Navigation Links
Scleroderma Foundation Holds Gateway to Hope 2009 National Patient Education Conference in St. Louis, Mo.
Date:7/16/2009

DANVERS, Mass., July 16 /PRNewswire/ -- The Scleroderma Foundation, the nation's leading non-profit supporter of scleroderma research, is holding the Gateway to Hope 2009 National Patient Education Conference July 17-19, 2009 in St. Louis, Missouri. Scleroderma, an autoimmune disease without a known cure, affects an estimated 300,000 people in the U.S., making it as common as multiple sclerosis. Scleroderma causes collagen to build up in the tissues of the skin and in internal organs, hardening them and leading to potentially fatal consequences.

The Gateway to Hope Conference helps patients and their families from all over the U.S. learn how to better cope with the physical and emotional challenges of living with scleroderma from the nation's foremost experts on the disease. This year's Conference will have a greater focus on juvenile scleroderma than in the past, incorporating more workshops aimed at helping younger patients deal with the disease. The Conference will also feature workshops on the latest treatments, like stem cell transplantation therapy, and provide scleroderma patients with a chance to build a supportive network of other patients from across the country.

"Every year I look forward to the National Conference as a chance to learn about the latest treatments and to come together with other patients," said Mary Blades, President of the Foundation's Missouri Chapter. "This year I am excited to be able to welcome scleroderma patients from across the country to my own community."

Two prominent scleroderma clinician researchers from Washington University School of Medicine in St. Louis, Richard Brasington, M.D. and Murali Chakinala, M.D., will be presenting at the Conference. Dr. Brasington, Professor of Medicine in the Division of Rheumatology will participate in the "Stem Cell Transplantation Panel" and lead a workshop on clinical trials, helping patients understand the clinical trial process and whether it is right for them. Dr. Chakinala, Associate Professor of Medicine in the Division of Pulmonary & Critical Care Medicine will be presenting a grand lecture on pulmonary arterial hypertension as well as a workshop on lung transplantation.

Heather Hawk, a national health and fitness correspondent for television and radio and host of the Charter Network's "Smart Living" television program, will present a workshop on juvenile fitness for young scleroderma patients and their families.

About the Gateway to Hope National Patient Education Conference

The Scleroderma Foundation's 2009 National Patient Education Conference is made possible in part by unrestricted educational grants from Actelion Pharmaceuticals US, Inc. (2009 National Silver Sponsor), Pfizer, Inc. (Silver Conference Sponsor), and Gilead Sciences, Inc.(Bronze Conference Sponsor). Scholarships to attend the Conference for scleroderma patients with a demonstrated financial need were provided in part by MediQuest Therapeutics, Inc.

The Conference is presented each year by the Scleroderma Foundation in different major cities across the U.S., and is the largest patient-oriented conference in the world dedicated to scleroderma and related diseases. It attracts scleroderma patients and their families from across the country as well as from Canada, Mexico, and several European nations.

To learn more about the Conference please go to www.scleroderma.org.

About the Scleroderma Foundation

Headquartered in Danvers, Mass., the Scleroderma Foundation is the nation's largest patient organization dedicated to improving the quality of life for patients with scleroderma. The Foundation's 22 chapters and over 170 support groups nationwide carry out its threefold mission of support, education and research.

To learn more about the Foundation and see patient and physician interviews click here.


'/>"/>
SOURCE Scleroderma Foundation
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. The Scleroderma Foundation Applauds Introduction of First Bill In Congress Promoting Research and Awareness of Scleroderma
2. New Source of Information on Scleroderma Medications
3. Tissue-Growth Gene Tied to Scleroderma
4. Proposed Water Trust Fund Bill Would Provide Solid Foundation for Improvement
5. MedicAlert Foundation and Autism Society Launch New Program to Safeguard Individuals and Families Living With Autism
6. Elton John, Billy Crystal, Tony Bennett, and Gladys Knight Help Starkey Hearing Foundation Raise More than $5 Million at Annual Fundraiser
7. Northeast Health Care Quality Foundation QIO Uses Milliman Care Guidelines(R) for Medicare, Medicaid Reviews
8. FAIR CEO Blasts Kaiser Foundation & Public Agenda HIV/AIDS Study Results as "Absolute Nonsense"
9. Renowned, Cleveland Clinic Foundation, Orthopaedic Sports Medicine Surgeon, John Bergfeld, MD, Inducted into Sports Medicine Hall of Fame
10. Earvin Magic Johnson and the Magic Johnson Foundation Give Students their Blueprint for Success at Annual Leadership Conference
11. CF Foundation Supports President Obamas Nomination of Francis Collins, M.D., Ph.D., as New NIH Director
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/26/2016)... ... May 26, 2016 , ... ... property (IP) to its specialty academic programs. , Answering to the increasing demand ... certificate programs in health law, and environmental and land use law. ,  , ...
(Date:5/26/2016)... (PRWEB) , ... May 26, 2016 , ... ... one that has a significant negative impact on long-term patient survival, reports a ... The results, published online this week in the Journal of Thoracic and Cardiovascular ...
(Date:5/26/2016)... , ... May 26, 2016 , ... ... Degeneration” for the Foundation Fighting Blindness, Long Island Chapter on June 4, 2016, ... public. , Dr. Maisel, founder of Retina Group of New York , ...
(Date:5/26/2016)... ... May 26, 2016 , ... Leadership of Life Science ... the organization has earned its ISO 13485 certification, indicating the company’s quality control ... rules and policies associated with ISO quality standard 13485. , BSI Group ...
(Date:5/26/2016)... , ... May 26, 2016 , ... ... campers a multitude of activities from daily practices, arts & crafts, discussions, and ... Directors Amber East-D’Anna and Christy Evans have combined backgrounds in kids’ yoga, collegiate ...
Breaking Medicine News(10 mins):
(Date:5/24/2016)... , May 24, 2016  Diana Russell suffers from ... organs from the inside out.  This disease has put ... on her children and grandchildren to leave her home.  ... Diana,s family cannot haul the wheelchair.  So if there ... car, and Diana is left to wait for the ...
(Date:5/24/2016)... -- NxStage Medical, Inc. (Nasdaq: NXTM ), a ... today announced that Jeffrey H. Burbank , Chief ... of investor conferences. Where applicable, a webcast of the ...   ... Friday, June 10, 2016 1:30 p.m. ET ...
(Date:5/24/2016)... BioMarketing as senior vice president of sales, announced Andrea Heslin Smiley , VMS ... company,s business development and sales team, exploring new opportunities for VMS to empower patients ... ... ... ...
Breaking Medicine Technology: