Navigation Links
Pulmonary Fibrosis Patients Meet With Top Lung Doctors at Beth Israel Deaconess Medical Center
Date:4/30/2008

Idiopathic pulmonary fibrosis (IPF) patients learn from specialists, seek answers about incurable disease

BOSTON, April 30 /PRNewswire-USNewswire/ -- The following announcement was released by The Coalition for Pulmonary Fibrosis:

WHAT: "Living with IPF" Free Educational Seminar for Patients and Their Families

Beth Israel Deaconess Medical Center (BIDMC) in partnership with The Coalition for Pulmonary Fibrosis (CPF), is hosting a free seminar for patients and families living with idiopathic pulmonary fibrosis (IPF), a fatal disease that affects 128,000 Americans and claims as many lives each year as breast cancer (40,000). Incidence and prevalence have grown more than 150 percent in just five years.

The seminar will address:

-- IPF diagnostic strategies

-- current standards of care and research

-- lung transplantation

-- oxygen management

-- pulmonary rehabilitation

-- life management issues

-- resources and support services

When:

Saturday, May 3, 2008

11:00 a.m. - 12 noon Registration and Lunch

12:00 noon - 4:20 p.m. Seminar

Complimentary lunch included

Where:

BIDMC West Campus Kennedy Building Auditorium

One Autumn Street (corner of Longwood Avenue and the Riverway)

Parking is available at the Pilgrim Road Garage on the West Campus for $10. Entrance is located off Crossover Street, which can be reached by either Pilgrim Road or Autumn Street.

**DO NOT use the garage adjacent to Bruegger's Bagel off Longwood Avenue.

WHO:

An interview opportunity with IPF experts and patients who know what it's like living with this disease, including:

-- IPF patients who live in the Boston area

-- The seminar will feature nationally recognized experts in the treatment

and study of IPF, including Joe Zibrak, MD, Peter LaCamera, MD, David

Roberts, MD, and Sidhu Gangadharan, all from BIDMC and Hilary Goldberg,

MD of Brigham and Women's Hospital

BACKGROUND:

IPF is a progressive and often fatal lung disease characterized by scarring of the lung tissue, eventually robbing patients of their ability to breathe. About 40,000 people will die from IPF this year, the same number as from breast cancer. An estimated 128,000 people in the United States have IPF, and 48,000 new cases are diagnosed each year. There is currently no FDA-approved treatment for IPF, no cure, and two-thirds of patients die within five years of diagnosis.

A recent study conducted by the Coalition for Pulmonary Fibrosis* found IPF awareness is alarmingly low -- less than one-third of Americans polled had heard of IPF, while 88 percent were aware of cystic fibrosis, and 85 percent knew of ALS, or Lou Gehrig's Disease. IPF is several times more common than cystic fibrosis and ALS, yet it receives a fraction of the research funding.

* Respiratory Medicine: Volume 101, Issue 6, June 2007, Pages 1350-1354 Patient experiences with pulmonary fibrosis Collard, Tino, Noble, Shreve, Michaels, Carlson, Schwarz. (http://www.coalitionforpf.org/ofs/pdf/BRQRespiratoryMedicinePaper.pdf)

The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for pulmonary fibrosis, while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease. The CPF's nonprofit partners include many of the most respected medical centers and healthcare organizations in the U.S. For more information, visit http://www.coalitionforpf.org.

Beth Israel Deaconess Medical Center is a patient care, teaching and research affiliate of Harvard Medical School, and consistently ranks among the top four in National Institutes of Health funding among independent hospitals nationwide. BIDMC is clinically affiliated with the Joslin Diabetes Center and is a research partner of Dana-Farber/Harvard Cancer Center. BIDMC is the official hospital of the Boston Red Sox. For more information, visit http://www.bidmc.harvard.edu.


'/>"/>
SOURCE Coalition for Pulmonary Fibrosis
Copyright©2008 PR Newswire.
All rights reserved

Related medicine news :

1. NYC-area 1st: Morgan Stanley Childrens Hospital performs transcatheter pulmonary valve replacement
2. Coalition for Pulmonary Fibrosis Launches Aggressive Ad Campaign Directed at United States Congress
3. Nuclear medicine approach can be first choice for excluding pulmonary embolism in young women
4. Resolution Recognizing Pulmonary Fibrosis Challenges Overwhelmingly Passes House
5. Deep Breeze Ltd. Launches Unique Non-Invasive, Radiation-Free Pulmonary Imaging System in the U.S.
6. Coalition for Pulmonary Fibrosis Fundraising Events Raise $280,000 for IPF
7. Triumph-1 Trial of Viveta in Pulmonary Arterial Hypertension Meets Primary Endpoint
8. A new method allows for the early diagnosis of pulmonary hypertension
9. Nektars Leading PEGylation and Pulmonary Technology Platforms Featured at R&D Day in New York
10. Free Program Dec. 1 to Help Patients With Debilitating Pulmonary Disorder Alpha-1
11. Evel Knievel Lost to Pulmonary Fibrosis; Disease Claims as Many Lives as Breast Cancer Each Year
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... ... October 13, 2017 , ... Ellevate Network, the leading network for professional women, ... towards gender equality at their inaugural Summit in New York City in June. The ... social audience of over 3 million. To watch the Mobilize Women video, click ...
(Date:10/13/2017)... ... October 13, 2017 , ... Coveros, a leader ... been awarded a contract by the Center for Medicare and Medicaid Services (CMS). ... the enterprise use of Agile methodologies in a consistent and high value manner ...
(Date:10/12/2017)... Francisco, CA (PRWEB) , ... October 12, 2017 ... ... Dr. Cheng, are now treating sleep apnea using cutting-edge Oventus O2Vent ... apnea, a serious sleep disorder characterized by frequent cessation in breathing. Oral appliances ...
(Date:10/12/2017)... ... October 12, 2017 , ... The American College of Medical Informatics ... PhD, FACMI, during the Opening Session of AMIA’s Annual Symposium in Washington, D.C. AMIA’s ... of Morris F. Collen, a pioneer in the field of medical informatics, this prestigious ...
(Date:10/12/2017)... ... October 12, 2017 , ... HMP , a leader in healthcare events ... Magazine Eddie Digital Award for ‘Best B-to-B Healthcare Website.’ Winners were announced during the ... The annual award competition recognizes editorial and design excellence across a range of sectors. ...
Breaking Medicine News(10 mins):
(Date:10/7/2017)... Texas , Oct. 6, 2017   Provista, ... with more than $100 billion in purchasing power, today ... news and information. The Newsroom is the ... and industry trends, infographics, expert bios, news releases, slideshows ... having access to a wealth of resources at their ...
(Date:10/4/2017)... the Centers for Disease Control and Prevention (CDC), influenza vaccination should ... helping communities across Massachusetts , Connecticut ... shots through the end of the month. *Some exclusions apply ... ... is by the end of October, according to the Centers for Disease ...
(Date:10/2/2017)... , Oct. 2, 2017  Eli Lilly and Company ... results for the third quarter of 2017 on Tuesday, ... call on that day with the investment community and ... The conference call will begin at 9 a.m. ... access a live webcast of the conference call through ...
Breaking Medicine Technology: