Navigation Links
Sophie's Voice Foundation helps children with spina bifida
Date:10/3/2010

SAN FRANCISCO Spina bifida or "open spine" is the most common permanently disabling birth defect in the United States, affecting three in 10,000 births. Because the spinal bones fail to close properly after conception, the child suffers nerve damage and usually has weak or paralyzed leg muscles.

After their daughter, Sophie, was diagnosed with spina bifida at birth, actors Boris Kodjoe and Nicole Ari Parker founded Sophie's Voice Foundation (SVF), a 501(c)(3) non-profit organization that supports medical research, prenatal education and prevention, access to affordable, specialized healthcare services and quality of life issues for children and adults with spina bifida.

Kodjoe and Parker will tell their daughter's story and discuss initiatives of the foundation during a special guest lecture at the American Academy of Pediatrics (AAP) National Conference and Exhibition in San Francisco on Sunday, October 3, from 10:30-11:15 a.m. PT. Sophie's Voice is underwriting a $1.88 million surgical trial at Children's Healthcare of Atlanta, and is establishing a clinic for children and adults with spina bifida in Ghana, Africa.

"Just like polio and small pox have been virtually eradicated, we need to create the political will to prevent future birth incidences of spina bifida and other preventable birth defects. Additionally, we must help heathcare providers establish a transition for children with spina bifida from pediatric healthcare environments into those for adult care," explained Sophie's Voice CEO James Okula.

Many children with spina bifida eventually learn to stand, and some even walk, but it is a grueling and frustrating process. Additional health issues can include bowel and bladder control, psychosocial problems and learning disabilities.

Spina bifida is a preventable birth defect, yet every day, 60 million women are at risk of having a baby born with this developmental disability . Sophie's Voice wants to educate all women of child-bearing ages about the importance of taking folic acid, an inexpensive vitamin supplement. By taking folic acid for three months before conception and during pregnancy, along with maintaining proper nutrition, 70 percent of spina bifida births can be prevented.


'/>"/>

Contact: Susan Martin
ssmartin@aap.org
American Academy of Pediatrics
Source:Eurekalert

Related medicine news :

1. Inner voice plays role in self-control
2. Inner voice plays role in self control
3. Voice Recorders Seem to Help Detect Autism
4. Apptera Raises $10M to Grow Its Voice And Visual Mobile Ad Network
5. Now Hiring: VoipWalker, Inc. DBA VoiceWalker, Experiences Significant Up-Tick in Business, Enters Hiring Mode
6. More than 60 percent of teachers have voice problems
7. Voice Analysis May Allow Early Detection of Parkinsons
8. The Scarlet I: Infertility survivors lend voices to U of I profs new book
9. Infants Sensitivity to Voices May Develop by 7 Months
10. VoiceNation Helps Non-Profits Gather Funding for Those in Need
11. Independent Womens Voice Releases Health Care Poll
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/25/2016)... ... June 25, 2016 , ... Austin residents seeking Mohs surgery ... of Mohs Surgery and to Dr. Russell Peckham for medical and surgical dermatology. , ... for skin cancer. The selective fellowship in Mohs Micrographic Surgery completed by Dr. Dorsey ...
(Date:6/25/2016)... Oklahoma (PRWEB) , ... June 25, 2016 , ... ... both athletes and non-athletes recover from injury. Recently, he has implemented orthobiologic procedures ... Oklahoma City area —Johnson is one of the first doctors to perform the ...
(Date:6/24/2016)... ... ... June 19, 2016 is World Sickle Cell Observance Day. In an effort ... holistic treatments, Serenity Recovery Center of Marne, Michigan, has issued a pain ... Disease (SCD) is a disorder of the red blood cells, which can cause episodes ...
(Date:6/24/2016)... (PRWEB) , ... June 24, 2016 , ... Comfort Keepers® ... American Cancer Society and the Road To Recovery® program to drive cancer patients to ... and other adults to ensure the highest quality of life and ongoing independence. ...
(Date:6/24/2016)... (PRWEB) , ... June 24, 2016 , ... ... client, The Grove Investment Group (TGIG), has initiated cultivation and processing operations at ... Las Vegas and Pahrump, Nevada. , Puradigm is the manufacturer of a complete ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... SAN FRANCISCO, Calif. , June 24, 2016 ... GBT ), a biopharmaceutical company developing novel therapeutics ... significant unmet needs, today announced the closing of ... shares of common stock, at the public offering ... shares in the offering were offered by GBT. ...
(Date:6/24/2016)... BEIJING , June 24, 2016 Dehaier ... or the "Company"), which develops, markets and sells medical ... China , signed a strategic cooperation agreement with ... as "Hongyuan Supply Chain") on June 20, 2016, to ... Under the strategic cooperation agreement, Dehaier will leverage Hongyuan ...
(Date:6/24/2016)... Belgium , June 24, 2016 /PRNewswire/ ... announced the appointment of Dr. Edward Futcher ... a Non-Executive Director, effective June 23, 2016.Dr. Futcher ... and Nominations and Governance Committees.  As a non-executive ... provide independent expertise and strategic counsel to VolitionRx ...
Breaking Medicine Technology: