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The Multiple System Atrophy Coalition Appoints Five New Members to Board of Directors
Date:7/29/2014

ustin Texas, has done media interviews for MSA Awareness Month, and is a regular contributor to the online MSA Yahoo and Facebook support groups. With her new role on the MSA Coalition Board, Sharon plans to leverage her voice on important issues affecting the MSA community, such as autonomic testing, insurance coverage, and government funding for rare disease research.

“We are very excited to see the expansion of our Board of Directors,” stated Judy Biedenharn, President of The MSA Coalition. “The past two years has seen extensive growth for the Coalition, both in terms of fundraising and educational/awareness offerings. In order to achieve our primary mission of finding a cure for multiple system atrophy, our Board needed the addition of talented individuals. Our five new Board members all bring extensive business, advocacy and/or educational backgrounds to the table, while also having real-world experience in the fight against MSA. Additionally, we view the new additions of a patient representative and a caregiver representative as critical to connecting at the highest level possible with the MSA community we serve.”

These five new members of The Multiple System Atrophy Coalition Board of Directors join current board members Judy Biedenharn, Vera James, Don Crouse, Pam Bower, Carol Langer, Dr. David Robertson, M.D. and Dr. Thomas Chelimsky, M.D. The new, larger Board of Directors is now “United to Defeat Multiple System Atrophy”.

About Multiple System Atrophy
Multiple system atrophy is a rare and fatal disorder with less than 15,000 Americans diagnosed and 35,000 undiagnosed at any given time. According to the National Institutes of Health, "Multiple system atrophy is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure such as fainting spells and bladder control problems (neurogenic orthostatic hypotension), combined with motor control symptoms such as tremor,
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