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Researchers call for health-care changes to help adults with developmental disabilities
Date:11/12/2013

(Toronto) November 12, 2013 Adults with developmental disabilities such as autism and Down syndrome are having a harder time accessing health care even though they have more health issues than people without developmental disabilities, according to research done at the Institute for Clinical Evaluative Sciences (ICES) and the Centre for Addiction and Mental Health (CAMH).

"This group of individuals is a silent minority in the health care system, but now instead of just relying on anecdotal evidence, we finally have the big picture on their health and the health services that they use," says Yona Lunsky, lead author of the Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario.

The atlas, the largest study of its kind, found there are over 66,000 adults with developmental disabilities under age 65 in Ontario. Adults with developmental disabilities live in poorer neighbourhoods and have higher rates of physical and mental health problems than other Ontario adults. They receive multiple medications for these health issues, which are not always well monitored. While they are as likely to see their family physician as other adults, they are more likely to visit emergency departments and to be hospitalized.

"These individuals don't get the same level of preventive care, such as cancer screening and not all of their chronic health issues are managed as well as they should be. In general, their care is not consistent with what health-care guidelines recommend for adults with developmental disabilities," says Lunsky, a clinician scientist at CAMH, an adjunct scientist at ICES and director of the Health Care Access Research and Developmental Disabilities (H-CARDD) research program.

"Although the level of care was good during emergencies, there was a recurring mantra of 'patch her up and send her out until the next time' We felt then, as we do now, that there needs to be a better process that connects hospital
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Contact: Michael Torres
media@camh.ca
416-595-6015
Centre for Addiction and Mental Health
Source:Eurekalert

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