Navigation Links
Quality-of-life yardstick needed for children with serious urologic conditions, Hopkins study shows
Date:10/26/2007

A small but revealing study from the Johns Hopkins Childrens Center suggests that a widely used tool to measure physical, emotional and psychological functioning and well-being in children may fail to accurately gauge these quality-of-life indicators in the children with some of the most severe bladder conditions, such as spina bifida and bladder exstrophies. Another possibility is that children with such conditions manage to adapt and have a relatively normal quality of life, researchers say. Their findings are being presented at the American Academy of Pediatrics Conference Oct. 26 through Oct. 30 in San Francisco.

Using a standard questionnaire, researchers surveyed 50 children between the ages of 11 and 17 with bladder abnormalities that can cause incontinence, among other distressing effects. Surprisingly, researchers found no real difference in quality-of-life reports between children with such chronic conditions and children without them.

Our findings suggest that either our tool is not sensitive enough to measure well-being and functioning in children with urological conditions, or that these children somehow adapt to their disability, says lead investigator Jennifer Dodson, M.D., a pediatric urologist at Hopkins.

Even more surprisingly, children with chronic urological conditions scored higher than healthy children in certain areas such as risk-taking, an exciting finding that may indicate that such children, in fact, do better in some aspects of daily life, researchers say.

It is true that some children learn to cope and live with their disability, yet we are still concerned that we may be lacking a precise-enough radar to detect those who do not adapt and continue to suffer, Dodson says.

Fine-tuning existing quality-of-life screens will allow researchers to:

  • Design better ways for children to cope with their disability.
  • Compare the efficacy of treatments by measuring before and after quality-of-life reports.


'/>"/>

Contact: Katerina Pesheva
Epeshev1@jhmi.edu
410-926-6780
Johns Hopkins Medical Institutions
Source:Eurekalert

Related medicine news :

1. New Music Project Promotes Quality-of-Life After Cancer
2. Temptation Yardstick: Out of sight - Out of mind - Out of mouth!
3. Motivation Yardstick: Rewards or Punishment? Discover the Superior Performance Trigger
4. New Born Breast Fed Babies Will Serve As Growth Yardstick
5. Doctors needed urgently in Gujarat
6. Aggressive blood pressure treatment needed
7. Radiation Not Needed for Childhood Cancers
8. Surgery not needed for Osteoarthritis
9. Gene Decides How Much Exercise In Needed For The Elderly People
10. Early Awareness About Weight Management Needed To Tackle Lifelong Obesity
11. vitamin D needed in elderly for bone development
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:4/29/2016)... FL (PRWEB) , ... April 30, 2016 , ... ... and engineer of patented products, announces the Pick Up Springboard, an automotive invention ... and Light Truck Manufacturing industry is worth $162 billion," says Scott Cooper, CEO ...
(Date:4/29/2016)... ... April 29, 2016 , ... Shamangelic Healing, Sedona Arizona's ... brand Alpha BRAIN and New Mood Daily-Stress Formula for brain optimization and wellness ... to the store is just one more way Shamangelic Healing supports people’s quest ...
(Date:4/29/2016)... Sterling, VA (PRWEB) , ... April 29, 2016 ... ... Americans with student loans more flexibility in repaying their loans, more information about ... at a time when total outstanding student loan debt, including federal and private ...
(Date:4/29/2016)... ... April 29, 2016 , ... ... won the $30,000 Perlman Grand Prize of the 2016 Wharton Business Plan ... the Michelson People’s Choice Award, and the Committee Award for Most ‘Wow Factor,’ ...
(Date:4/29/2016)... ... April 29, 2016 , ... Dr. Robert Mondavi, one of the dentists ... dentistry is a fast-growing field as more patients are discovering the many different ways ... about the options currently available to them and which ones might work for their ...
Breaking Medicine News(10 mins):
(Date:4/29/2016)... , April 29, 2016 ... glyco-biology expertise, today announces the appointment of Dr. ... Dr. Zurlo is an oncologist with many years clinical ... and biotechnology industries. His last role was at Mologen ... of the Executive Board. Previously Dr. Zurlo held various ...
(Date:4/28/2016)... Calif. , April 28, 2016  Marking ... widely accessible breast and ovarian cancer risk test, ... panel analyzing 30 genes that highly impact the ... women. Available today, the Color Test analyzes hereditary ... prostate, stomach, and uterine cancers. The Color Test ...
(Date:4/28/2016)... 2016 Dr. Vivek Ahuja , ... Ste phen Schmidt ... provider of cloud-based software solutions for life sciences, today announced key ... a wealth of insight to a growing business.  This will bolster ... George Phillips joined ArisGlobal in the position of Vice ...
Breaking Medicine Technology: