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RWJF awards $1.9 million grant to PatientsLikeMe to create open research platform
Date:2/25/2013

more than 1,500 diseases, have created longitudinal records centered around their health outcomes.

Using the platform, researchers will quickly attract PatientsLikeMe members to their studies, track the progress of newly developed measurements, and export data for analysis. Patients will be able to offer their rapid feedback to ensure that measures are relevant to their experience of disease.

In this open-participation research initiative, access to the new platform will be free, and all instruments and items developed on the platform will be made openly available for free, unlimited use and further development with no commercial restrictions. PatientsLikeMe is also contributing the dozens of existing instruments they have developed. Charitable users will receive discounted access to data compiled by PatientsLikeMe for the initiative.

"Measurement is the basis of knowledge. For too long, there have been restrictions placed by copyright and weak and out-of-date tools to measure a patient's experience with disease," says Jamie Heywood, co-founder and chairman of PatientsLikeMe. "Patients, researchers, and clinicians working together to iterate and learn about the holistic journey of each condition and health itself is a critical step toward transforming care and discovery so that they truly serve the patient."

A beta version of the platform will be unveiled in the coming months.


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Contact: Lori Scanlon
lscanlon@patientslikeme.com
617-229-6643
PatientsLikeMe
Source:Eurekalert

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