Navigation Links
The Children's Heart Foundation to Support National Congenital Heart Coalition (NCHC) on Capitol Hill by Participating in National Congenital Heart Lobby Day on February 10
Date:2/9/2009

NCHC Will Lobby Congress to Sponsor the Congenital Heart Futures Act - Legislation that will Fund a National Congenital Heart Disease Registry, Congenital Heart Defect Research and Education

CHICAGO, Feb. 9 /PRNewswire/ -- The Children's Heart Foundation (CHF) - the country's leading organization solely dedicated to funding CHD research - is one of six organizations participating in National Congenital Heart Lobby Day on February 10. The day unites organizations that support the National Congenital Heart Coalition (NCHC) in an effort to persuade senators and congress representatives to fund important efforts surrounding congenital heart defects (CHDs).

The CHF joins the Adult Congenital Heart Association (ACHA), American College of Cardiology (ACC), Congenital Heart Information Network (CHIN), It's My Heart (IMH) and Mended Little Hearts (MLH) in the nation's capitol to lobby for sponsorship of the Congenital Heart Futures Act, legislation that will fund a national CHD registry, CHD research and ongoing education. The day is meant to build on the Coalition's successful lobby work and grow the collective voice and face of CHDs. Members of the Coalition focus on addressing the needs of CHD infants, children, teens and adults alike.

"We are truly excited to be a part of the National Congenital Heart Coalition and its Lobby Day efforts because it will allow us to have a focused and direct dialogue with lawmakers that can help us raise awareness and funding around CHDs," says Bill Foley, Executive Director of The Children's Heart Foundation. "We are thrilled to have the opportunity to get in front of our nation's largest policy makers to share the importance of new research for CHDs, the most prevalent and deadly birth defect in America."

National Congenital Heart Lobby Day falls during Congenital Heart Defect Awareness Week (February 7-14, 2009), an annual grassroots campaign that works to educate the public about CHDs. Local support groups will also participate by requesting and receiving proclamations from government officials, distributing informational brochures, hosting special events and holding fund-raising activities.

To further support CHD efforts in the month of February, the CHF is teaming up with Chicago Bears cornerback, Charles "Peanut" Tillman and his wife, Jackie, who are serving as Co-Honorary Chairs at the CHF 2009 Hearts at Play benefit on February 21st at Chicago's Field Museum.

Due to their personal experience with CHDs (daughter Tiana recently received a successful heart transplant to treat a heart condition called cardiomyopathy) the Tillman's are dedicated to supporting organizations like the Children's Heart Foundation that are working hard to fund research that will someday treat and hopefully cure CHDs, the number one birth defect in America.

The family-friendly event includes private access to the world renowned Field Museum, as well as activities for kids, including face painting and balloon artists. Guests will also enjoy food, cocktails, dancing and entertainment. The evening will feature Dr. Sunjay Kaushal who will be honored for his outstanding medical care and treatment of countless CHF patients including the Tillman's daughter. The CHF recently awarded Dr. Kaushal a $100,000 grant to fund his research for cardiomyopathy.

The Children's Heart Foundation will host a silent auction of more than 200 unique items including signed memorabilia from the Chicago Bears and the CHF's "Celebrities with Heart" Advisory Board, which includes stars from the smash hit High School Musical and Shoshana Bean from the Broadway musical Wicked, among others. All proceeds will benefit the CHF's initiatives which fund the most promising research to advance the diagnosis, treatment and prevention of congenital heart defects.

Tickets to this private event are now on sale for $100 per adult and $35 per child. Family Circle Sponsor packages are $500 and include two adult tickets and two children's tickets. For more information, purchase a ticket or find out how to support the Children's Heart Foundation, visit www.childrensheartfoundation.org.

About The Children's Heart Foundation

Based in Lincolnshire, Illinois, The Children's Heart Foundation is the country's leading organization committed to funding research to help find better treatments - and hopefully someday a cure - for children born with congenital heart defects. To date, The Children's Heart Foundation has funded over $3.4 million towards 37 research projects led by the nation's best and most promising research teams - several of which have gone on to receive funding from the National Institute of Health (NIH) and the American Heart Association (AHA). The Children's Heart Foundation is the only organization created solely to fund congenital heart defect research. There are currently six chapters nationwide, and each continues to expand. The Foundation is not affiliated with any one medical institution or organization, which ensures that the most promising congenital heart defect research continues to get funded anywhere in the world.


'/>"/>
SOURCE The Children?s Heart Foundation
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Nautica Malibu Triathlon Presented by Toyota Raises $718,000 for Childrens Hospital Los Angeles Pediatric Cancer Research
2. Childrens Hospital Los Angeles Turns Off the Tap With Green Earth Waterless Carwash
3. Siegel+Gale Designs New HOPE Portal for Childrens Hospital Los Angeles
4. Jessica Biel and Make The Difference Network Bring Holiday Cheer to Childrens Hospital Los Angeles
5. National Childrens Study Begins Recruiting
6. Drug for cluster headaches may cause heart problems
7. Use of certain lipid measures not more effective in predicting coronary heart disease
8. Restricting Blood Flow May Help Heart Bypass Patients
9. Urban Smog Tough on Young Adults Hearts
10. Stanford study highlights cost-effective method of lowering heart disease risks
11. Vitamin Es lack of heart benefit linked to dosage
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:3/24/2017)... Greenville, SC (PRWEB) , ... March 24, 2017 , ... ... , is excited to announce the opening of a Greenville, South Carolina ... center for digital progress in Greenville. , “We’ve been working with South Carolina clients ...
(Date:3/24/2017)... ... ... iaedp Foundation, the premier provider of educational programs and training standards for eating disorder ... disordered eating, announced today that the 2017 Symposium set a new attendance record of ... converged on the Green Valley Resort in Las Vegas. , “We are thrilled ...
(Date:3/24/2017)... Pittsburgh, PA (PRWEB) , ... March 24, 2017 ... ... the Oncology Nursing Society (ONS) wanted to create a communications platform that positions ... realize this goal, Elliance and ONS reinvented their online publication as an always-on, ...
(Date:3/24/2017)... ... March 24, 2017 , ... Viewers who like to ... critical historical facts, cultural practices, goods, services, and societal issues tend to appreciate and ... into the popular practice of utilizing running events for causes around the world. ...
(Date:3/24/2017)... ... , ... “Finding Christ Through Social Media: Year One #A365DayJourney ... writer’s path toward true communion with God. “Finding Christ Through Social Media: Year ... of published author Lea Michelle Johnson, a follower of Christ, wife and mother ...
Breaking Medicine News(10 mins):
(Date:3/24/2017)... PUNE, India , March 24, 2017 According to ... Global Opportunity Analysis and Industry Forecast, 2014-2022," the spine bone stimulators market was ... by 2022, growing at a CAGR of 3.6% during the forecast period. ... ... Allied Market Research Logo ...
(Date:3/24/2017)... Mar. 24, 2017 Research and Markets has announced ... report to their offering. ... This report analyzes the worldwide markets for Dental Implants in US$ ... Canada , Japan , Europe ... and Rest of World. Annual estimates and forecasts are ...
(Date:3/24/2017)... -- Research and Markets has announced the addition of the ... their offering. ... pipeline is very strong with a total of 97 drug candidates. Pharma ... Sanofi are involved in the development of the IPF therapeutics. The IPF ... III stage, 15 are in Phase II stage, 12 are in Phase ...
Breaking Medicine Technology: