Navigation Links
Sports guidelines for long QT syndrome patients may be too strict, Mayo Clinic finds
Date:7/24/2012

ROCHESTER, Minn. -- Participation in competitive sports by people with long QT syndrome -- a genetic abnormality in the heart's electrical system -- has been a matter of debate among physicians. Current guidelines disqualify most LQTS patients from almost every sport. In a first-of-its-kind study, Mayo Clinic's LQTS Clinic recently examined its own experience, determining the outcome of LQTS patients who chose to remain athletes against guideline recommendations. The study is published online in the Journal of the American Medical Association.

In the study, the records of 353 LQTS patients ages 6 to 40 who were evaluated at Mayo Clinic between July 2000 and November 2010 were reviewed to determine which patients chose to continue athletic participation after LQTS diagnosis and LQTS-related events.

Of the 157 patients who were athletes at the time of their evaluation, 27 (17 percent) chose to disqualify themselves, "debunking the myth" that families would never choose to quit sports, says senior author Michael Ackerman, M.D., Ph.D., pediatric cardiologist and Director of Mayo's LQTS Clinic. More importantly, of the 130 patients who chose to remain an athlete, only one experienced a LQTS-triggered event during a sport; the athlete received an appropriate shock from his implantable cardioverter-defibrillator on two separate occasions. For the study, researchers defined a competitive athlete as a person who participated in organized competitive sports at the little league, middle or high school, collegiate or professional level.

"About eight years ago after I started to see some of these lives ruined by the recommendation to discontinue sports, we decided to challenge the status quo," Dr. Ackerman says. "We adopted a philosophy that empowered patients and their families with the right to make an informed and difficult decision about continuing in competitive sports, a possible LQTS risk-taking behavior."

Dr. Ackerman presented these findings Sunday in Glasgow, Scotland, at a pre-2012 Summer Olympics medical conference on sports, athletes and health. LQTS patients can become successful athletes; swimmer Dana Vollmer, who has LQTS and is not a Mayo patient, will compete in London.

In LQTS, which affects one in 2,000 people, the rapid heartbeats can trigger a sudden fainting spell, seizure or sudden death. Treatment can involve medication, medical devices or surgery.

"We felt that although exercise, sports, and the thrill of victory and agony of defeat could potentially trigger a dangerous heart rhythm in these patients, that in a well-counseled, well-studied and well-treated patient, these may be manageable risks," Dr. Ackerman says. "Up until now, the current status quo has been to view these things as controllable risk factors which are controlled by kicking these patients out of most sports and telling them to not get their heart rate up and not get too excited."

Two sets of guidelines have medical eligibility criteria for patients with cardiovascular abnormalities: the 36th Bethesda Conference guidelines and the European Society of Cardiology guidelines. The ESC guidelines are more restrictive, Dr. Ackerman says. Both sets of guidelines are based on expert opinions and rely on the "art of medicine" because there is little evidence about the real risk of sports participation, he says.

As patients in Mayo Clinic's LQTS Clinic, all 353 initially evaluated for this study received a comprehensive two- to three-day clinical and genetic evaluation, including a one- to two-hour consultation with Dr. Ackerman, all of which is standard for LQTS Mayo patients.

Patients who were already athletes and chose to continue athletics received counseling on athletic participation guidelines. If the patient chose to continue competitive athletics, the decision had to be agreed on by the physician, the patient, and both parents, depending on the patient's age. In addition to the patient's treatment, such as medications, each athlete obtained an automated external defibrillator, and the athlete's school officials and coaches were notified.

Of the 130 patients who remained athletes, 20 had ICDs. Forty-nine (38 percent) participated in more than one sport. Thirty-two athletes competed in high school, and eight competed at the college, university or professional level.

The results suggest that the Bethesda and ESC guidelines may be excessively restrictive, Dr. Ackerman says. But he cautions that LQTS patients who want to remain athletes should seek treatment at a center of excellence. "The patient must be evaluated, risk-stratified, treated, and counseled carefully so that the athletes and their families can make an informed decision," he says.


'/>"/>
Contact: Traci Klein
newsbureau@mayo.edu
507-284-5005
Mayo Clinic
Source:Eurekalert

Related medicine news :

1. UCLA Brain Injury Research Center gets NCAA funding for research on sports concussions
2. Some Sports May Help Protect Mens Bones
3. Fees Lead Some Kids to Skip After-School Sports: Survey
4. Former Athlete Credits Sports for Surviving Horrible Car Accident and Lengthy Coma
5. Somers Orthopaedic Surgery & Sports Medicine Group, PLLC Announces the Opening of their New Physical Therapy Location at its Hopewell Junction Office
6. Stimulant marketed as natural in sports supplement actually of synthetic origin
7. Sports 1, housework, 0
8. Common athletic hip disorder increases chances for sports hernia, study suggests
9. Common Hip Disorder May Raise Risk for Sports Hernia
10. Playing Several Sports Keeps Kids Slimmer: Study
11. Pre-Season Fitness Not a Factor in Collegiate Sports Injury Risk
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/9/2016)... ... 2016 , ... The Pennsylvania Athletic Trainers’ Society (PATS) aired ... of 2016. The program was made possible by a Pennsylvania Department of Health ... and Human Services Administration. The broadcast, Use Your Head: Properly Managing Sport ...
(Date:12/8/2016)... Islandia, NY (PRWEB) , ... December 08, 2016 ... ... company, is pleased to announce that “Natural Language Processing–Enabled and Conventional Data Capture ... published in JMIR Medical Informatics . , Results of the comparative usability ...
(Date:12/8/2016)... ... ... David J. Dykeman , Ginger Pigott , and J. Rick ... West, Dec. 12, 2016, at the Fairmont Newport Beach in California. Greenberg Traurig is ... Sciences & Medical Technology Group have been featured speakers at every DeviceTalks conference since ...
(Date:12/8/2016)... , ... December 08, 2016 , ... ... Center has been recognized for adherence to the highest standards of trauma, ... accreditation organizations, announced the center's president and CEO, Dr. Daniel Messina. , Among ...
(Date:12/8/2016)... ... 2016 , ... Vida Health, the digital health platform that pairs ... Canvas Ventures . Other investors include Nokia Growth Partners (NGP) and returning investor Aspect ... consumers who are managing chronic conditions or simply want to improve their ...
Breaking Medicine News(10 mins):
(Date:12/8/2016)... , Dec. 8, 2016 Australia Glaucoma ... GlobalData,s new report, "Australia Glaucoma Surgery Devices ... on the Australia Glaucoma Surgery Devices market. The ... volume (in units) and average prices (USD) within ... report also provides company shares and distribution shares ...
(Date:12/8/2016)... , Dec. 8, 2016 KEY FINDINGS ... poised to grow in 2017-2023. Various reasons for growth ... obese population, higher incidences of chronic diseases, high recovery ... mobility aid services. Medical lifting sling refers to ... with limited mobility. These slings connect to the lift ...
(Date:12/8/2016)... INDIANAPOLIS , Dec. 8, 2016  Eli Lilly ... detailed results of its phase 3 EXPEDITION3 trial at ... (CTAD) meeting. As previously disclosed, solanezumab did not meet ... study of solanezumab initiated in people with mild dementia ... pursue regulatory submissions for solanezumab for the treatment of ...
Breaking Medicine Technology: