Navigation Links
Scleroderma Foundation Holds Gateway to Hope 2009 National Patient Education Conference in St. Louis, Mo.
Date:7/16/2009

DANVERS, Mass., July 16 /PRNewswire/ -- The Scleroderma Foundation, the nation's leading non-profit supporter of scleroderma research, is holding the Gateway to Hope 2009 National Patient Education Conference July 17-19, 2009 in St. Louis, Missouri. Scleroderma, an autoimmune disease without a known cure, affects an estimated 300,000 people in the U.S., making it as common as multiple sclerosis. Scleroderma causes collagen to build up in the tissues of the skin and in internal organs, hardening them and leading to potentially fatal consequences.

The Gateway to Hope Conference helps patients and their families from all over the U.S. learn how to better cope with the physical and emotional challenges of living with scleroderma from the nation's foremost experts on the disease. This year's Conference will have a greater focus on juvenile scleroderma than in the past, incorporating more workshops aimed at helping younger patients deal with the disease. The Conference will also feature workshops on the latest treatments, like stem cell transplantation therapy, and provide scleroderma patients with a chance to build a supportive network of other patients from across the country.

"Every year I look forward to the National Conference as a chance to learn about the latest treatments and to come together with other patients," said Mary Blades, President of the Foundation's Missouri Chapter. "This year I am excited to be able to welcome scleroderma patients from across the country to my own community."

Two prominent scleroderma clinician researchers from Washington University School of Medicine in St. Louis, Richard Brasington, M.D. and Murali Chakinala, M.D., will be presenting at the Conference. Dr. Brasington, Professor of Medicine in the Division of Rheumatology will participate in the "Stem Cell Transplantation Panel" and lead a workshop on clinical trials, helping patients understand the clinical trial process and whether it is right for them. Dr. Chakinala, Associate Professor of Medicine in the Division of Pulmonary & Critical Care Medicine will be presenting a grand lecture on pulmonary arterial hypertension as well as a workshop on lung transplantation.

Heather Hawk, a national health and fitness correspondent for television and radio and host of the Charter Network's "Smart Living" television program, will present a workshop on juvenile fitness for young scleroderma patients and their families.

About the Gateway to Hope National Patient Education Conference

The Scleroderma Foundation's 2009 National Patient Education Conference is made possible in part by unrestricted educational grants from Actelion Pharmaceuticals US, Inc. (2009 National Silver Sponsor), Pfizer, Inc. (Silver Conference Sponsor), and Gilead Sciences, Inc.(Bronze Conference Sponsor). Scholarships to attend the Conference for scleroderma patients with a demonstrated financial need were provided in part by MediQuest Therapeutics, Inc.

The Conference is presented each year by the Scleroderma Foundation in different major cities across the U.S., and is the largest patient-oriented conference in the world dedicated to scleroderma and related diseases. It attracts scleroderma patients and their families from across the country as well as from Canada, Mexico, and several European nations.

To learn more about the Conference please go to www.scleroderma.org.

About the Scleroderma Foundation

Headquartered in Danvers, Mass., the Scleroderma Foundation is the nation's largest patient organization dedicated to improving the quality of life for patients with scleroderma. The Foundation's 22 chapters and over 170 support groups nationwide carry out its threefold mission of support, education and research.

To learn more about the Foundation and see patient and physician interviews click here.


'/>"/>
SOURCE Scleroderma Foundation
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. The Scleroderma Foundation Applauds Introduction of First Bill In Congress Promoting Research and Awareness of Scleroderma
2. New Source of Information on Scleroderma Medications
3. Tissue-Growth Gene Tied to Scleroderma
4. Proposed Water Trust Fund Bill Would Provide Solid Foundation for Improvement
5. MedicAlert Foundation and Autism Society Launch New Program to Safeguard Individuals and Families Living With Autism
6. Elton John, Billy Crystal, Tony Bennett, and Gladys Knight Help Starkey Hearing Foundation Raise More than $5 Million at Annual Fundraiser
7. Northeast Health Care Quality Foundation QIO Uses Milliman Care Guidelines(R) for Medicare, Medicaid Reviews
8. FAIR CEO Blasts Kaiser Foundation & Public Agenda HIV/AIDS Study Results as "Absolute Nonsense"
9. Renowned, Cleveland Clinic Foundation, Orthopaedic Sports Medicine Surgeon, John Bergfeld, MD, Inducted into Sports Medicine Hall of Fame
10. Earvin Magic Johnson and the Magic Johnson Foundation Give Students their Blueprint for Success at Annual Leadership Conference
11. CF Foundation Supports President Obamas Nomination of Francis Collins, M.D., Ph.D., as New NIH Director
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/27/2016)... ... June 27, 2016 , ... "FCPX editors can now reveal their media with ... X," said Christina Austin - CEO of Pixel Film Studios. , ProSlice Color ... users can now reveal the media of their split screens with growing colorful ...
(Date:6/27/2016)... ... June 27, 2016 , ... ... patient payment industry today announced its strategic partnership with Connance, a healthcare ... , The two companies’ proven, proprietary technology combine to provide health systems, ...
(Date:6/27/2016)... Park, KS (PRWEB) , ... June 27, 2016 , ... ... in retailers of Eyeglasses . , Millions of individuals in the United States ... eyeglasses have become a way to both correct vision and make a fashion statement. ...
(Date:6/26/2016)... Battle Creek, Michigan (PRWEB) , ... June 26, 2016 , ... ... abuse, joined as sponsor of the 2016 Cereal Festival and World’s Longest Breakfast Table ... held in honor of the city’s history as home to some of the world’s ...
(Date:6/26/2016)... ... ... PawPaws brand pet supplements owned by Whole Health Supply is ... of felines. The formula is all-natural and is made from Chinese herbs that have ... Kidney Support Supplement Soft Chews are Astragalus Root Extract and Rehmannia Root Extract ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... , June 24, 2016 ... appointment of Dr. Edward Futcher to ... Director, effective June 23, 2016.Dr. Futcher was also ... and Governance Committees.  As a non-executive member of ... expertise and strategic counsel to VolitionRx in connection ...
(Date:6/23/2016)... June 23, 2016 Research and ... Excipients Market by Type (Organic Chemical (Sugar, Petrochemical, Glycerin), ... Topical, Coating, Parenteral) - Global Forecast to 2021" ... The global pharmaceutical excipients market is projected ... CAGR of 6.1% in the forecast period 2016 to ...
(Date:6/23/2016)... 23, 2016 Research and Markets has ... 52" report to their offering. ... creates a favourable commercial environment for MedImmune to enter. The ... that will serve to drive considerable growth for effective anti-influenza ... to cap sales considerably, but development is still in its ...
Breaking Medicine Technology: