Navigation Links
Redressing Past Wrongs: Changing the Common Rule to Increase Minority Voices in Research
Date:10/22/2013

Atlanta, Georgia (PRWEB) October 23, 2013

An article to be published in the American Journal of Public Health recommends changing the federal regulations that govern oversight of human subjects research (“the Common Rule”) to address continued underrepresentation of minorities in research studies.

Co-written by Bill Rencher (M.P.H. ’12), health access program director of the consumer advocacy nonprofit Georgia Watch, and Leslie Wolf, Georgia State University professor of law, the article, “Redressing Past Wrongs: Changing the Common Rule to Increase Minority Voices in Research,” is part of a special issue on the Ethics of Human Subjects Research in Minority Populations.

The article responds to the underrepresentation of African-Americans and other minorities in research, an important public health problem because numerous diseases and health conditions, regardless of income, age, or gender, disproportionately affect these populations. Without adequate representation of minority populations in research, these health disparities will likely persist.

There are many reasons for the underrepresentation of minorities in research. Many point to the Tuskegee study in which the U.S. government followed hundreds of poor, rural African-American men with untreated syphilis for 40 years as a cause of mistrust in research.

However, “the history of medical and research abuses dates to slavery,” Rencher says. “African-Americans may be disinclined to participate because of long-standing suspicion with the medical establishment.” They also may lack access to care, which means they are not asked to participate in the first place, and see few minority physicians or researchers.

“We recommend treating minorities as a vulnerable population for regulatory purposes, as is done for children, prisoners and pregnant women,” Wolf says, “to focus the attention of those overseeing the studies. We continue to have problematic studies involving minority populations. Our hope is creating special regulatory provisions will focus attention in ways that eliminate these problematic studies.”

The article also suggests greater community consultation and increasing minority representation on Institutional Review Boards, organizations charged with reviewing research studies, to better provide greater minority input into the research oversight system.

Rencher and Wolf hope more attention to the concerns of communities affected will facilitate research that can find solutions to the health inequities that persist in the United States.

“The changes we’re recommending alone are not going to solve the problem. There need to be other structural changes, such as more minority researchers and physicians. But we hope our article gets the conversation started,” Rencher says.

The collaboration with Wolf on the article resulted from taking her human subject research course, which Rencher, an attorney, took as an elective for his master of public heath degree through Georgia State’s new School of Public Health.

The AJPH call for papers on the Ethics of Human Subjects Research in Minority Populations provided an opportunity for Rencher and Wolf to collaborate and take their recommendations to a larger audience. This was Rencher’s first journal submission.

Online access to the AJPH article is available to the media. Send inquiries to: Kimberly Short at the American Public Health Association, 202-777-2511 or kimberly.short(at)apha(dot)org.

For information about Professor Leslie Wolf, visit: law.gsu.edu/directory/wolf.

Read the full story at http://www.prweb.com/releases/2013/10/prweb11251563.htm.


'/>"/>
Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related medicine news :

1. Brain structure helps guide behavior by anticipating changing demands
2. Birds Songs Reflect Changing Weather Patterns: Study
3. Changing epidemiology of rare disease links sinus irrigation with contaminated tap water, 2 deaths
4. Guidelines developed for extremely premature infants at NCH proven to be life-changing
5. Does changing the price of medicine influence consumers perceived health risk?
6. Changing Poses LLC Brings Balance to Chiropractic Treatment Tables, Complimentary Lavender Spray Cleaner with All Wholesale Orders
7. Panel recommends changing name of common disorder in women
8. Atlanta Opthalmologist Interviewed About LASIK Surgery’s Life-Changing Effects
9. Avoiding Hospital Readmissions Boot Camp and Survive and Thrive in the Changing Health Care Environment - ABQAURP's 36th Annual Health Care Quality Conference
10. Changing shape makes chemotherapy drugs better at targeting cancer cells
11. New data show countries around the world grappling with changing health challenges
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:4/24/2017)... ... 24, 2017 , ... Emmanuel College is introducing enhancements to its ... Beginning in the fall of 2017, Emmanuel’s program will allow registered nurses (RN)s to ... months and for as little as $14,528. These changes will enable nurses to complete ...
(Date:4/24/2017)... ... ... The Santana Telehealth Project was honored with the 2017 ATA Humanitarian Award. ... annual conference, on April 23 in Orlando, FL. , “I am proud that ATA ... the poor and underserved in other parts of the world,” said Jonathan Linkous, CEO ...
(Date:4/24/2017)... CO (PRWEB) , ... April 24, 2017 , ... ... American Educational Research Association’s Outstanding Public Communication of Education Research Award. The award ... public, including education communities. It recognizes a scholar who has demonstrated the capacity ...
(Date:4/24/2017)... ... 2017 , ... The California Dental Association Foundation’s two-day volunteer dental clinic, ... during the April 22-23 event at the San Mateo Event Center. , In ... care, CDA Cares educates the public and policymakers about the importance of good oral ...
(Date:4/24/2017)... Houston (PRWEB) , ... April 24, 2017 , ... The ... an innovative technology that allows anyone, anywhere to track their cognitive health, and share ... to check their own brain health on the museum's website. , BrainCheck founder, Dr. ...
Breaking Medicine News(10 mins):
(Date:4/20/2017)... --  ZappRx, Inc ., a digital health company focused on ... it closed $25 million in Series B funding led by ... Seattle that is part of a ... B round included participation from SR One , who ... (formerly Google Ventures). As part of the financing, ...
(Date:4/20/2017)... 20, 2017 Research and Markets has ... Market Share, Application Analysis, Regional Outlook, Growth Trends, Key Players, ... their offering. ... pharmacogenomics market was valued at US$ 7,167.6 Mn in 2015, ... expanding at a CAGR of 5.6% from 2016 to 2024. ...
(Date:4/20/2017)... , April 20, 2017 NeuroVive Pharmaceutical ... today announced positive preclinical results demonstrating anti-fibrotic ... for non-alcoholic steatohepatitis (NASH), in an additional ... NV556 has previously shown similar anti-fibrotic ... Today, NeuroVive,s scientists present novel data demonstrating ...
Breaking Medicine Technology: