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The Multiple System Atrophy Coalition Appoints Five New Members to Board of Directors
Date:7/29/2014

rating diagnostic process and daily life as a caregiver to help and educate other caregivers, doctors and health professionals about the disorder. He is also passionate about fundraising, increasing awareness and ensuring the development and use of the global MSA patient registry.

  •      Tom Looney (Patient Representative) is the first-ever patient to serve on the Board of Directors. He plans to apply his substantial business experience and network of professional contacts to help The MSA Coalition continue its renewed growth through fundraising and awareness activities, while also serving as a voice for all MSA patients. Despite his diagnosis with MSA-P (Parkinsonism) in June 2008 at age 48, Tom continues to exude a positive attitude in his approach to life.
  •      Cynthia Roemer was the primary caregiver to her mother, Dolores, who was diagnosed with MSA in 2004 and lost her battle with MSA on Mother’s Day, 2009. After their Mother passed away, Cynthia and her family founded MSA NJ, a registered non-profit to support the MSA community in the tri-state area. Prior to joining the Board, Cynthia helped organize the 2012 MSA Coalition Annual Conference held in Elizabeth, NJ. Cynthia holds a Doctor of Education degree and plans to work to expand MSA education, patient support, and fundraising initiatives, while also helping the charity with long-term strategic planning.
  •      Sharon Sutton was the primary caregiver for her husband of 39 years, Eric Sutton. He was diagnosed officially with MSA-P in 2010 and passed away on Nov 11, 2013. Sharon has valuable experience as a rare disease advocate both for MSA and Biliary Atresia, a condition that affected her young son’s liver. She and her husband were leaders in advocating for liver transplantation, insurance coverage, and later for MSA awareness. Sharon has been a public speaker at the Rare Disease Rally in A
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