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The Children's Heart Foundation to Support National Congenital Heart Coalition (NCHC) on Capitol Hill by Participating in National Congenital Heart Lobby Day on February 10
Date:2/9/2009

NCHC Will Lobby Congress to Sponsor the Congenital Heart Futures Act - Legislation that will Fund a National Congenital Heart Disease Registry, Congenital Heart Defect Research and Education

CHICAGO, Feb. 9 /PRNewswire/ -- The Children's Heart Foundation (CHF) - the country's leading organization solely dedicated to funding CHD research - is one of six organizations participating in National Congenital Heart Lobby Day on February 10. The day unites organizations that support the National Congenital Heart Coalition (NCHC) in an effort to persuade senators and congress representatives to fund important efforts surrounding congenital heart defects (CHDs).

The CHF joins the Adult Congenital Heart Association (ACHA), American College of Cardiology (ACC), Congenital Heart Information Network (CHIN), It's My Heart (IMH) and Mended Little Hearts (MLH) in the nation's capitol to lobby for sponsorship of the Congenital Heart Futures Act, legislation that will fund a national CHD registry, CHD research and ongoing education. The day is meant to build on the Coalition's successful lobby work and grow the collective voice and face of CHDs. Members of the Coalition focus on addressing the needs of CHD infants, children, teens and adults alike.

"We are truly excited to be a part of the National Congenital Heart Coalition and its Lobby Day efforts because it will allow us to have a focused and direct dialogue with lawmakers that can help us raise awareness and funding around CHDs," says Bill Foley, Executive Director of The Children's Heart Foundation. "We are thrilled to have the opportunity to get in front of our nation's largest policy makers to share the importance of new research for CHDs, the most prevalent and deadly birth defect in America."

National Congenital Heart Lobby Day falls during Congenital Heart Defect Awareness Week (February 7-14, 2009), an annual grassroots campaign that works to educ
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SOURCE The Children?s Heart Foundation
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