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The HRSA Genetics Collaboratives are Bringing Genetic and Newborn Screening Services to Local Communities Around the United States
Date:8/19/2009

patients with heritable disorders;
  • addressing the transition of patients with heritable conditions from pediatric to adult care; and
  • developing resources for state policymakers.

    • National data collection efforts include tracking pilot NBS programs and establishing and maintaining a patient follow-up database useful in rare disease research. Maximizing collaboration between the genetic services, primary care, NBS and public health communities is critical to the success of each of these efforts and to the collective impact of the NCC and the Genetics Collaboratives.

    The Seven Regional HRSA Genetics Collaboratives

    Region 1: The New England Regional Genetics Collaborative (NEGC), with CT, MA, ME, NH, RI and VT (www.negenetics.org/)

    Region 2: New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services, with DC, DE, MD, NJ, NY, PA, VA, and WV (www.wadsworth.org/newborn/nymac/)

    Region 3: The Southeast NBS and Genetics Collaborative, with AL, FL, GA, LA, MI, NC, SC, TN, PR, and USVI http://southeastgenetics.org/)

    Region 4: The Region 4 Genetics Collaborative with IL, IN, KY, MI, MN, OH, WI http://region4genetics.org/)

    Region 5: The Heartland Regional Genetics and Newborn Screening Collaborative, with AR, IA, KS, MO, ND, NE, OK, and SD (www.heartlandcollaborative.org/)

    Region 6: Mountain States Genetics Regional Collaborative Center, with AZ, CO, MT, NM, NV, TX, UT, and WY (www.msgrcc.org/)

    Region 7: Western States Genetic Services Collaborative, with AK, CA, HI, OR, WA, and US Pacific Basin (www.westernstatesgenetics.org/)

    NCC Resource Partners of the HRSA Genetics
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    SOURCE HRSA Genetics Collaboratives
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