Navigation Links
Successful Beginning for Wellstone Muscular Dystrophy Center at Boston Biomedical Research Institute
Date:7/2/2009

WATERTOWN, Mass., July 2 /PRNewswire-USNewswire/ -- Last week, physicians, scientists, patients and members of the biotech industry from around the world gathered for the first major meeting of a unique research center on muscular dystrophy -- the Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center.

Established last year and based at Boston Biomedical Research Institute (BBRI) in Watertown, MA, it is the only Wellstone Center and the only center in the world to focus solely on finding treatments and cures for the second most common adult form of MD known as facioscapulohumeral (FSH) muscular dystrophy. It is also the only Wellstone Center (there are five others in the US) in New England.

The purpose of the two-day retreat (June 16-18) was for world experts on this debilitating disease to present their current research findings, discuss and plan collaborative projects and fine-tune future research.

"We accomplished a great deal during this first gathering," said Dr. Charles Emerson, director of Boston Biomedical Research Institute and the Wellstone Center. "This was a wonderful opportunity to bring together the best minds involved in FSH research. We heard from individuals involved with this disease from Australia to Brazil to Iowa to Children's Hospital here in Boston. Their perspectives inform our direction moving forward."

FSH, which affects at least one in 20,000 adults worldwide, is characterized by a weakening of the skeletal muscles, beginning in the face and slowly progressing to the shoulder and upper-arm muscles and then down to the abdominal and foot-extensor muscles. In the worst cases, all skeletal muscles are lost, hearing and vision are involved, and respiratory insufficiency can cause severe disability.

The six Wellstone Centers -- inspired by and named for the late Senator Paul D. Wellstone and funded by the National Institutes of Health --represent a paradigm shift in research because of their intensely collaborative nature and especially because of their desire and mandate to include patient advocacy organizations as full partners in the research process.

Meeting participants came from BBRI, the FSH Society, Harvard, Acceleron and Novartis, Johns Hopkins Medical Institute, University of Maryland, University of Texas, Southwestern, University of Sao Paulo in Brazil, the University of Washington, and the FSH Global Research Foundation in Australia.

The Boston Biomedical Research Institute is a not-for-profit institution dedicated to the understanding, treatment, and prevention of specific human diseases such as muscular dystrophy, cancer, cardiovascular disease, and Alzheimer's. For more information, visit us on the web at www.bbri.org.


'/>"/>
SOURCE Boston Biomedical Research Institute
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. New Study Shows Many Unplanned Quit Smoking Attempts are Successful
2. The Meetings Industry...Stirred But Not Shaken by Current Economic Setbacks - Patriot Meetings Announces Their 360 Degree Program that Ensures Successful Meetings
3. Women with cystic fibrosis can have safe and successful fertility treatment
4. Successful Demonstration of Health Information Exchange Opens ARRA Stimulus Options for California
5. Lenox Hill Heart and Vascular Institute of New York and Mentice, Inc. Announce the Successful Completion of Their 1st Trans-septal Cardiac Catheterization Training Course: A Comprehensive Hands-On Tutorial with Certification on June 12th and 13th 2009 in
6. Atlantic Pharmaceuticals, Inc. Announces Completion of Successful Pre-IND Meeting with FDA for Abuse Deterrent Narcotic
7. Successful neurosurgery with transcranial MR-guided high-intensity focused ultrasound
8. Nationwide telemedicine networks are essential for successful health care reform
9. Palomar Successful in U.S. Patent Office Re-Examination of Hair Removal Patent
10. Havels Incorporated Expands Successful EchoStim(R) Ultrasound Needles into Canada
11. Impliant Granted Two New U.S. Patents and Successfully Defends European Patent Opposition Case
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... LEXINGTON, Ky. (PRWEB) , ... October 13, 2017 , ... ... MD, MPH to become its next President and Chief Executive Officer, succeeding Dr. James ... and CEO Elect beginning July 1, 2018 until Dr. Puffer’s retirement at the end ...
(Date:10/13/2017)... (PRWEB) , ... October 13, ... ... School of Pharmacy (SOP) alumni Hannah Randall, PharmD ‘17, and Jennifer Huggins, ... professionals on guideline updates for the primary prevention of cardiovascular diseases during ...
(Date:10/13/2017)... ... 2017 , ... Many families have long-term insurance that covers care for a ... waiver for care if the client has a cognitive impairment diagnosis. , “What ... is often waived, so the benefits from their insurance start immediately,” said Mechell Vieira, ...
(Date:10/13/2017)... NJ (PRWEB) , ... October 13, 2017 , ... Global ... at scenic Alexandria Park in Milford, NJ. This free event, sponsored by Global ... physical activity. The fun run is geared towards children of all ages; it ...
(Date:10/13/2017)... Fairfax, VA (PRWEB) , ... October 13, 2017 ... ... provider of DevOps and Agile Software Development, has been awarded a contract by ... (EATS) Blanket Purchase Agreement (BPA) aims to accelerate the enterprise use of Agile ...
Breaking Medicine News(10 mins):
(Date:10/4/2017)... 4, 2017  South Korean-based healthcare product Development Company ... "cprCUBE" on Kickstarter. The device will educate the user ... with better efficiency compared to the dated and pricey ... on efficacy of the compression for a more informed ... goal to raise $5,000. ...
(Date:10/4/2017)... OBP Medical , a leading ... today announced regulatory approval from Brazil,s ... Nacional de Vigilância Sanitária (ANVISA)) to market ... with integrated LED light source and smoke evacuation ... of a tissue pocket or cavity during surgical ...
(Date:10/2/2017)...  Eli Lilly and Company (NYSE: LLY ... quarter of 2017 on Tuesday, October 24, 2017. Lilly ... with the investment community and media to further detail ... will begin at 9 a.m. Eastern time. Investors, media ... of the conference call through a link that will ...
Breaking Medicine Technology: