Navigation Links
Survival instincts propel 'difficult patient' to insist on quality care
Date:9/10/2008

writes. "I'd been an avid cyclist, and suddenly I had difficulty getting out of bed each morning. When I returned to the rheumatology clinic for a follow-up appointment, the doctor attributed my symptoms to stress, irritably dismissing me with, 'You just have Raynaud's.' I knew that physicians often blamed stress for the 'inexplicable' ailments of young women; I refused to be dismissed so easily. I sought a second opinion from another rheumatologist at a different major academic medical center, and he reiterated the same diagnosis. Although I truly believed that I had scleroderma, I wanted to be wrong. So I acquiesced and, by doing so, caused further delay in my diagnosis."

Mayer goes on to describe years of inappropriate and ineffective treatment, struggles to get physicians to listen to her, and hopelessness.

"But my husband prodded me to fight," she writes, "and soon my survival instincts kicked into high gear."

She sought physicians who were supportive and helpful, traveling hundreds of miles for appointments. She and her husband longed to have children, so, after searching the medical literature, she determined she was not at high risk for developing complications for herself or the baby. Defying the recommendations of scleroderma experts, she became pregnant and, over 26 months, gave birth to two healthy babies without causing additional harm to her own condition.

"I've faced many decisions about my care during the past 12 years," she writes, "and my assertiveness has been greeted variably with contempt, resignation and, at times, support."

The doctor/patient relationship must be based on trust, she said. And that trust has to go both ways.

"I wasn't interested in being told what to do and I expected my doctors to respect my right to make truly informed choices that were consistent with the way in which I wanted to intervene in my disease and live my life," she writes. "But being a difficult patient is a
'/>"/>

Contact: Patric Lane
patric_lane@unc.edu
919-962-8596
University of North Carolina at Chapel Hill
Source:Eurekalert

Page: 1 2 3

Related medicine news :

1. Conventional prognostic factors fail to explain better prostate cancer survival in most Asian men
2. Survival differences by race most apparent in advanced stages of breast cancer
3. Prophylactic cranial irradiation in small cell lung cancer significantly increases survival
4. Human C-reactive protein regulates myeloma tumor cell growth and survival
5. Mediterranean Diet May Boost Alzheimers Survival
6. Hospitals Improve Survival Rates While Treating Sicker Patients Thomson Healthcare Study Shows
7. The Fight for His Life: Author, Family Battle Disease and Challenge Politics in the Face of Survival
8. Communication in cancer world is key to survival
9. Molecular profiling can accurately predict survival in colon cancer patients
10. New chemotherapy regimen prolongs survival in difficult-to-treat childhood brainstem gliomas
11. Phase II study shows HRPC patients with bone metastases see improved survival with ZD4054
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/2/2015)... OR (PRWEB) June 02, 2015 ZOOM+, ... of ZOOM+ Performance Health Insurance, announced today the opening ... Clean White 57 - a three-in-one complete dental exam, ... Clean Jr. for kids. Like all ZOOM+ services, ZOOM+Smile ... , “Why shouldn’t the dentist office be as inviting ...
(Date:6/2/2015)... 2015 With a dedicated focus to become ... Care has hired Leslie Young as director of human ... initiatives to better understand and respond to the distinct needs ... communities in 13 states across the country. , “As we ... support to our residents, we are making it an equal ...
(Date:6/2/2015)... Alberta (PRWEB) June 02, 2015 ... wireless technology, highlights North Pole Engineering’s (NPE) announcement ... ANT Wireless technologies: WASP-N, WASP-PoE-2 and WASP-PoE-3. WASP ... ANT-FS) and Bluetooth Smart® bridge solution that allows ... transmitted over WiFi or Ethernet networks. ...
(Date:6/2/2015)... PA (PRWEB) June 02, 2015 For ... may be too exposed to harmful germs, chemicals and ... warranted. However, thanks to an inventor from Queens Village, ... SQUEEZE to provide an efficient, fun, hygienic way to ... of being exposed to bugs, chemicals and germs. Furthermore, ...
(Date:6/2/2015)... Vancouver, BC – According to ... http://www.idataresearch.com ), the bone graft substitute market is ... over traditional allograft materials. Because the use of ... increase in operation time, alternative graft options are ... these synthetic materials is partly the result of ...
Breaking Medicine News(10 mins):Health News:ZOOM+ Opens Its First On-Demand ZOOM+Smile Studio and Reinvents the Dental Exam 2Health News:Tutera Senior Living & Health Care Hires HR Pro Leslie Young to Lead New Initiatives to Become Employer of Choice 2Health News:Tutera Senior Living & Health Care Hires HR Pro Leslie Young to Lead New Initiatives to Become Employer of Choice 3Health News:Tutera Senior Living & Health Care Hires HR Pro Leslie Young to Lead New Initiatives to Become Employer of Choice 4Health News:ANT Technology Incorporated in Second Generation WASP Bridge Products 2Health News:ANT Technology Incorporated in Second Generation WASP Bridge Products 3Health News:Dental Storage and Dispensing Unit Invented by InventHelp Client (LGI-1890) 2Health News:Medtronic, DePuy Synthes Shift U.S. Bone Graft Substitute Market Towards Synthetic Demineralized Bone Matrices 2Health News:Medtronic, DePuy Synthes Shift U.S. Bone Graft Substitute Market Towards Synthetic Demineralized Bone Matrices 3
... Reporter , FRIDAY, Sept. 23 (HealthDay News) -- Fred Wyand ... of the public health response to human papillomavirus, or HPV. ... HPV News , a bimonthly newsletter published by the American ... 1990s. HPV is a sexually transmitted disease that most ...
... -- The University of South Florida School of Physical ... Department of Defense award for leading-edge musculoskeletal research intended ... military preparedness. The award will fund two major ... regimen may protect against low back injury in combat ...
... (HealthDay News) -- There is a genetic link between ... brain disorders, a new study indicates. Researchers identified ... discovered before, which play a role in people,s risk ... new insight into the causes of both conditions. ...
... By Amanda Gardner HealthDay Reporter , THURSDAY, ... arrow through the credibility of claims that a virus ... results from nine different labs around the United States ... solely on the basis of whether they tested positive ...
... The human brain doesn,t stop developing at adolescence, but continues ... of Medicine & Dentistry at the University of Alberta. ... that the human brain stopped developing in adolescence. But now ... case, thanks to medical research conducted in the Department of ...
... (SALT LAKE CITY)University of Utah biochemist Brenda L. Bass, ... less traveled. That bent hasn,t come ... distinguished professor of biochemistry who researches double-stranded RNA (dsRNA), ... fully understood. But Bass has made substantial discoveries involving ...
Cached Medicine News:Health News:Stress the 'Human' in HPV, One Man Suggests 2Health News:Stress the 'Human' in HPV, One Man Suggests 3Health News:US Department of Defense awards University of South Florida $1.59 million for musculoskeletal research 2Health News:US Department of Defense awards University of South Florida $1.59 million for musculoskeletal research 3Health News:US Department of Defense awards University of South Florida $1.59 million for musculoskeletal research 4Health News:US Department of Defense awards University of South Florida $1.59 million for musculoskeletal research 5Health News:Genetic Links Seen Between Bipolar Illness and Schizophrenia 2Health News:New Report Casts More Doubt on Virus' Link to Chronic Fatigue Syndrome 2Health News:New Report Casts More Doubt on Virus' Link to Chronic Fatigue Syndrome 3Health News:Some brain wiring continues to develop well into our 20s: U of A study 2Health News:Utah biochemist Brenda L. Bass wins NIH Pioneer Award 2Health News:Utah biochemist Brenda L. Bass wins NIH Pioneer Award 3Health News:Utah biochemist Brenda L. Bass wins NIH Pioneer Award 4
(Date:6/2/2015)...  Australian health technology company Global Kinetics ... rapidly progress the company,s global commercialisation strategy ... health technology. Foundation investor Brandon ... the funding round. New investors include institutional ... individuals and also the Israeli based OurCrowd ...
(Date:6/2/2015)... , June 2, 2015  Ovatemp proudly launches the ... fertility throughout their entire reproductive life cycle, from puberty ... the ONDO Bluetooth basal thermometer and connected Ovatemp app ... of getting pregnant, or avoid pregnancy altogether. The ONDO ... the free Ovatemp app can be downloaded from the ...
(Date:6/2/2015)... , June 2, 2015  Nektar Therapeutics (NASDAQ: ... Anderson Cancer Center today announced a research collaboration that ... a CD122-biased cytokine designed to preferentially stimulate production of ... naturally in the body.  CD122, which is also known ... signaling receptor that is known to increase proliferation of ...
Breaking Medicine Technology:Global Kinetics Corporation Closes AUD$14.8 Million Capital Raising 2Global Kinetics Corporation Closes AUD$14.8 Million Capital Raising 3Techstars-backed Startup Ovatemp Launches the Only Complete, Personalized Fertility Management Platform for Women 2Nektar and MD Anderson Cancer Center Announce Phase 1/2 Clinical Research Collaboration for NKTR-214, a CD122-Biased Immuno-Stimulatory Cytokine 2Nektar and MD Anderson Cancer Center Announce Phase 1/2 Clinical Research Collaboration for NKTR-214, a CD122-Biased Immuno-Stimulatory Cytokine 3Nektar and MD Anderson Cancer Center Announce Phase 1/2 Clinical Research Collaboration for NKTR-214, a CD122-Biased Immuno-Stimulatory Cytokine 4Nektar and MD Anderson Cancer Center Announce Phase 1/2 Clinical Research Collaboration for NKTR-214, a CD122-Biased Immuno-Stimulatory Cytokine 5Nektar and MD Anderson Cancer Center Announce Phase 1/2 Clinical Research Collaboration for NKTR-214, a CD122-Biased Immuno-Stimulatory Cytokine 6
... SAN DIEGO, Nov. 14, 2011 Prometheus Laboratories Inc., ... appointment of Dr. Peter Heseltine as Senior Vice President ... Prometheus with almost 35 years of experience in the ... where he served as Vice President and Medical Director ...
... ., a leading provider of terminology and data interoperability solutions, ... Health Infoway ( Infoway ) to provide the tools ... across Canada. SNOMED CT is a comprehensive ... (DTS) vocabulary server, TermWorks® data mapping tools, and ...
Cached Medicine Technology:Prometheus Announces New Chief Medical Officer 2Apelon Provides Products and Services to Support Canadian Healthcare Data Standardization 2
... The AVX catheter is designed ... to 12mm. High-pressure saline jets travel ... sound to create a low pressure ... is drawn into the catheter where ...
... Rheolytic Thrombectomy catheter is designed to offer ... jets create a low pressure zone around ... Thrombus is drawn into the catheter, where ... removed from the body.,AngioJet thrombectomy provides rapid ...
... System combines the legendary accuracy of the ... Windows* software. It integrates seamlessly into ... that enhance your clinical capabilities in an ... future of EP. The intended use ...
... are meeting the clinical needs of ... anesthesiologists. And, they are of the ... Medtronic.,Effective pacing with the adjustment of ... quick battery changes. Both the ...
Medicine Products: