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Teenagers and young adults with cancer can face long delays before finally being diagnosed
Date:6/8/2008

ed, both to educate the public, and young people in particular, to seek help for worrying symptoms and to empower them to push for referral to specialists. However, it would seem to be more important to raise awareness amongst professionals to recognise worrying signs and to trigger them to be more rapid in their response; in addition, they need to ensure simple and rapid referral pathways for investigation and subsequent treatment. Whether this will improve survival remains unclear but it will reduce anxiety, anger and distrust of doctors."

He added that from most of the research in this field it was difficult to conclude whether delays in diagnosis did definitely result in worse outcome for TYAs. "There has been an improvement in survival for teenagers and young adults who develop cancer but it has not been so dramatic as seen in children. It is important to realise that there are other potential reasons for delays in diagnosis, including the particular mix of tumour types seen in this age group, with more resistant forms of cancer, and treatments not yet fully adapted to the tumour biology."

In the study of bone tumour patients, Prof Eden said: "The delay was longer if the patient was over 12 years at presentation and if they went to their GP first, rather than going to a hospital accident and emergency department. X-rays were more likely to be taken in A&E at once." Delays also varied depending on the type and site of the tumour.

In the second study looking at all tumour types, the symptom interval varied depending on tumour type, with the shortest wait being seen in those with leukaemia (an average of 4.5 weeks) and the longest for bone tumours (an average of 23 weeks).

Ms Smith will report an analysis of responses from 207 young people with cancer who attended the annual Teenage Cancer Trust "Find your sense of tumour" conference in 2007. Eighty per cent reported that they had gone to their GP within four weeks of noticin
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Contact: Emma Mason
wordmason@mac.com
44-077-112-96986
Teenage Cancer Trust
Source:Eurekalert

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