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Taking Care of the Caregiver
Date:2/12/2009

Where One Chicago Family Turned When Their Support System Became Short of Breath

Chicago, IL (PRWEB) February 12, 2009 -- Cindy Wilson is a mother of four. She is a grandmother of two. She is the primary caregiver for her adult daughter, Tanisha, who needs 24/7 care after a car accident left her with a severe brain injury more than a decade ago, and raised her granddaughter, too.

But what happens when the caregiver is diagnosed with an illness? Just three years into caring for her daughter and granddaughter, Cindy was diagnosed with advanced stage one emphysema due to an underdiagnosed, rare genetic disorder called Alpha-1 Antitrypsin Deficiency. Her disease progressed over the years to the point that she weighed less than 100 lbs. She couldn't walk from her house to the driveway, but she decided she could research lung transplants, and in the same spirit for which she cared for others, she began caring for herself again. Last spring she started Chicago Alphas, an alpha-1 support group where others with this genetic could come together to share, learn and grow with one another in knowledge and awareness of the disorder. Anyone with an interest in alpha-1 is welcome to attend their meetings.

Cindy created a page for herself on CarePages.com, and faithfully updated her friends and family on her life and her journey towards a transplant.
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