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TalkWorthy Radio Show Interviews Alex Brown and Erin Gillen about the 5th Annual Utah 5K VisionWalk on June 15 In Salt Lake City
Date:5/30/2013

Salt Lake City, UT (PRWEB) May 30, 2013

Alex Brown and Erin Gillen, spokespersons for the 5th Annual Utah 5K VisionWalk on June 15th in Salt Lake City, Utah share their story on the TalkWorthy Radio Show on SiriusXM 143 with host Kim Power Stilson.

According to local event chairperson and guest on the TalkWorthy Radio Show, Erin Gillen, hundreds touched by vision loss will rally to fight blindness at the Utah 5K VisionWalk on Saturday, June 15, striving to raise $50,000 to support promising gene therapy, stem cell-based and pharmaceutical research that could save and even restore sight. Blinding retinal degenerative diseases like retinitis pigmentosa, macular degeneration and Usher syndrome affect more than 10 million Americans, but the Foundation Fighting Blindness is funding cutting-edge studies toward preventions, treatments and cures.

“I will always remember the day I was informed that I had something really wrong with my vision, and that I could go blind one day, ” says Laura Rough, “Optic-Mystics” VisionWalk Team Captain, of Salt Lake City. “The VisionWalk will raise greatly needed funds for sight-saving research for retinal eye diseases. The research going on right now is truly amazing, and it is critical at this stage to continue funding as effective treatments are on the horizon. I have great hope that cures for blindness will be found within my lifetime.”

Rough is affected with Usher Syndrome, a rare genetic disorder characterized by a moderate to profound deafness at birth and gradual vision loss later on due to retinitis pigmentosa (RP), a degeneration of the retinal cells. There is currently no cure, but gene therapy clinical trials for Usher syndrome are underway. To help adapt to her continued vision loss, Rough has taken classes at the U
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