Navigation Links
Sophie's Voice Foundation helps children with spina bifida
Date:10/3/2010

SAN FRANCISCO Spina bifida or "open spine" is the most common permanently disabling birth defect in the United States, affecting three in 10,000 births. Because the spinal bones fail to close properly after conception, the child suffers nerve damage and usually has weak or paralyzed leg muscles.

After their daughter, Sophie, was diagnosed with spina bifida at birth, actors Boris Kodjoe and Nicole Ari Parker founded Sophie's Voice Foundation (SVF), a 501(c)(3) non-profit organization that supports medical research, prenatal education and prevention, access to affordable, specialized healthcare services and quality of life issues for children and adults with spina bifida.

Kodjoe and Parker will tell their daughter's story and discuss initiatives of the foundation during a special guest lecture at the American Academy of Pediatrics (AAP) National Conference and Exhibition in San Francisco on Sunday, October 3, from 10:30-11:15 a.m. PT. Sophie's Voice is underwriting a $1.88 million surgical trial at Children's Healthcare of Atlanta, and is establishing a clinic for children and adults with spina bifida in Ghana, Africa.

"Just like polio and small pox have been virtually eradicated, we need to create the political will to prevent future birth incidences of spina bifida and other preventable birth defects. Additionally, we must help heathcare providers establish a transition for children with spina bifida from pediatric healthcare environments into those for adult care," explained Sophie's Voice CEO James Okula.

Many children with spina bifida eventually learn to stand, and some even walk, but it is a grueling and frustrating process. Additional health issues can include bowel and bladder control, psychosocial problems and learning disabilities.

Spina bifida is a preventable birth defect, yet every day, 60 million women are at risk of having a baby born with this developmental disability . Sophie's Voice wants to educate all women of child-bearing ages about the importance of taking folic acid, an inexpensive vitamin supplement. By taking folic acid for three months before conception and during pregnancy, along with maintaining proper nutrition, 70 percent of spina bifida births can be prevented.


'/>"/>

Contact: Susan Martin
ssmartin@aap.org
American Academy of Pediatrics
Source:Eurekalert

Related medicine news :

1. Inner voice plays role in self-control
2. Inner voice plays role in self control
3. Voice Recorders Seem to Help Detect Autism
4. Apptera Raises $10M to Grow Its Voice And Visual Mobile Ad Network
5. Now Hiring: VoipWalker, Inc. DBA VoiceWalker, Experiences Significant Up-Tick in Business, Enters Hiring Mode
6. More than 60 percent of teachers have voice problems
7. Voice Analysis May Allow Early Detection of Parkinsons
8. The Scarlet I: Infertility survivors lend voices to U of I profs new book
9. Infants Sensitivity to Voices May Develop by 7 Months
10. VoiceNation Helps Non-Profits Gather Funding for Those in Need
11. Independent Womens Voice Releases Health Care Poll
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:4/26/2017)... (PRWEB) , ... April 26, 2017 , ... ... and clinical outcomes, today released the podcast, “Make Plans for MACRA,” ... value-based payment into the physician's office and how physicians and other clinicians are ...
(Date:4/26/2017)... ... April 26, 2017 , ... Elisabete Miranda, president ... honored by Enterprising Women magazine as one of its 2017 Enterprising Women of ... owners. Winners have demonstrated that they have fast-growth businesses, mentor or actively support ...
(Date:4/26/2017)... JOHYNSTON, Iowa (PRWEB) , ... April 26, 2017 ... ... agriculture? DuPont Pioneer today launched a unique website ( CRISPRCas.pioneer.com ) that demonstrates ... plants and help farmers produce more and better food, with fewer resources. It ...
(Date:4/25/2017)... San Jose, CA (PRWEB) , ... April 25, ... ... in cross-screen access, support, and collaboration, announces Mirroring360 Pro . This new ... providing a comprehensive collaboration experience for education and business. , Mirroring360 Pro enables ...
(Date:4/25/2017)... ... April 25, 2017 , ... A recent report from the ... for the 2015-16 school year across Wisconsin’s public schools, charter schools, and private ... patterns in student test score performance, the report’s limited analyses fail to provide ...
Breaking Medicine News(10 mins):
(Date:4/20/2017)... -- AbbVie (NYSE: ABBV), a global biopharmaceutical company, today ... C virus (HCV) infected patients with genotype 1, ... (Child-Pugh A) achieved sustained virologic response at 12 ... pan-genotypic regimen of glecaprevir/pibrentasvir (G/P). These high SVR ... of G/P treatment without ribavirin. Patients with specific ...
(Date:4/20/2017)... , April 20, 2017 NeuroVive ... ("NeuroVive") today announced positive preclinical results demonstrating ... compound for non-alcoholic steatohepatitis (NASH), in an ... NV556 has previously shown similar ... model. Today, NeuroVive,s scientists present novel data ...
(Date:4/19/2017)... , April 19, 2017 Cardiology devices segment is ... period The Cardiology Devices segment is likely to ... 15 Mn in 2018 over 2017. By the end of ... valuation close to US$ 700 Mn, expanding at a CAGR ... dominated the Asia Pacific reprocessed medical ...
Breaking Medicine Technology: