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Town Hall Meeting on Inequities in Clinical Trials Documents Ongoing 'Tuskegee Effect' When Recruiting Minorities for Research Studies
Date:10/28/2008

atients move through the complexities of the healthcare system, getting patients more timely treatment, more information about treatment options and preventive behaviors.

"Evidence shows an increase in survival when minorities and underserved patients have someone to guide them through a fragmented health care system," Dr. Freeman stated. "By navigating patients around barriers to quality care, navigators actually help ensure that patients are not shortchanged in their options, including have access to clinical studying providing either standard treatment or something believed to be better."

The Harlem town hall was widely attended by local leaders, patients, family members and health professionals from the five boroughs of New York as well as national experts in clinical trials and patient navigation. Among the participants were: John M. Palmer, Ph.D., Executive Director of the Harlem Hospital Center; Glendon C. Henry, MD, Medical Director of the Harlem Hospital Center; Alfred Ashford, MD, Senior Associate Dean at the College of Physicians and Surgeons at Columbia University; C. Virginia Fields, President and CEO of the Black Leadership Commission on AIDS; State Senator Bill Perkins; New York City Council Member Robert Jackson representing District 7 in West Harlem; Leslie Wyche, Community Liaison for Council Member Inez E. Dickens representing District 9 in East Harlem; and Julie Rones, Deputy Chief of Staff and Health Legislative Counsel to Congressman Edolphus Towns (D-10th).

The so-called "Tuskegee Effect" is the lingering suspicion and fear of medical research resulting from the "Tuskegee Study of Untreated Syphilis in the Negro Male," an experiment on the effects of untreated syphilis in 399 black men who lived in one of the poorest counties in Alabama. Conducted by the U.S. Public Health Service from between 1932 and 1972, the study is one of the best known examples of research carried out in disregard of basic ethical principles of cond
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SOURCE Eliminating Disparities in Clinical Trials
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