Navigation Links
Schools failing pupils with sickle cell disease
Date:7/20/2011

A new study suggests young people with a serious genetic blood disorder are not getting the right help at school, especially pupils who miss lessons due to sickness.

Research funded by the Economic and Social Research Council (ESRC) at De Montfort University, the University of York and Loughborough University reveals that most children with sickle cell disease (SCD) do not feel supported by schools in catching up on absences from class.

Sickle cell is an inherited condition affecting around one in every 2,000 children born in England. The majority are from ethnic minority backgrounds and those with the disease may develop abnormal shaped red blood cells which block blood vessels. This can lead to chronic pain, organ damage and even strokes.

A common assumption has been that raising awareness in teachers about sickle cell is enough. Yet Professor Simon Dyson from De Montfort and the research team found no link between a school knowing a pupil has SCD and the child reporting improved experiences at school.

The study also found that young people are divided on whether others at school should be told they have SCD. Some believe this will lead to help, other pupils feel it will intensify bullying.

"Many schools are failing to keep young people well, and are not supporting them to catch-up any schooling they miss through illness," says Professor Simon Dyson who works in the Unit for the Social Study of Thalassaemia and Sickle Cell at De Montfort.

Professor Dyson and his researchers have developed a policy guide for schools on supporting children with medical conditions. The Department for Education have since used this information in a health and safety leaflet targeting educators.

The guide highlights examples of good practice where schools have adjusted their approach or policies to improve support for young people with SCD. Often this includes providing assistance but without drawing attention to pupils with the condition and not labelling pupils with SCD as 'truants' if they are persistently absent, or not forcing children who are tired or in pain to take exercise.

One school instigated a system of issuing the young person with a laminated card stating that the young person has the right to excuse themselves during lesson in order to go the toilet. Another school has a policy of regular twilight catch-up sessions after school. This learning centre is staffed on a rota basis so that any pupil who has missed a lesson for any reason can catch up in the presence of teachers, which doesn't single out the SCD student.

The impact of SCD on the educational experiences of young people is an under-researched area. Schools do have a duty to ensure the health and safety of pupils under the Health and Safety at Work Act, but previous studies have shown that pupils can miss weeks of schooling a year if schools and colleges do not have the correct support in place.

Professor Dyson comments: "Good practice consists of changing the wider school environment in the background without drawing attention to the young person with sickle cell as different from others. Being seen as different is something young people with sickle cell hate".


'/>"/>

Contact: Pressoffice
Pressoffice@esrc.ac.uk
Economic & Social Research Council
Source:Eurekalert

Related medicine news :

1. Fast-Food Outlets Near Schools May Not Be Making Teens Fat
2. Closing Schools Seems to Prevent Flus Spread
3. Successful Schools May Help Keep Kids Out of Trouble
4. NIDCR funding to US dental schools diminished from 2005 to 2009
5. Flu Spreads Easily in High Schools, Study Suggests
6. High-Calorie Drinks Still Widely Sold in U.S. Elementary Schools
7. APA gives LSUHSC psychiatry gold award for program in St. Bernard schools after Katrina
8. Researchers will test suicide prevention program in high schools
9. Keeping faith -- schools must balance ethos with equality
10. Africa cell phone boom beneficial -- but schools, roads, power, water remain critical needs
11. US dental schools leave graduates unprepared to screen for sleep disorders
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/24/2016)... NY (PRWEB) , ... May 24, 2016 , ... Growing ... this growing trend, more gluten-free products are available and easily accessible. Whether someone chooses ... want to cater to a certain diet, King Kullen Grocery stocks their shelves with ...
(Date:5/24/2016)... ... May 24, 2016 , ... The number of health ... or 10% over last year, according to data in the forthcoming AIS’s Directory ... comparatively stable, with a slight decrease in risk-based groups and a slight increase ...
(Date:5/24/2016)... CA (PRWEB) , ... May 24, 2016 , ... As ... performed the first penis transplant in the United States . The 64-year-old patient ... with penile cancer. The transplant could restore not only a natural appearance, but also ...
(Date:5/24/2016)... ... ... In light of recent heavy flooding in Houston, Texas, Pelican Water Systems is ... Houston area. , Heavy floodwaters have led to destroyed waterways and flooded reservoirs. The ... even be aware of the contamination of their water supply and thus, may be ...
(Date:5/24/2016)... ... May 24, 2016 , ... Aloria Health Announces ... Begin In June , Aloria Health, specializing in a re-imagined, client-oriented approach to ... Milwaukee, its first treatment facility for outpatient, day treatment and residential care. Aloria ...
Breaking Medicine News(10 mins):
(Date:5/24/2016)... May 24, 2016 ... , la première endoprothèse à double ... à l,intervention portant sur les membres inférieurs ... OrbusNeich, entreprise mondiale spécialisée dans la ... la vie, a élargi son portefeuille pour ...
(Date:5/23/2016)... , May 23, 2016 ... Handling Equipment Market by Product (Wheelchair, Scooters, Medical ... (Bariatric Care, Critical Care, Wound), Accessories (Lifting, Transfer) ... to 2021", published by MarketsandMarkets, the patient handling ... Billion by 2021 at a CAGR of 10.5% ...
(Date:5/23/2016)... 23, 2016 According to ... Development, Growth and Demand Forecast to 2022 - ... by Application (Drug Discovery and Development, Proteomics, Clinical ... Life Science and Biotechnology, Academic and Research Institute, ... the global mass spectrometry market was ...
Breaking Medicine Technology: