Navigation Links
Survival instincts propel 'difficult patient' to insist on quality care
Date:9/10/2008

writes. "I'd been an avid cyclist, and suddenly I had difficulty getting out of bed each morning. When I returned to the rheumatology clinic for a follow-up appointment, the doctor attributed my symptoms to stress, irritably dismissing me with, 'You just have Raynaud's.' I knew that physicians often blamed stress for the 'inexplicable' ailments of young women; I refused to be dismissed so easily. I sought a second opinion from another rheumatologist at a different major academic medical center, and he reiterated the same diagnosis. Although I truly believed that I had scleroderma, I wanted to be wrong. So I acquiesced and, by doing so, caused further delay in my diagnosis."

Mayer goes on to describe years of inappropriate and ineffective treatment, struggles to get physicians to listen to her, and hopelessness.

"But my husband prodded me to fight," she writes, "and soon my survival instincts kicked into high gear."

She sought physicians who were supportive and helpful, traveling hundreds of miles for appointments. She and her husband longed to have children, so, after searching the medical literature, she determined she was not at high risk for developing complications for herself or the baby. Defying the recommendations of scleroderma experts, she became pregnant and, over 26 months, gave birth to two healthy babies without causing additional harm to her own condition.

"I've faced many decisions about my care during the past 12 years," she writes, "and my assertiveness has been greeted variably with contempt, resignation and, at times, support."

The doctor/patient relationship must be based on trust, she said. And that trust has to go both ways.

"I wasn't interested in being told what to do and I expected my doctors to respect my right to make truly informed choices that were consistent with the way in which I wanted to intervene in my disease and live my life," she writes. "But being a difficult patient is a
'/>"/>

Contact: Patric Lane
patric_lane@unc.edu
919-962-8596
University of North Carolina at Chapel Hill
Source:Eurekalert

Page: 1 2 3

Related medicine news :

1. Conventional prognostic factors fail to explain better prostate cancer survival in most Asian men
2. Survival differences by race most apparent in advanced stages of breast cancer
3. Prophylactic cranial irradiation in small cell lung cancer significantly increases survival
4. Human C-reactive protein regulates myeloma tumor cell growth and survival
5. Mediterranean Diet May Boost Alzheimers Survival
6. Hospitals Improve Survival Rates While Treating Sicker Patients Thomson Healthcare Study Shows
7. The Fight for His Life: Author, Family Battle Disease and Challenge Politics in the Face of Survival
8. Communication in cancer world is key to survival
9. Molecular profiling can accurately predict survival in colon cancer patients
10. New chemotherapy regimen prolongs survival in difficult-to-treat childhood brainstem gliomas
11. Phase II study shows HRPC patients with bone metastases see improved survival with ZD4054
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:9/15/2014)... 2014 Marlton, New Jersey, Sept 9, ... M. Goldstein, of the law firm of Ricci Tyrrell ... the issuance of U.S. Patent No. 8,774,911 from the ... innovative design for a pedicle locator instrument is invented ... a board certified neurosurgeon specializing in minimally-invasive spine surgery. ...
(Date:9/15/2014)... Fancyflyingfox.com, the distinguished wedding dress manufacturer and retailer, ... wedding dresses . All clients can enjoy a greatly ... to 70 percent off. According to the company’s sales ... loyal customers by launching the current sale. , ... different styles of special occasion gowns are provided. All ...
(Date:9/14/2014)... This event allowed the participants to rehearse cooking for ... Social Gastronomy which will be held on 9 October ... bring together a total of 90 participants comprising 30 ... 30 disadvantaged families, forming 30 teams to prepare a ... raise the public’s awareness of reducing food waste, as ...
(Date:9/14/2014)... Proper oral care requires about two minutes ... a way to teach children to brush their teeth ... encourages an effective brushing habit by ensuring that he ... overbrushing, eliminating guesswork and promoting independence and proper oral ... for all children, and producible in design variations. , ...
(Date:9/14/2014)... Transvaginal mesh ( http://www.injurybeacon.com/transvaginal-mesh/ ) lawsuits ... two separate litigations are moving forward in Atlantic County ... to Case Lists updated on September 5th, thousands of ... C.R. Bard Inc., and Johnson & Johnson’s Ethicon unit. ... a total of 1,557 claims have now been filed, ...
Breaking Medicine News(10 mins):Health News:Patent Attorney Stuart M. Goldstein Helps Client Receive a Patent on a Surgical Device designed to Increase Accuracy and Safety in Vertebrae Repair and Attachment 2Health News:Patent Attorney Stuart M. Goldstein Helps Client Receive a Patent on a Surgical Device designed to Increase Accuracy and Safety in Vertebrae Repair and Attachment 3Health News:Patent Attorney Stuart M. Goldstein Helps Client Receive a Patent on a Surgical Device designed to Increase Accuracy and Safety in Vertebrae Repair and Attachment 4Health News:Patent Attorney Stuart M. Goldstein Helps Client Receive a Patent on a Surgical Device designed to Increase Accuracy and Safety in Vertebrae Repair and Attachment 5Health News:Great Discounts On Beach Wedding Dresses Announced By Fancyflyingfox.com Now 2Health News:PolyU Invites Professional Chefs and Grassroot Families to Prepare a Feast Using Unwanted Fresh Food Collected from Local Wet Markets 2Health News:New Jersey Litigations Continue to Add Ethicon, C.R. Bard Transvaginal Mesh Lawsuits, Bernstein Liebhard LLP Reports 2Health News:New Jersey Litigations Continue to Add Ethicon, C.R. Bard Transvaginal Mesh Lawsuits, Bernstein Liebhard LLP Reports 3Health News:New Jersey Litigations Continue to Add Ethicon, C.R. Bard Transvaginal Mesh Lawsuits, Bernstein Liebhard LLP Reports 4
... job strain, long hours to low birth weight , THURSDAY, ... increases the risk of low infant birth weight, a new ... women who filled out a questionnaire on employment and working ... 32 hours or more and high job strain during the ...
... out you,re not alone." , , ARLINGTON, Va., June ... released "Puzzle Pieces," a new public service announcement (PSA) initiative ... to help themselves, their families and their friends who live ... five American families is affected by mental illnesses such as ...
... St. Charles Surgical Hospital (SCSH) ... develop a dedicated and comprehensive lymphedema treatment program complete with trained ... Scott Sullivan and Frank DellaCroce , principal surgeons ... Breast Surgery , have created the first program of its ...
... Hospital for Children ... some things in life are still free thanks to Cox Communications. ... Van Dyck Park in Fairfax, the company hosts its annual ... offering family-friendly entertainment under the stars. This is the seventh ...
... American Indians, Hispanics were most vulnerable, report shows , ... of people who take their own lives are intoxicated ... , From 2001 to 2005, there were an estimated ... those deaths were associated with suicide, according to the ...
... ... ranked among America,s best pediatric institutions by U.S. News & World Report. Children,s ... in eight pediatric subspecialty areas. Ranked in the top 30 of nearly 100 ... their families for more than 135 years. , ...
Cached Medicine News:Health News:NAMI Launches New PSA Campaign 2Health News:St. Charles Surgical Hospital Announces Dedicated Lymphedema Treatment Program 2Health News:St. Charles Surgical Hospital Announces Dedicated Lymphedema Treatment Program 3Health News:Cox Movies Under the Moon(R) Offers Big-Screen Hits Under the Stars 2Health News:Cox Movies Under the Moon(R) Offers Big-Screen Hits Under the Stars 3Health News:Almost Quarter of Suicides Involve Intoxication 2Health News:U.S. News & World Report Ranks Children's National Medical Center among Best Children's Hospitals 2Health News:U.S. News & World Report Ranks Children's National Medical Center among Best Children's Hospitals 3
(Date:9/12/2014)...  Royal Philips (NYSE: PHG AEX: ... ASTRO,s 56th Annual Meeting in San ... confidence, consistency and accuracy in cancer treatment. Producing quality ... radiation oncology solutions underscore Philips, dedication to leading healthcare ... medicine. "Philips is leveraging our expertise in ...
(Date:9/12/2014)... , Sept. 12, 2014  WellStar Paulding Hospital is ... and became the second in the U.S. to offer ... part of WellStar Health System, Paulding Hospital is on ... latest treatments and solutions. Inspire Therapy offers ... patients who are unable to use traditional treatments, like ...
(Date:9/12/2014)... , September 12, 2014 According ... Products (Glucose Monitoring & Infectious Diseases Testing Kits, Cardiac ... Monitoring), Over the Counter & Prescription Based - Global ... global POC Diagnostics Market over the forecast period of ... at a CAGR of 9.3% from 2013 to 2018, ...
Breaking Medicine Technology:Philips Demonstrates Commitment to Radiation Oncology Solutions at ASTRO 2014 2Philips Demonstrates Commitment to Radiation Oncology Solutions at ASTRO 2014 3WellStar Pioneers New Sleep Apnea Treatment 2Point-Of-Care Diagnostic Market Worth $27.5 Billion by 2018 2Point-Of-Care Diagnostic Market Worth $27.5 Billion by 2018 3Point-Of-Care Diagnostic Market Worth $27.5 Billion by 2018 4
... 18, 2011 SomaLogic, Inc., announced today that it ... to use its unique proprietary proteomics technology to accelerate ... "We are excited by this opportunity to work with ... validate novel drug targets, and even develop companion clinical ...
... 2011 Hologic ... ), a leading developer, manufacturer and supplier of premium diagnostics ... the healthcare needs of women, announced today that the U.S. ... Trident specimen radiography system. The system uses Hologic,s proprietary ...
Cached Medicine Technology:SomaLogic Announces Research Agreement with Leading Global Pharmaceutical Company to Accelerate Pharmaceutical Discovery and Development 2FDA Clears Hologic's Specimen Radiography System 2FDA Clears Hologic's Specimen Radiography System 3FDA Clears Hologic's Specimen Radiography System 4
... Detect™ IgM Capture ELISA is for the ... WNV recombinant antigens (WNRA) in serum as ... of West Nile virus infection in patients ... results must be confirmed by Plaque Reduction ...
Adult; dilates 6.0 to 34.0 French; individually packaged, sterile....
The removable inflation adapter allows the ureteroscope to be removed after the catheter is in place. Supplied sterile in peel-open packages. Intended for one-time use....
The removable inflation/injection adapter allows the cystoscope to be removed after the catheter is in place. Supplied sterile in peel-open packages. Intended for one-time use....
Medicine Products: