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Tallahassee Girl Suffering from Chronic Headaches Diagnose with Lemon-sized Congenital Brain Cyst and Has Brain Surgery at Wolfson Children's Hospital in Jacksonville
Date:7/21/2013

Jacksonville and Tallahassee, FL (PRWEB) July 22, 2013

When then 11-year-old Tallahassee fifth grader Katie Upton complained of bad headaches after school two to three times a week, her mother Jennifer assumed she wasn’t eating enough, drinking enough water, or that perhaps she had a vision problem.

She scheduled an appointment with a Tallahassee optometrist for an eye exam. “When the doctor dilated Katie’s eyes, he noticed that her optic nerves were enlarged,” said Jennifer. “He said, ‘I would see a pediatric ophthalmologist if it were my daughter.’” After an exam, a local ophthalmologist referred Katie to a neurologist in Tallahassee, who ordered an MRI.

“When we walked in, the MRI image was on this huge screen in his office and that’s when panic set in,” remembered Jennifer. “It looked like the entire left side of her brain was missing and that her brain was off center, pushed over to the right. He told us it was an arachnoid cyst and referred us to an ophthalmologic neurologist, who was so comforting and helpful. After a series of eye tests, he was adamant that we had to get the pressure off of her eyes or it would cause blindness.”

She continued, “He referred us to a neurosurgeon in Tallahassee, who wanted to put in a permanent shunt in her brain to drain fluid into her abdomen. My husband, Steve, researched other treatment options, referred to as fenestration.”

Jennifer’s insurance plan, Capital Health, told her that not only could she get a second opinion, but that they absolutely recommended it. “The nurse with Capital Health Plan researched the condition and the fenestration method, a surgical option that allows the neurosurgeon to relieve the pressure in the brain without a shunt, and she found Dr. [Philipp] Aldana. Not only that, but on the day the nurse called to recommend Dr. Aldana, my gynecologist said, ‘You need to go to Wolfson’ and my mother’s doctor said the same thing!’”


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