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Rules on Patients' Medical Data Hampering Research
Date:11/13/2007

o protect human research subjects. "It may be that there needs to be litigation," he said.

And, added Fost, "the basic structure [for research] that is already in place is very good. There's no question that the profession was not doing a good job on their own, and they needed to be forced to set up IRBs [institutional review boards] and make them work. But in 1983, a presidential commission concluded that the system was working very well."

More information

To learn more about HIPAA, visit the U.S. Department of Health and Human Services.



SOURCES: Roberta B. Ness, M.D., professor and chair, department of epidemiology, Graduate School of Public Health, University of Pittsburgh; Norman Fost, M.D., chair, Institutional Review Board, professor, pediatrics and founder/director, bioethics program, University of Wisconsin School of Medicine and Public Health, Madison; Nov. 14, 2007, Journal of the American Medical Association


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Rules on Patients' Medical Data Hampering Research
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