One of the biggest problems the CPF faces is getting the attention of the public, including the media, on PF. No major national media coverage to date has been known to focus on the disease that threatens the lives of all Americans and claims 40,000 lives a year - the same number as breast cancer. "Everyone is at risk for the disease," said Marvin Schwarz, M.D., top PF pulmonologist and researcher from the University of Colorado Denver and Chairman of the CPF board of directors. "We don't know what causes it, we don't know how to stop it and we don't know what to do to prevent it. Much more research is needed to find the answers we've been seeking for years and so urgently need now."
About Pulmonary Fibrosis (PF)
Pulmonary Fibrosis (PF) is a lung disorder characterized by a progressive scarring - known as fibrosis -- and deterioration of the lungs, which slowly robs its victims of their ability to breathe. Approximately 128,000 Americans suffer from PF, and there is currently no known cause or cure. An estimated 48,000 new cases are diagnosed each year. PF is difficult to diagnose and an estimated two-thirds of patients die within five years of diagnosis. Sometimes PF can be linked to a particular cause, such as certain environmental exposures, chemotherapy or radiation therapy, residual infection, or autoimmune diseases such as scleroderma or rheumatoid arthritis. However, in many instances, no known cause can be established. When this is the case, it is called idiopathic pulmonary fibrosis (IPF).
About the CPF
The CPF is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for pulmonary fibrosis (PF), while educating, supporting, and advocating for the community of patients, families, and medic
|SOURCE Coalition for Pulmonary Fibrosis|
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