Navigation Links
Relatives who decline organ donations face conflict and guilt
Date:1/17/2008

Family members are sometimes unable to carry out their relatives wish to donate organs when they die, because of conflicting feelings between making a gift of life and protecting the body of the deceased, according to research in the latest Journal of Advanced Nursing.

Researchers from the University of Southampton, UK, spoke to 26 people who had decided not to let their relatives bodies be used for organ donations about their views and experiences. The 23 relatives who died ranged from a five-week old baby, who had died of a lung condition, to an 82 year-old man, who died following a stroke.

Family members who spoke to us were recruited using advertisements in 12 local newspapers, four national newspapers and four hospital intensive care units, explains lead researcher Dr Magi Sque from the School of Nursing and Midwifery at the University.

Face-to-face interviews were carried out with eight parents, ten spouses or partners, two sons, five daughters and one sister.

An unexpected finding of the study was how many of the study participants and deceased relatives held pro-donation views.

Despite this, the decision to not donate was still taken, says Dr Sque.

Twelve family members said they were normally positive about organ donation and nine reported that their relative had indicated that they wanted to be an organ donor. Five said they had mixed feelings about organ donation or knew that their deceased relative didnt want to be a donor.

In six cases, both the relative and the person who died shared the same positive view about donation, yet it still didnt take place.

The most commonly reported reason for declining organ donations was because the family member felt the need to protect the body of the deceased. Fifteen participants told the researchers that they didnt want to relinquish guardianship of the body - they wanted to keep it intact and didnt want it to be interfered with.

Some also expressed concern that if organs were donated, and then found to be unsuitable, the whole process would have been unnecessary. Others felt their relative should be left in peace.

Other factors included:

  • Circumstances at the time of death - people needed time to come to terms with the death of their relative, especially if their death was sudden or their body looked normal.

  • Lack of knowledge - some people said they did not have enough information about what organ donation involved.

  • The donation discussion - issues were raised around the timing and sensitivity of discussions between relatives and healthcare professionals.

  • Witnessing the observable ending of life - some people said they needed to be present when their relatives heartbeat stopped. That could not always happen if their relative was a donor.

Many family members who talked to us said they felt guilty and selfish about their decision not to donate, particularly if their relative had said they wanted to be a donor, says Dr Sque. They were also relieved to discover they were not the only ones who had declined donation.

One even said that seeing our newspaper advertisement for the study made her feel less guilty because she realised that she wasnt alone in her decision.

Most countries that support organ donation have high refusal rates and we hope that this study will provide some insight into why people dont allow donations to go ahead.

The researchers conclude that rather than seeing donation as a gift of life many relatives see it as a sacrifice that in allowing the donation to take place they are sacrificing their relatives intact body for an operation that might not benefit anyone.

Describing donation as a gift of life is over-simplistic and does not reflect the depth and complexity of the process, says Dr Sque.

Healthcare professionals need to take these perceptions of gift of life and sacrifice into account when discussing the issue with the families of potential donors. Exploring and understanding their views may help lead to better management of this delicate process and could potentially increase donation rates.


'/>"/>

Contact: Annette Whibley
wizard.media@virgin.net
Blackwell Publishing Ltd.
Source:Eurekalert

Related medicine news :

1. Females avoid incest by causing male relatives to leave home
2. Relatives of Parkinsons Patients at Higher Psychiatric Risk
3. New Alzheimers findings: High stress and genetic risk factor lead to increased memory decline
4. National Survey Shows Employee Fears About Consumer-Driven Health Plans on Decline
5. Patent Expiries of Proscar and Flomax/Harnal Will Cause a Significant Decline in Near-Term Sales of Benign Prostatic Hyperplasia Drugs
6. Segal Survey Predicts Declines in Trends for Fifth Consecutive Year
7. New York Citys infant mortality rate declined in 2006
8. Depression can foreshadow intellectual decline in older people
9. Anti-Cholesterol Drugs Help Prevent Lung Decline
10. Annual report to the nation finds cancer death rate decline doubling
11. Parasites a key to the decline of red colobus monkeys in forest fragments
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/23/2017)... ... February 23, 2017 , ... EBSCO Information ... National Institute for Health and Care Excellence (NICE) framework. The agreement ... Health Service (NHS) to search, order and purchase medical and healthcare-related content through ...
(Date:2/23/2017)... Henderson, Nevada (PRWEB) , ... February 23, 2017 , ... ... Eastern Avenue in Henderson, NV 89052. Dr. Mahon was named a 2017 Top Patient ... Local Doctors is an online directory that recognizes local physicians and dentists who ...
(Date:2/23/2017)... ... 23, 2017 , ... ERT, a global data and technology ... Research, a leading clinical development service provider, has selected ERT’s Trial Oversight suite ... in part to an array of circumstances including the use of multiple data ...
(Date:2/23/2017)... ... February 23, 2017 , ... Healthcare Research & Analytics® (HRA®) ... fight against cancer, has produced a seminal study that asked cancer survivors and ... findings in a webinar, Defining Compassionate Care Through the Voices of Patients and ...
(Date:2/23/2017)... ... ... perfect opportunity for the nation to come together to combine ... bracket – with its favorite fruit – apples! To celebrate ... lovers to join the “Apple Madness” bracket tournament – a ...
Breaking Medicine News(10 mins):
(Date:2/23/2017)... -- Cogentix Medical, Inc. (NASDAQ: CGNT), a medical device company ... the urology market, will release financial results for the ... before the market open on Thursday, March 9, 2017. ... call and webcast to discuss its financial results the ... a.m. Eastern Time (10:00 a.m. Central Time). Darin ...
(Date:2/23/2017)... -- Research and Markets has announced the addition of ... report to their offering. ... The latest research Oesophageal Cancer Drugs Price Analysis ... the global Oesophageal Cancer market. The research answers the ... drugs marketed for Oesophageal Cancer and their clinical attributes? How are ...
(Date:2/23/2017)... According to a new market ... Digital, Analog), MRI (Closed, Open), Ultrasound, CT, Nuclear Imaging ... User (Hospitals, Imaging Centers) - Global Forecast to 2021", ... over the forecast period of 2016 to 2021. The ... 2021, at a CAGR of 6.6% from 2016 to ...
Breaking Medicine Technology: