Navigation Links
Shire Celebrates World Rare Disease Day on February 28
Date:2/26/2009

HGT business unit joins the global rare disease community to raise awareness for underserved populations; launches online resource to unite patient community

CAMBRIDGE, Mass., Feb. 26 /PRNewswire/ -- Shire Human Genetic Therapies (HGT), a business unit of Shire plc, the global specialty biopharmaceutical company, today announced it will join together with the National Organization of Rare Diseases (NORD) to celebrate World Rare Disease Day on February 28, 2009. The purpose of this day is to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.

In addition to supporting advocacy-driven partnership activities, which include a grassroots video campaign and outreach to policy makers to encourage better access to treatment and increased reimbursement for orphan drugs, Shire HGT is developing a new, comprehensive online resource center, set to launch in early 2009. This new online resource--called the BRAVE Community--is designed to help patients find important medical information and connect with one another. Shire HGT is inviting the rare disease community to visit http://www.BRAVECommunity.com to sign up to request information about specific rare genetic diseases and to be notified by email when the website officially launches.

"The rare disease community is often overlooked by others in the industry, which is why it gives us great pleasure to celebrate World Rare Disease Day," said Sylvie Gregoire, President of Shire HGT. "Our organization is committed to enabling people with life-altering conditions to lead better lives--and for Shire, this includes improving access to information as well as providing therapies for these diseases."

A rare disease is one that affects fewer than 200,000 Americans. According to the National Institutes of
'/>"/>

SOURCE Shire Human Genetic Therapies
Copyright©2009 PR Newswire.
All rights reserved

Page: 1 2 3 4

Related medicine news :

1. Berkshire Medical Center Selects Desktop Alert for Mass Notification Solutions
2. Berkshire Medical Center Selects Desktop Alert for Mass Notification Solutions
3. Anthem Blue Cross and Blue Shield in New Hampshire Ranks Among Top Insurers on U.S. News & World Report / National Committee for Quality Assurance Best Health Plans List
4. Anthem Blue Cross and Blue Shield in New Hampshire Associates Pledge More Than $260,000 to Community Organizations
5. New Hampshire Seniors Speak Out Against Medicare Advantage Cuts
6. Proposed Congressional Legislation Would Cut $6.6 Million from the Medicare Advantage Program in New Hampshire
7. State, National Long Term Care Community Applauds New Hampshire Leader in U.S. Senate for Helping Lead Effort to Block $770 Million Bush Medicare Cuts
8. Shire investigational nonstimulant INTUNIV showed significant efficacy in reducing ADHD symptoms
9. Anthem Blue Cross and Blue Shield in New Hampshire Announces Unique Enhancement to its ePrescribing Program
10. Shire to present ADHD treatments scientific data at American Psychiatric Assoc. Meeting
11. AUDIO from Medialink and Shire: What It Means to be an Adult With ADHD
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:4/25/2015)... York New York (PRWEB) April 25, 2015 ... that Dr. Jerry Blaivas has been chosen by the New ... for his contributions to medicine in the field of Urology. ... the best in his speciality, Genito-Urinary diseases. He was ... specifically in the field of urology. Not only did ...
(Date:4/25/2015)... (PRWEB) April 25, 2015 On Friday, ... of RFID Journal’s annual Best Implementation Award. This ... demonstrated the best use of RFID technology to improve ... is the company that best demonstrates how RFID is ... presented at RFID Journal Live! 2015 in San Diego, ...
(Date:4/24/2015)... 24, 2015 Bird B Gone, the leader ... now offers a complete line of bird control solutions to ... , New Flu Strains Threaten Pacific, Central and Mississippi Farms ... , a number of highly pathogenic avian flus in ... is often spread when wild birds enter poultry farms. The ...
(Date:4/24/2015)... (PRWEB) April 24, 2015 Multi Customer ... septic tank pumping ( http://www.zeitersseptics.com/multi-customer-discount.html ) of 1000-1500 gallons ... start the program. This does not include any Dig ... Save $25-$65 per person. If someone is part of ... two tanks totaling approximately 2500 gallons or more, the ...
(Date:4/24/2015)... 2015 Ryadon is a leading manufacturer ... capabilities and services to complement any custom hardware requirements ... Program will be offered on all heavy duty drawer ... Receive 10% discount - Order 20+: Receive 20% discount ... Slides Products, Furniture ,Drawer ...
Breaking Medicine News(10 mins):Health News:The 2015 Valentine Award Comes From The Heart and Goes To Famous New York Urologist 2Health News:The 2015 Valentine Award Comes From The Heart and Goes To Famous New York Urologist 3Health News:Seeonic’s Industry Leading Technology Powers Interstate Batteries to Winning Award 2Health News:Bird B Gone Offers Solutions to Bird Flu Threat to Poultry Farms 2Health News:Bird B Gone Offers Solutions to Bird Flu Threat to Poultry Farms 3Health News:Bird B Gone Offers Solutions to Bird Flu Threat to Poultry Farms 4Health News:Zeiter's Septics Inc. Offers Multi Customer Septic Tank Cleaning Program in Cook, Putnam & Will Counties in May 2015 2Health News:Zeiter's Septics Inc. Offers Multi Customer Septic Tank Cleaning Program in Cook, Putnam & Will Counties in May 2015 3Health News:Ryadon Inc. Offers Quantity Drawer Slide Discount Program Nationwide in May 2015 2Health News:Ryadon Inc. Offers Quantity Drawer Slide Discount Program Nationwide in May 2015 3
... N.Y., JAN. 5, 2009 Only 17 percent of ... are taking a multivitamin containing folic acid daily, according ... to focus on this population. , Folic acid ... of the brain and spine such as spina bifida ...
... Jan. 5 Only 17 percent of Spanish-speaking women ... a multivitamin containing folic acid daily, according to the ... on this population. Folic acid can prevent neural tube ... spine such as spina bifida and anencephaly, which are ...
... Volcano Corporation,(Nasdaq: VOLC ), a leader ... diagnosis and treatment of coronary and peripheral artery,disease, will ... to,discuss its acquisition of Axsun Technologies, Inc., that was ... The teleconference call and webcast will begin at 1 ...
... Conference on Cell Therapy for Cardiovascular Disease (IC3D) will ... organ injury. The session will include new data on ... cells for stroke patients, and treating Parkinson,s disease with ... include the first human data using special bone marrow ...
... Newswire Staff Volunteer Time As Part of ... Jan. 5 Ronald McDonald House of Cleveland ... non-profit organizations serving the Cleveland community, were the ... from PR Newswire,s Cleveland staff in 2008, PR ...
... OF THE AMERICAN SOCIETY OF PLASTIC SURGEONSARLINGTON HEIGHTS, Ill., ... the American Society of Plastic Surgeons:Can The US Really ... that while health care is one of the strongest ... sustainable reduction is US health care spending is not ...
Cached Medicine News:Health News:Folic acid survey of Spanish-speaking women finds most are missing benefits, March of Dimes says 2Health News:First Nationwide Folic Acid Survey of Spanish-Speaking Women Finds Most Are Missing Benefits, March of Dimes Says 2Health News:First Nationwide Folic Acid Survey of Spanish-Speaking Women Finds Most Are Missing Benefits, March of Dimes Says 3Health News:Reminder: Volcano Corporation Schedules Conference Call, Webcast to Discuss Axsun Transaction 2Health News:Conference on cell therapy includes new session on stem cells for non-cardiac organ injury 2Health News:PR Newswire Provides Grant to Ronald McDonald House and Habitat for Humanity in Cleveland 2Health News:PR Newswire Provides Grant to Ronald McDonald House and Habitat for Humanity in Cleveland 3Health News:PR Newswire Provides Grant to Ronald McDonald House and Habitat for Humanity in Cleveland 4Health News:PR Newswire Provides Grant to Ronald McDonald House and Habitat for Humanity in Cleveland 5Health News:Plastic and Reconstructive Surgery...In Brief 2Health News:Plastic and Reconstructive Surgery...In Brief 3
(Date:4/23/2015)... HILL, S.C. , April 23, 2015 ... on and strengthening our commitment to patient safety. ... in the fight against infectious disease. The ... Medical gas sensors are now mounted in ... reducing the need to open ceiling tiles potentially releasing ...
(Date:4/23/2015)... April 23, 2015 Nektar Therapeutics (Nasdaq: NKTR ... ended March 31, 2015 on Thursday, April 30, 2015, after ... president and chief executive officer, will host a conference call ... (ET)/2:00 p.m. Pacific Time (PT). The press ... can be accessed through a link that is posted on ...
(Date:4/23/2015)... 23, 2015  DanDrit Biotech A/S ("DanDrit Denmark"), ... , Inc. ("DanDrit"), (symbol : OTCQB:DDRT) a ... for the treatment of colorectal cancer, announced that ... signed a partnership agreement in Saudi ... advances DanDrit,s goal to deliver an innovative portfolio ...
Breaking Medicine Technology:BeaconMedaes launches new Zone Valve Box Assembly 2Nektar to Announce Financial Results for the First Quarter 2015 on Thursday, April 30, 2015, After Close of U.S.-Based Financial Markets 2DanDrit Biotech and Riyadh Pharma Sign Partnership Agreement 2
... 2011 Henry Schein, Inc. (NASDAQ: ... services to office-based practitioners, announced today that Ferdinand ... the CL King 9th Annual Best Ideas Conference 2011. The ... New York City. Henry Schein,s presentation is ...
... VILLAGE, Nev., Sept. 13, 2011 PDL BioPharma, Inc. (PDL) ... McLaughlin, the company,s president and chief executive officer, will present ... ) UBS Global Life Sciences Conference ... The JMP Securities Healthcare Conference Tuesday, ...
Cached Medicine Technology:Henry Schein to Present at the CL King 9th Annual Best Ideas Conference 2011 2
HME w/CO2 Sampling Port 22mm od/15mm od...
... T helps provide protection to the exposed airway ... extremely lightweight making it ideal for active young ... rate of heat and moisture recovery, it ensures ... HMEs and filters have ISO standard tapered ends ...
... provide protection to the exposed airway of the ... making it ideal for active young children as ... heat and moisture recovery, it ensures patient comfort ... filters have ISO standard tapered ends to assure ...
The Secretion Solution., ,Available Configurations: , Straight Flex Tube, Poppel Flex Tube, MDI Adaptor ...
Medicine Products: