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The Scleroderma Foundation Applauds Introduction of First Bill in the Senate Promoting Research and Awareness of Scleroderma
Date:8/4/2009

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  • Direct the Centers for Disease Control and Prevention to establish a scleroderma public awareness campaign highlighting disease symptoms, prevalence, related conditions, and the importance of early diagnosis. The legislation authorizes $2.5 million in FY10, FY11, and FY12 for the awareness initiative.
  • "The Scleroderma Foundation is proud to be at the forefront of advocating for greater research for this devastating disease," commented Joseph P. Camerino, Ph.D., Chair of the Foundation's National Board of Directors. "With the introduction of this landmark legislation, the scleroderma community has renewed hope that a cure will be found. We are extremely grateful to Senator Gillibrand and Senator Schumer for their leadership on our behalf. We are also grateful for the efforts of many volunteers who comprise the Foundation's Advocacy Committee who have dedicated a great deal of time and energy to champion these efforts."

    The Foundation encourages all patients, family members, and friends to contact their representatives in Congress and ask them to co-sponsor this important bill. For more information, please visit http://www.scleroderma.org/advocacy/advohome.shtm.

    Headquartered in Danvers, Mass., the Scleroderma Foundation is the nation's largest patient organization dedicated to improving the quality of life for patients with scleroderma; the Foundation is also the largest nonprofit provider of funds supporting peer-reviewed scleroderma research in the United States.

        Media Contacts:
    
        Robert Riggs,
        Chief Development Officer
        Scleroderma Foundation
        800-722-4673, ext. 11
        rriggs@s
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    SOURCE Scleroderma Foundation
    Copyright©2009 PR Newswire.
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