Navigation Links
The National PKU Alliance Expands Leadership and Names Christine Brown as Executive Director

Experienced Leader Brings 15 Years of Nonprofit Expertise to National Organization

SPRINGFIELD, Va., April 7 /PRNewswire/ -- The National PKU Alliance (NPKUA), the only national organization dedicated to supporting those affected by the genetic disorder phenylketonuria (PKU), today announced that it has selected Christine Brown to be its first Executive Director. Brown brings extensive experience in nonprofit management, program development, fundraising and advocacy relations to the role.

As the NPKUA continues to grow, Brown will work directly with the Board of Directors and organization volunteers to advance the NPKUA mission and to ensure that the PKU community has a strong national voice. One of Brown's key priorities will be to encourage additional local organizations to take advantage of the benefits of membership. In the next few months, Brown will lead a membership drive and encourage alliance groups to share best practices in areas such as fundraising, advocacy and education.

"As the only national coalition of local and regional organizations serving the PKU community, we needed an experienced nonprofit professional who could further advance our ambitious plans," said NPKUA President Dick Michaux. "Brown has a very successful history of working with healthcare coalitions in tobacco control. As a result, we feel this makes her an ideal choice to move the organization forward."

"I am very excited and honored to be chosen as the first Executive Director of the National PKU Alliance," Brown said. "After spending the past 15 years building and leading nonprofit organizations, I look forward to doing so for the NPKUA. As a mother of two children with PKU, I am passionate about creating awareness for the cause and furthering the NPKUA's mission." Before joining the NPKUA as Executive Director, Brown also provided her expertise to the organization as a volunteer.

One of Brown's key initiatives will be to help the NPKUA take additional steps to further PKU research and treatment. Brown will facilitate the creation of a Board of Scientific Advisors, consisting of scientific and research experts, to identify and evaluate promising PKU research. She also will manage a campaign to improve insurance coverage for PKU monitoring and medically necessary foods. Because children and adults with PKU depend on highly specialized diets featuring costly prepared food and protein replacements, the NPKUA will work to help families get assistance in paying for these foods.

Most recently, Brown served as Executive Director at the Tomahawk Regional Chamber of Commerce in Tomahawk, WI, where she was responsible for economic development, community relations, tourism and organizing events. Previously, she was Director of the Coalition for a Tobacco Free Vermont. Other positions have included Executive Director at Umbrella Inc., a women's resource center in Vermont, and Coordinator at the Anne Arundel County Domestic Violence Coordinating Council in Maryland.

About PKU

PKU, or phenylketonuria (pronounced fen-il-Key-to-New-ree-uh) is a lifelong genetic disorder in which a deficient enzyme prevents the body from metabolizing an essential amino acid, called Phenylalanine (Phe), which is found in most foods, including meat, bread, eggs, dairy, nuts and some fruits and vegetables. When left untreated, PKU patients who consume too much Phe are at risk for severe neurological complications, including IQ loss, memory loss, concentration problems, mood disorders, and in some cases, severe mental retardation. PKU affects approximately 13,000 people in the U.S. and 50,000 people worldwide. Patients must adhere to a Phe restricted diet which may be supplemented with low protein foods and medication.

About the National PKU Alliance

Established in 2008, the National PKU Alliance is a coalition of the many local, state and regional organizations that support PKU families. The National PKU Alliance is dedicated to improving the lives of individuals and families affected by PKU, through research, education, support and advocacy, while ultimately seeking a cure. Visit to learn more.

SOURCE National PKU Alliance
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. National Press Club to Host NEWSMAKER Media Briefing on Taiwans Experience in National Health Care Insurance
2. Video: Participants Find New Routes, Routines on National Start! Walking Day
3. Carefx Expands International Presence with New Office in London
4. Community Hospice Supports National Healthcare Decisions Day
5. Mindray Medical to Exhibit New Products at 61st China International Medical Equipment Fair
6. The Medtronic Foundation Awards Fourth Grant to the National Parkinson Foundations National Parkinson Care Network Program
7. Credit Union Cherry Blossom Ten Mile Run Cherry Blossom Ten-Miler Raises $400,000 For Children's National Medical Center
8. Surgeon Named President-Elect of National Organization
9. Aurora BayCare is Wisconsins First Nationally Accredited Breast Program
10. Secretary of Health Walks the Walk to Kick Off National Public Health Week
11. National Public Health Week Begins Today With Launch of Viral Video Campaign
Post Your Comments:
(Date:11/27/2015)... ... November 27, 2015 , ... ... through sharing, the 2016 Building Better Radiology Marketing Programs meeting will ... on Sunday, March 6, 2016, at Caesars Palace in Las Vegas with a ...
(Date:11/27/2015)... ... November 27, 2015 , ... Keeping ... platform for mental health and wellness consultation, has collaborated with a leading web-based ... the knowledge gap experienced by parents and bring advice from parenting experts within ...
(Date:11/27/2015)... ... 2015 , ... Avid collector, Andrew Hawley from Vintage Rock Posters, announces his ... is one of Joplin's most famous and beautiful concert posters. The concert was held ... Ann Arbor. The According to Hawley, "It is hard to believe that Joplin's stardom ...
(Date:11/26/2015)... Cambridge, ON (PRWEB) , ... November 26, 2015 ... ... availability of a real-time eReferral system for diagnostic imaging in the Waterloo region. ... mammography, BMD and Nuclear Medicine tests directly from their electronic medical record (EMR) ...
(Date:11/26/2015)... ... 26, 2015 , ... PRMA Plastic Surgery is updating their record books yet ... 6,000th free flap breast reconstruction surgery! , “What an accomplishment for the PRMA team, ... lives and it’s an honor to have served all of these women.” , PRMA ...
Breaking Medicine News(10 mins):
(Date:11/25/2015)... 2015  Amgen (NASDAQ: AMGN ) today announced ... the United States (U.S.) Food ... candidate to Humira ® (adalimumab). Amgen believes this ... the FDA and represents Amgen,s first BLA submission using ... , M.D., executive vice president of Research and Development ...
(Date:11/25/2015)...  Linden Care, LLC, a retail specialty pharmacy focused ... suffering from chronic pain, said today that it is ... (TRO) enjoining Express Scripts from unilaterally terminating the Pharmacy ... --> --> The company said that ... --> --> In ...
(Date:11/25/2015)... , Nov. 25, 2015 On ... first federal bellwether trial against Wright Medical Technology, ... to their Conserve metal-on-metal hip implant device, awarded ... Following a two week trial and three days ... metal-on-metal hip device was defectively designed and unreasonably ...
Breaking Medicine Technology: