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Three New Studies Give Clear Guidance on How to Better Recruit Volunteers for Alzheimer's Clinical Studies
Date:7/12/2009

and they actively partner with outside physicians. The professionals we interviewed told us that they best way to meet recruitment goals is to get the support of the local community and physicians."

Encouraging African American Participation in Alzheimer's Genetics Studies

Despite government regulations on inclusion of women and minorities in clinical research, such as the 1993 Revitalization Act, ethnic minorities continue to be underrepresented in biomedical research studies and clinical trials, including Alzheimer's studies. As part of an effort to recruit African Americans for an Alzheimer's disease genetics study, Goldie S. Byrd, PhD, Nathan F. Simms Endowed Professor in the Department of Biology at North CarolinaA&TStateUniversity, and colleagues surveyed 500 African American adults to investigate perceptions and inform recruitment efforts for Alzheimer's research participation.

They found that having a relative with the disease, use of minority study personnel, and monetary compensation were the most powerful incentives for participation of African Americans in Alzheimer's genetic research. In addition, partnerships with churches and influential community leaders were found to yield significantly greater interest and participation.

"Among survey respondents who had never participated in a research study, 60 percent of those in the 60 to 69 age range with a family history of Alzheimer's were very willing to participate, independent of their knowledge of historical research atrocities such as the Tuskegee Syphilis Study," Byrd said.

The researchers found that African Americans were willing to participate in several types of research studies, including surveys, focus groups, clinical trials, and genetic studies - surveys were the most preferred form of participation in all age groups. Though 72% of respondents indicated a willingness to participate
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SOURCE Alzheimer's Association
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