Navigation Links
Researchers call for health-care changes to help adults with developmental disabilities
Date:11/12/2013

(Toronto) November 12, 2013 Adults with developmental disabilities such as autism and Down syndrome are having a harder time accessing health care even though they have more health issues than people without developmental disabilities, according to research done at the Institute for Clinical Evaluative Sciences (ICES) and the Centre for Addiction and Mental Health (CAMH).

"This group of individuals is a silent minority in the health care system, but now instead of just relying on anecdotal evidence, we finally have the big picture on their health and the health services that they use," says Yona Lunsky, lead author of the Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario.

The atlas, the largest study of its kind, found there are over 66,000 adults with developmental disabilities under age 65 in Ontario. Adults with developmental disabilities live in poorer neighbourhoods and have higher rates of physical and mental health problems than other Ontario adults. They receive multiple medications for these health issues, which are not always well monitored. While they are as likely to see their family physician as other adults, they are more likely to visit emergency departments and to be hospitalized.

"These individuals don't get the same level of preventive care, such as cancer screening and not all of their chronic health issues are managed as well as they should be. In general, their care is not consistent with what health-care guidelines recommend for adults with developmental disabilities," says Lunsky, a clinician scientist at CAMH, an adjunct scientist at ICES and director of the Health Care Access Research and Developmental Disabilities (H-CARDD) research program.

"Although the level of care was good during emergencies, there was a recurring mantra of 'patch her up and send her out until the next time' We felt then, as we do now, that there needs to be a better process that connects hospitals, caregivers, family doctors and patients with a focus on long-term intervention, thereby reducing the need for emergency hospitalization," says Roger Oxenham, father of a young adult with developmental disabilities.

Researchers are recommending strategies to enhance the overall health and wellbeing of individuals with developmental disabilities. They include:

  • Enabling primary care providers to more easily offer guideline-recommended care
  • Addressing the broader health system issues and pathways to care, and
  • Making people with developmental disabilities and their families and paid staff active partners in care, giving them the tools they need.

The H-CARDD program has two projects underway to improve health outcomes for adults with developmental disabilities: the Primary care project with family health teams and the Emergency care project.​

Lunsky will be speaking at Health and Wellbeing in Developmental Disabilities: Engaging Health Care Professionals conference in Toronto on November 12 and 13.


'/>"/>

Contact: Michael Torres
media@camh.ca
416-595-6015
Centre for Addiction and Mental Health
Source:Eurekalert

Related medicine news :

1. NIH awards $20 million over 5 years to train next generation of global health researchers
2. Researchers develop a new cell and animal model of inflammatory breast cancer
3. Researchers uncover a viable way for colorectal cancer patients to overcome drug resistance
4. Researchers Find Gene Mutations That May Be a Key to Autism
5. Researchers find evidence of banned antibiotics in poultry products
6. NJ stroke researchers report advances in spatial neglect research at AAN Conference
7. Autism by the numbers: Yale researchers examine impact of new diagnostic criteria
8. Researchers Map Brain Regions Linked to Intelligence
9. Researchers ID Genes That May Determine Mental Illness
10. Researchers Develop Blood Test for Depression
11. University of Cincinnati researchers win $3.7M grant from US Department of Defense
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:7/22/2017)... Edmonton, AB (PRWEB) , ... July 21, 2017 , ... ... a life insurance brokerage firm servicing Albertans,” says owner and licensed broker Nerissa McNaughton. ... health insurance can be difficult, but it is a very necessary conversation. I make ...
(Date:7/21/2017)... ... , ... "As a doctor of lung medicine managing chest diseases for more ... said an inventor from Center Valley, Pa. "My idea is to improve the device ... the patent-pending PLEURAL SAFE-t-STAT CATHETER KIT to offer an efficient means of draining pleural ...
(Date:7/21/2017)... Augusta, GA (PRWEB) , ... July 21, 2017 , ... ... is teaming up with the Epilepsy Foundation in a community wide charity event with ... region. , Delaney Sunde, a young local woman who lives with epilepsy, recently launched ...
(Date:7/21/2017)... Minnesota (PRWEB) , ... July 21, 2017 , ... ... BWBR recently were selected to renovate and improve the Ramsey County Medical Examiners ... adjacent to Regions Hospital, the $2.5 million project is scheduled to start in ...
(Date:7/21/2017)... ... July 21, 2017 , ... Hospital M&A activity slowed in the second quarter ... hospital acquisitions rose to 23 in the second quarter, up 15% from the 20 ... 20 announced deals in the year-ago second quarter. Only four of the transactions disclosed ...
Breaking Medicine News(10 mins):
(Date:7/5/2017)... Wash. , July 5, 2017   BioLife ... leading developer, manufacturer and marketer of proprietary clinical grade ... cryopreservation freeze media ("BioLife"), today announced that it ... its debt holder and largest shareholder, to modify its ... Pursuant to the modification, WAVI agreed to exchange ...
(Date:6/30/2017)... SAN DIEGO , June 30, 2017  AVACEN Medical (AVACEN) ... Access Journal. The research describes the use of its AVACEN ... by those suffering from fibromyalgia. ... AVACEN Medical ... Fibromyalgia is characterized by chronic widespread pain. It affects approximately 200 to ...
(Date:6/27/2017)... 27, 2017   NuEyes (NuEyes Technologies Inc.) today ... fuel its growth in helping the legally blind live more ... Group), the leading developer of augmented, virtual and mixed reality ... The undisclosed funding amount was provided by strategic partners ... with offices in Abu Dhabi , ...
Breaking Medicine Technology: