Navigation Links
Research finds identifies social needs of young people with cancer
Date:5/9/2013

New Orleans, LA Research conducted by Xiao-Cheng Wu, MD, PhD, Associate Professor and Director of the Louisiana Tumor Registry at the LSU Health Sciences Center New Orleans School of Public Health, and colleagues, reports adolescents and young adults with cancer may be at higher risk for social isolation and that a substantial proportion of them have unmet social needs that could adversely affect their health. The research is published online in the Journal of Adolescent and Young Adult Oncology. More than 500 participants in the Adolescent and Young Adult Health Outcomes and

Patient Experience (AYA HOPE) Study completed a survey 6-14 months after diagnosis that included questions about two social information needs how to talk about their cancer experience with family and friends and meeting other adolescents or young adult cancer patients/survivors. Patients were identified through seven Surveillance, Epidemiology and End Results (SEER) program sites: the states of Iowa and Louisiana; the metropolitan areas of Detroit, Michigan and Seattle/Puget Sound, Washington; and three metropolitan areas in California: Los Angeles County, San Francisco/Oakland, and Sacramento County. The participants were 15 to 39 years old at diagnosis and were diagnosed with cancers prevalent in that age group. The researchers examined such variables as age at diagnosis, gender, race/ethnicity, education, and health insurance status at diagnosis. They looked at clinical factors including treatment (radiation, chemotherapy, and surgery), current general health, overall quality of care, and the number of symptoms experienced in the previous month. Participants were asked about the overall impact of their cancer on specific areas of their lives.

The research team found that social information needs were higher among those who were in their 20s at diagnosis with 25% reporting needing help to talk about their cancer. About 43% of those of Hispanic or "other" race/ethnicity expressed a need to meet peer survivors. Those who were not in a support group, had a high number of symptoms or additional illnesses, as well as low perceived quality of care also needed more help.

"Our findings identify subgroups of adolescents and young adults who are most in need of additional social support and suggest targets for clinical intervention," notes Dr. Wu.

Research has shown that cancer may limit these young patients' ability to form new or maintain relationships at a time in their development when peer bonding is the norm. Even when the patient's support network is strong, current friends may not be able to meet psychosocial needs because they do not understand the problems that come with a cancer diagnosis and treatment, further isolating the patient. Existing resources may be unknown, out of their financial reach, or not relevant to these young people.

Suggested interventions include the development of programs capable of providing support at different phases of the cancer experience, providing services for a diverse age range, overcoming geographic and financial barriers and a lack of cultural diversity in the offerings, as well as increasing awareness and access to peer support groups with other cancer patients and survivors. Improving awareness of and access to online connection through social media, as well as help in learning how to share their experiences with loved ones would also bolster support. The researchers say that developing communication tools specifically for them may help these young patients express their needs and gain emotional support from their family and friends. It is also important to educate health care professionals and others about these resources.

"With limited research in this area, understanding which subgroups of adolescents and young adults with cancer are most in need and what they perceive their greatest needs to be is critically important to tailor interventions and support programs for them," notes Dr. Wu, who leads one of the 18 cancer registries in the United States designated as SEER registries by the National Cancer Institute.


'/>"/>

Contact: Leslie Capo
lcapo@lsuhsc.edu
504-568-4806
Louisiana State University Health Sciences Center
Source:Eurekalert

Related medicine news :

1. UCLA Brain Injury Research Center gets NCAA funding for research on sports concussions
2. NIH awards $20 million over 5 years to train next generation of global health researchers
3. Researchers develop a new cell and animal model of inflammatory breast cancer
4. Researchers uncover a viable way for colorectal cancer patients to overcome drug resistance
5. Sexually abused boys at risk for more unsafe sex: UBC research
6. Researchers Find Gene Mutations That May Be a Key to Autism
7. LSUHSC research finds HPV-related head & neck cancers rising, highest in middle-aged white men
8. Researchers find evidence of banned antibiotics in poultry products
9. Presidential keynote address and new research highlights from the American Society of Pediatric Otolaryngology meeting
10. Scientific session and new research highlights
11. NJ stroke researchers report advances in spatial neglect research at AAN Conference
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/26/2016)... ... June 26, 2016 , ... Many ... been diagnosed with endometriosis. These women need a treatment plan to not only ... approach that can help for preservation of fertility and ultimately achieving a pregnancy. ...
(Date:6/25/2016)... (PRWEB) , ... June 25, 2016 , ... Austin residents ... the American College of Mohs Surgery and to Dr. Russell Peckham for medical and ... highly effective treatment for skin cancer. The selective fellowship in Mohs Micrographic Surgery completed ...
(Date:6/25/2016)... Aliso Viejo, California (PRWEB) , ... June 25, 2016 , ... ... preset to fit their specific project," said Christina Austin - CEO of Pixel Film ... all fully customizable and all within Final Cut Pro X . Simply select ...
(Date:6/25/2016)... ... June 25, 2016 , ... As a lifelong Southern Californian, ... and his M.D from the David Geffen School of Medicine at UCLA. He trained ... Angeles to complete his fellowship in hematology/oncology at the UCLA-Olive View-Cedars Sinai program where ...
(Date:6/25/2016)... ... June 25, 2016 , ... On Friday, June 10, Van Mitchell, ... at Work award to iHire in recognition of their exemplary accomplishments in worksite health ... annual Maryland Workplace Health & Wellness Symposium at the BWI Marriott in Linthicum Heights. ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... , June 24, 2016 ... appointment of Dr. Edward Futcher to ... Director, effective June 23, 2016.Dr. Futcher was also ... and Governance Committees.  As a non-executive member of ... expertise and strategic counsel to VolitionRx in connection ...
(Date:6/23/2016)... Research and Markets has announced the addition of ... report to their offering. ... kidney failure, it replaces the function of kidneys by removing ... thus the treatment helps to keep the patient body,s electrolytes ... Increasing number of ESRD patients & substantial healthcare expenditure ...
(Date:6/23/2016)... ITASCA, Ill. , June 23, 2016  In a startling ... states are failing their residents by lacking a comprehensive, proven plan ... , a definitive ranking of how states are tackling the ... rating to only four states – Kentucky , ... and Vermont . Of the 28 failing states, ...
Breaking Medicine Technology: