Navigation Links
Researchers guardians of trust in biobank research
Date:2/19/2013

Do we trust biobank researchers? In a doctoral thesis from Uppsala University, medical doctor and bioethicist Linus Johnsson claims that we do: At least in Sweden. And since we do, researchers in turn have a moral responsibility towards us.

On March 9, Linus Johnsson, medical doctor and bioethicist at the Centre for Research Ethics & Bioethics (CRB), will defend his thesis on trust in biobank research. Trust is a sensitive issue in all research, but perhaps particularly so when it comes to biobanks. There has been debate on whether the police should be able to access samples, and whether this would lead to distrust and to people withdrawing their samples. In Sweden, the PKU biobank became famous in 2003 after foreign minister Anna Lindh's murderer was identified through blood stored there.

Public trust in the research community is often measured in surveys. In one study, Linus Johnsson shows that people may be more willing to donate samples than most of these surveys indicate. Especially if health care personnel approach them face-to-face. He believes that this is because relationships of trust are important in our decision making.

In another study, Linus Johnsson found that trust is very much present, at least in the Swedish biobank settings he has studied. According to him, researchers have to consider the expectations that people have of them. The fact that they are trusted in turn means that they have a responsibility towards the public.

Despite ethics review, guidelines and informed consent procedures, ethical issues will always arise during the course of a research project, says Linus Johnsson. He warns against putting too much trust in regulatory systems.

"Relying on formal rules and regulations to guarantee research participants' trust is not enough. They can never cover all ethical considerations that researchers should make", he says.

In his thesis, Linus Johnsson sees a danger that the review system fosters researchers to a kind of moral complacency. If we trust the system to take care of everything we risk researchers becoming blind to the ethical issues that are not covered by rules.

"Putting too much trust in the system could potentially alienate researchers to ethics. Following rules is not enough. Researchers and institutions have to reflect on what their duties are", Linus Johnsson says.


'/>"/>

Contact: Linus Johnsson
linus.johnsson@crb.uu.se
46-706-514-225
Uppsala University
Source:Eurekalert

Related medicine news :

1. NIH awards $20 million over 5 years to train next generation of global health researchers
2. Researchers develop a new cell and animal model of inflammatory breast cancer
3. Researchers uncover a viable way for colorectal cancer patients to overcome drug resistance
4. Researchers Find Gene Mutations That May Be a Key to Autism
5. Researchers find evidence of banned antibiotics in poultry products
6. NJ stroke researchers report advances in spatial neglect research at AAN Conference
7. Autism by the numbers: Yale researchers examine impact of new diagnostic criteria
8. Researchers Map Brain Regions Linked to Intelligence
9. Researchers ID Genes That May Determine Mental Illness
10. Researchers Develop Blood Test for Depression
11. University of Cincinnati researchers win $3.7M grant from US Department of Defense
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/23/2017)... (PRWEB) , ... February 23, 2017 , ... ... outlet with a clinician-based audience, will be participating in Rare Disease Day events, ... Washington, D.C. In addition, Rare Disease Report, a website, weekly e-newsletter and quarterly ...
(Date:2/23/2017)... ... February 23, 2017 , ... Rosica Communications, a national ... marketing, social media management, corporate communications, SEO and cause marketing, is opening an ... nearby New Hampshire, Massachusetts and Canada, Rosica will focus on expanding its footprint. ...
(Date:2/23/2017)... ... February 23, 2017 , ... Pink Pig Publishing ... generations converge and explore the world from different perspectives. By providing a place ... to gain understanding, increase empathy, and find greater happiness. , "Our approach ...
(Date:2/23/2017)... ... 2017 , ... The Center for Autism and Related Disorders ... Research and Treatment (RI-CART) and Cinemaworld to present Sensory Friendly Films. The events ... films in an environment that accommodates their unique needs. , Launched in January, ...
(Date:2/23/2017)... ... 2017 , ... Curemark, LLC announced today that the Blüm Study, a Phase ... 3-8 with Autism, is now enrolling at three new sites. These new sites are ... , “There are currently no approved drugs that address the core symptoms of ...
Breaking Medicine News(10 mins):
(Date:2/23/2017)... , Feb 23, 2017 Research and Markets ... & Trends - Industry Forecast to 2025" report to their ... The ... around 6.9% over the next decade to reach approximately $47.6 billion ... estimates and forecasts for all the given segments on global as ...
(Date:2/23/2017)... February 23, 2017 The fast-growing cannabis ... the United States . According to the 2017 Legal ... is expected to create 283,422 jobs by 2020, with an ... the next four years. The accelerating pace of cannabis legalization ... of legal cannabis market, which will further create more business ...
(Date:2/23/2017)... , February 23, 2017 ... on the global market for intraoperative imaging, excerpts ... valued at US$ 513.9 million. According to the ... surging on the grounds of increasing adoption of ... field of diagnostic imaging for neurosurgeries. The world,s ...
Breaking Medicine Technology: