clinical effectiveness research that will provide patients and those who care for them better information about the health care decisions they face," said PCORI Executive Director Joe Selby, MD, MPH. "These research projects reflect PCORI's patient-centered research agenda, emphasizing the inclusion of patients and caregivers at all stages of the research."

PCORI is committing $40.7 million in funding for a slate of 25 projects, which were approved by PCORI's Board of Governors following a competitive, multi-stage review process involving scientists, patients, caregivers and other stakeholders. Proposals were evaluated on the basis of scientific merit, engagement of patients and stakeholders, methodological rigor and fit within PCORI's National Priorities for Research and Research Agenda.
'/>"/>

Contact: Mary F. Masson
mfmasson@umich.edu
734-764-2220
University of Michigan Health System
Source:Eurekalert

Page: 1 2 3

Related medicine news :

1. Developed new method to diagnose hereditary breast and ovarian cancer
2. Development of the first way to make large amounts of promising anti-cancer substance
3. Embracing debate on how cancers develop: Without the answer, effective therapies remain elusive
4. U of T and Harvard study finds growing weight extremes in the developing world
5. ASH international clinical collaboration replicates high cure rate of APL in developing countries
6. Protein identified that can disrupt embryonic brain development and neuron migration
7. Cervical cancer screening in less-developed areas should be tailored to local conditions
8. EPC Group Appoints Industry Veteran to Lead Development Practice Expansion
9. Medical Service Bureau (MSB) takes Next Step in Growth Initiative, Hires Director of Business Development
10. US Drug Watchdog Now Urges Family Members Mourning The Loss Of A Loved One Who Developed Bladder Cancer After Using The Diabetes Drug Actos To Call The Johnson Law Group
11. Postpartum depression prevalent in under-developed countries, could impact baby health and mortality
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/22/2015)... Florida (PRWEB) January 22, 2015 IsoComforter, Inc. ... therapy machine with patented IsoTube design to treat specific body ... introduced the most progressive and easy to use patented cold ... post-operative and sports related orthopedic and muscle injuries. IsoComforter ...
(Date:1/22/2015)... Payday lending practices in four southern states worsen ... to the states that permit them, according to a ... Race and Wealth. , While they generate hundreds of ... the same time substantially depress economic activity, according to ...
(Date:1/22/2015)... As interest in the value of spiritual support as ... Rev. Eric J. Hall , president and CEO of the ... the keynote speaker on January 27 at an international summit ... The conference, “Hope and Resilience: Innovative and Interdisciplinary Spiritual Care,” ...
(Date:1/22/2015)... January 22, 2015 Compare-autoinsurance.org has released a new ... by an auto insurance policy . , Some types ... Clients should check the newly released blog post to see if ... and dangerously damaged vehicles are some of the cars that cannot ...
(Date:1/22/2015)... (PRWEB) January 22, 2015 Step into ... at the Science Museum of Virginia. Wicked Plants, the ... Wicked Plants unearths 75 poisonous, carnivorous and diabolical plants ... each room to uncover the biochemical, physical and neurological ...
Breaking Medicine News(10 mins):Health News:IsoComforter Introduces Best of Class Cold Therapy Product to the Worldwide Market 2Health News:Howard University Spotlights the Economic Impact of Payday Lending in Southern States 2Health News:HealthCare Chaplaincy CEO to Keynote Spiritual Care Summit in Israel 2Health News:HealthCare Chaplaincy CEO to Keynote Spiritual Care Summit in Israel 3Health News:Some Vehicles Cannot Be Covered By An Auto Insurance Policy! 2Health News:Wicked Plants are taking over the Science Museum of Virginia 2
... GLASSBORO, N.J., Aug. 25 Getting a firmer, healthier, better-looking body -- in ... a fitness plan that will truly help you reach your personal goals. , ... , , , An ... you will dedicate to achieving your fitness goals and stick with it! , ...
... , Study Suggests Division, Ambivalence and Hesitancy ... ANN ARBOR, Mich., Aug. 25 Americans lack confidence that healthcare ... to a survey released today by the Thomson Reuters. , ... healthcare reform, addresses a wide range of issues including the cost ...
... Most OTC hemorrhoid ... your hemorrhoids faster. , ... York, NY (PRWEB) August 26, 2009 -- Many drug companies desperately do not want revealed ... damage. "Steroid creams in particular may cause permanent damage or ulceration of perianal skin," states ...
... , , Updated Report ... , , LANDOVER, Md., Aug. 25 ... conditions, the school-house is a focal point for managing their diseases. ... and Allergy Foundation of America (AAFA) has released a report assessing ...
... ONCOLOGY: Human breast cancer hit for six: key role for ... and colleagues, at the University of Colorado School of Medicine, ... mouse models and analysis of human cells, implicating the protein ... that plays a central role in development, is not expressed ...
... , , OMAHA, ... its private equity sponsor, Diamond Castle Holdings and the Company,s Management ... debt and renegotiated favorable new terms and conditions with its banking ... As a result of this transaction, overall debt for YORK ...
Cached Medicine News:Health News:Why Weight for a Better Body? 2Health News:Thomson Reuters Survey: Americans Skeptical that Healthcare Reform Will Improve Quality or Affordability 2Health News:Thomson Reuters Survey: Americans Skeptical that Healthcare Reform Will Improve Quality or Affordability 3Health News:Introducing anuleaf AD, a New FDA-Approved Hemorrhoid Treatment 2Health News:Deja Vu for Six States on Annual Asthma & Allergy Honor Roll 2Health News:Deja Vu for Six States on Annual Asthma & Allergy Honor Roll 3Health News:JCI table of contents: Aug. 24, 2009 2Health News:JCI table of contents: Aug. 24, 2009 3Health News:JCI table of contents: Aug. 24, 2009 4Health News:JCI table of contents: Aug. 24, 2009 5Health News:JCI table of contents: Aug. 24, 2009 6Health News:YORK Label Announces Continued Investment in the Company 2
(Date:1/23/2015)... 2015  HyGreen, Inc., a leader in hand hygiene monitoring, ... Medical, a subsidiary of Ascendis Health Limited, in ... year, hundreds of millions of patients around the world ... transmitted from patient to patient via the unwashed hands ...
(Date:1/23/2015)... Cord Blood America, Inc. ( www.cordblood-america.com ) (OTC Bulletin ... a Preliminary Proxy Statement, Schedule 14A, with the U.S. Securities ... update for shareholders detailing why a "YES" vote to increase ... Shareholders, As we reflect upon the 2014 fiscal ...
(Date:1/23/2015)... 2015 Gem Pharmaceuticals announced today that the initial ... the Company,s Phase 2 clinical trial.  This open-label study ... compound, GPX-150 (an investigational medication), in approximately 30 adults ... Logo - http://photos.prnewswire.com/prnh/20150123/170966LOGO ...
Breaking Medicine Technology:HyGreen Partners with RCA Medical in Johannesburg, South Africa 2Cord Blood America Announces Preliminary Proxy Filing and Details Why a "YES" Vote to Increase Authorized Shares Is Requested 2Cord Blood America Announces Preliminary Proxy Filing and Details Why a "YES" Vote to Increase Authorized Shares Is Requested 3Cord Blood America Announces Preliminary Proxy Filing and Details Why a "YES" Vote to Increase Authorized Shares Is Requested 4Gem Pharmaceuticals Announces Enrollment of Initial Patients in its Phase 2 Clinical Trial to Assess the Efficacy and Safety of GPX-150 in Sarcoma Patients 2
Foley Catheters (Latex) 2-Way...
Silicone Elastomer-Coated Latex Foley Catheters 3-Way...
Silicone Foley Catheters 2-Way (Pediatric)...
Midstream Catch Kits...
Medicine Products: