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Pulmonary Fibrosis Contributes to Beloved Civil Rights Writer and Folk Singer Odetta's Death
Date:12/4/2008

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Odetta's manager, Doug Yeager, told the CPF she was diagnosed with PF two years ago but refused to let the grim prognosis get her down. Most patients live less than three years and few are able to continue a normal life because of the extremely life limiting breathlessness and related exhaustion.

Odetta used supplemental oxygen for the two years she suffered, but somehow had the strength to perform more than 60 concerts after her diagnosis around the world - all of her performances except for one were completed without her having to use an oxygen tank, Yeager said.

"She wouldn't use her oxygen during her concerts. Somehow, she'd go out and sing for 90 minutes without it," Yeager said. The only concert she performed with supplemental oxygen was one in Denver, Colorado, a city that sits at 5,280 feet of elevation, he said.

There is no FDA approved treatment for PF, no known cause and no cure. Odetta is one of 40,000 people who will die this year from the disease. The CPF has counseled thousands of patients and family members who've faced pulmonary fibrosis. To learn more, please visit: www.coalitionforpf.org.

Odetta's last concert performance was October 26th of this year, according to Yeager. She also performed a concert October 6th, in front of 100,000 people at San Francisco's Golden Gate Park.

About Pulmonary Fibrosis (PF)

PF is a lung disorder characterized by a progressive scarring - known as fibrosis - and deterioration of the lungs, which slowly robs its victims of their ability to breathe. Approximately 128,000 Americans suffer from IPF, and there is currently no known cause or cure. An estimated 48,000 new cases are diagnosed each year. IPF is difficult to diagnose and an estimated two-thirds of patients die within five years of diagno
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SOURCE Coalition for Pulmonary Fibrosis
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