Navigation Links
Recommendations issued on controversial 'Ashley' procedure for disabled children
Date:11/30/2010

(Garrison, NY) Should parents be able to use medical means to restrict the growth of profoundly disabled children to make them easier to care for at home? A working group convened to discuss the ethical and policy considerations of "growth attenuation" proposes some guidelines in an article in the Hastings Center Report. Personal essays including those of parents whose children cannot walk or speak -- accompany the article

Growth attenuation is the use of estrogen supplements to restrict a child's growth. Debate has raged since 2006, when the first case of the procedure came to light involving Ashley, a 6-year-old girl with profound developmental disabilities who underwent growth attenuation in Seattle Children's Hospital at the request of her parents.

The justification was that growth attenuation would enable Ashley's parents to more easily move her, dress her, and involve her in family gatherings. But the intervention drew strong criticisms, particularly from disability rights and family support groups, who compared it to involuntary sterilization and other horrific treatments inflicted on disabled people throughout history, ostensibly for both individual and social benefit.

The Seattle Growth Attenuation and Ethics Working Group consisted of 20 people, including Erik Parens, senior research scholar at The Hastings Center, as well as pediatricians, lawyers, and philosophers with diverse perspectives and experiences on disability issues. A few were directly involved in the Ashley case, and nearly half either have severely disabled family members or are severely disabled themselves.

The group could not reach consensus, but it did reach a compromise: "growth attenuation can be an ethically acceptable decision because the benefits and risks are similar to those associated with other decisions that parents make for their profoundly disabled children and about which reasonable people disagree."

The group stressed the importance of having safeguards in place, such as eligibility criteria, a thorough decision-making process, and the involvement of ethics consultants or committees. Growth attenuation should be considered only for children who are nonambulatory and have persistent, profound developmental disabilities about 4,000 such children are born each year in the United States. The decision-making process should begin with a competent evaluation of the child's condition by general pediatricians and various specialists, who can also assess the prospects for improvement.

In addition, clinicians should give parents information about the anticipated benefits and risks to the child, and about alternative options for including the child in family activities. As part of the information-gathering process, the group agreed "that parents should be given the opportunity to talk with other parents of profoundly disabled children in order to dispel any myths or assumptions about what life with a maturing child with profound developmental disabilities would be like."


'/>"/>

Contact: Michael Turton
turtonm@thehastingscenter.org
845-424-4040 x242
The Hastings Center
Source:Eurekalert

Related medicine news :

1. AGA offers new recommendations for CRC surveillance for certain patients with IBD
2. ACR, SBI: Avon Survey Reveals Potentially Deadly Effects of USPSTF Mammography Recommendations
3. Critical Recommendations Unveiled to Respond to National Public Health Crisis: Deep-Vein Thrombosis and Pulmonary Embolism
4. Critical recommendations unveiled: Deep-vein thrombosis and pulmonary embolism
5. Critical Recommendations Unveiled to Respond to National Public Health Crisis: Deep-Vein Thrombosis and Pulmonary Embolism
6. SIUE Pain Summit Recommendations Announced Today
7. G8 to receive recommendations on women and childrens health
8. ACR task force makes recommendations for improving relationships between radiologists and hospitals
9. Aspirin recommendations changed for many younger diabetic patients
10. Study finds poor compliance with cirrhosis surveillance recommendations
11. New recommendations issued for use of cetuximab in colon cancer therapy
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/5/2016)... Diego, CA (PRWEB) , ... December 05, 2016 , ... ... seen and heard the dangers and downsides of patients who do not do their ... The field of cosmetic dermatology is in the midst of a renaissance and every ...
(Date:12/5/2016)... ... December 05, 2016 , ... ... Rejuvenation" at the 2016 Anti-Aging & Beauty Awards at The Aesthetic & ... & Anti-aging Medicine European Congress (AMEC) brings together the industry’s leading scientific ...
(Date:12/5/2016)... ... December 05, 2016 , ... A ... Patch® significantly improves the reproducibility and accuracy of placing precordial electrodes with little ... , Over the last 60 years, studies have shown that single electrode misplacement ...
(Date:12/4/2016)... ... 03, 2016 , ... The Lymphoma Research Foundation (LRF) – ... serving the lymphoma community through a comprehensive series of education programs, outreach initiatives ... New York City, with long-time partners The Paul Foundation, on November 10, 2016. ...
(Date:12/4/2016)... , ... December 03, 2016 , ... While James Earl ... serving as host for in a show called "Front Page". One of the forthcoming ... years, breast cancer rates have plummeted in large part due to early detection. Like ...
Breaking Medicine News(10 mins):
(Date:12/5/2016)... India , December 5, 2016 According ... by Treatment modalities (Chondrocyte Transplantation, Growth Factor Technology, Tissue Scaffolds, Cell-free ... published by MarketsandMarkets, the market is projected to reach USD 779.8 ... a CAGR of 13.5% during the forecast period of 2016 to ... ...
(Date:12/5/2016)... Sanovas, Inc., a life science asset holding company ... wholly owned subsidiary, Intubation Science, Inc., and its LightSpeed Intubation ... http://photos.prnewswire.com/prnh/20161202/445251LOGO   ... Sanovas, Inc. ... There are over 40 million Endotracheal Intubations performed annually ...
(Date:12/5/2016)... WOONSOCKET, R.I. , Dec. 5, 2016 /PRNewswire/ ... CVS ) Research Institute and the U.S. ... the Assistant Secretary for Preparedness and Response (ASPR), ... showed that automated pharmacy notifications encourage patients ... a forecasted natural disaster. The study also affirms ...
Breaking Medicine Technology: