Navigation Links
Pogopalooza Athlete Set to Break World Record and Raise Awareness for Rare Disease
Date:7/25/2013

heard of it. But I realized this was no ordinary illness.”

Scleroderma is a Greek word that translates to “hard skin,” but the disease is much more than that, often affecting internal organs with life-threatening consequences. Four out of five patients are female, most with onset between the ages of 20 and 50. However, the disease also affects men and children across all ages and ethnic boundaries.

Scleroderma is characterized by scarring caused by excessive fibrosis in the body’s connective tissue, leading to sometimes crippling vascular damage. Depending on the subtype of illness, scleroderma can cause severe damage to the lungs or kidneys. In most patients, the gastrointestinal tract is affected and it can impact the ability to consume solid food. Peripheral vascular damage due to scleroderma is nearly universal and can result in loss of fingers, toes and, sometimes, entire limbs. Like many other autoimmune diseases, scleroderma is chronic, not contagious or directly hereditary and dominating fatigue is common. There is currently no cure; scientists are working to find out how the disease begins, how it progresses and what can be done to slow, stop or reverse the crippling disease.

“I’ve seen the suffering caused by scleroderma and it, like so many other diseases, needs more attention,” he says. “I’m excited to introduce people to scleroderma and the work of the SRF (Scleroderma Research Foundation).”

Roumeliotis recently joined Cure Crew, a volunteer fundraising program offered by the SRF that provides families and individuals with the tools to turn passions and unique talents into fundraising and awareness success to help scleroderma patients.

The SRF was founded in 1987 by patient Sharon Monsky who lost her battle to the disease in 2002. It has since become America’s leading nonprofit investor in scleroderma research, raising more than $32 million to
'/>"/>

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Page: 1 2 3

Related medicine news :

1. Overuse Injuries Common Among Female College Athletes
2. Football helmet sensors help researchers demystify concussion in young athletes
3. Study Pinpoints New Abnormality in Athletes Heart
4. Heart Test Spots Sudden Death Risk in Young Athletes
5. Female and younger athletes take longer to overcome concussions
6. Athletes Really Do Play Through the Pain
7. Dartmouth researchers investigate the cognitive effects of athlete head impacts
8. Females, Young Athletes Take Longer to Get Over Concussions
9. 2 new studies show connection between sleepiness and pro-athlete careers
10. Former Athlete Credits Sports for Surviving Horrible Car Accident and Lengthy Coma
11. Sleepy Pro Athletes May Have Shorter Careers
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/1/2014)... 01, 2014 Lifeinsurance-policy.com has released ... best life insurance prices for smokers. , Smoking will ... premiums. Comparing quotes is the best method to find ... for customers who need coverage. , Whole life ... of the policy. Since the coverage is permanent, the ...
(Date:10/1/2014)... October 01, 2014 Farmington Company ... a redefined mission and visual identity helping brokers, ... partnering with them to create greater benefit communication ... that focuses on empowering customers to better leverage ... The crown jewel of the rebrand is the ...
(Date:10/1/2014)... Maine (PRWEB) October 01, 2014 Between ... disorders in the U.S., according to figures from the ... Related Diseases Association (AARDA), and many of them have ... chance of having undiagnosed celiac disease. Gluten Free ... raise awareness of undiagnosed celiac disease by publishing a ...
(Date:10/1/2014)... Toronto, Canada (PRWEB) October 01, 2014 ... hair removal and skin rejuvenating destination of choice, is ... run from October through to December. , “We’re doing ... access as possible to our top skin clinic in ... Clinic. “We do so much at Anti Aging Clinic, ...
(Date:10/1/2014)... Nordic Naturals is kicking off a ... The campaign—“Buy One Bottle. Help Two Heroes.”—will raise ... nonprofit organization that helps rebuild the lives of ... would otherwise face euthanasia. From October through December ... donations of Nordic Naturals omega-3s to veterans and ...
Breaking Medicine News(10 mins):Health News:Affordable Whole Life Insurance Premiums for Smokers! 2Health News:Farmington Company Launches Rebrand and New Positioning 2Health News:Informative New Blog Series Underscores Link Between Celiac Disease and Other Autoimmune Disorders 2Health News:Informative New Blog Series Underscores Link Between Celiac Disease and Other Autoimmune Disorders 3Health News:Anti Aging Clinic, the GTA’s Premier Provider of Anti Aging Treatments, Announces Deal on Units of Botox 2Health News:Nordic Naturals® Inspires Support for Paws for Veterans -- ‘Buy One Bottle. Help Two Heroes.’ Initiative Kicks Off October 1 2
... caused by viral infections. In UK about one in ten ... of cervix, liver, nasal passages, certain types of lymphoma and ... viruses. Stomach cancer is also linked to a bacterial infection. ... disease in combination with genetic and environmental effects. ...
... system, designed to connect up 50 million patients' records, and ... according to reports. // The National Audit Office has been ... that the new NHS system might have thrown patients records ... switch to the new system, a modernization plan for the ...
... New research by scientists from Princeton University says that running ... The reserachers led by Elizabeth Gould at Princeton University // ... to generate new brain cells, which are found in abundance ... reserachers conducted a study on lab rats in order to ...
... Neary, a naturopathic physician and chairman of the physical ... supplements come as prescriptions. ,"People need someone qualified to ... ,The management has become even more complex ... supplements such as calcium for bone health, saw palmetto ...
... scanners instead of the invasive technique for diagnosis, which ... capturing images in just five heartbeats unlike the previous ... of the LightSpeed Volume CT system being launched by ... the next generation scanner, while more hospitals are in ...
... study has found out that mineral water stored in plastic containers ... ,Plastic containers release a deadly toxin named as antimony to the ... is stored, reported the online edition of Daily Mail. ... bottled mineral water in Canada and 48 brands of water in ...
Cached Medicine News:Health News:Be well informed and better advice the key to better living 2Health News:Hospitals In India Opt For High-tech Scanners 2
(Date:10/1/2014)... 1, 2014  CVS Health is thanking its 26,000 ... in changing the way health care is delivered to ... Company,s retail pharmacies, mail service pharmacies and specialty pharmacies ... company name to CVS Health to reflect our broader ... innovations needed to shape the future of health," said ...
(Date:9/30/2014)... LONDON , Sept. 30, 2014 This report ... Million by the following Product Categories: Enteral Feeding Pumps, Nasogastric ... analytics for the US Canada, Japan , ... Latin America , and Rest of World. ... through 2018. Also, a six-year historic analysis is provided for ...
(Date:9/30/2014)... ROCKVILLE, Md. , Sept. 30, 2014 /PRNewswire/ ... natural way to modernize medicine, announced today the ... line of nutraceuticals developed to address men and ... staying healthy and vibrant into old age while ... line includes three condition-specific, whole-food and herb-based formulas, ...
Breaking Medicine Technology:CVS Health Thanking its Pharmacists during American Pharmacists Month for Helping People on Their Path to Better Health 2CVS Health Thanking its Pharmacists during American Pharmacists Month for Helping People on Their Path to Better Health 3Global Enteral Feeding Devices Industry 2Global Enteral Feeding Devices Industry 3Global Enteral Feeding Devices Industry 4Global Enteral Feeding Devices Industry 5Global Enteral Feeding Devices Industry 6Global Enteral Feeding Devices Industry 7Global Enteral Feeding Devices Industry 8Global Enteral Feeding Devices Industry 9Global Enteral Feeding Devices Industry 10Global Enteral Feeding Devices Industry 11Global Enteral Feeding Devices Industry 12Global Enteral Feeding Devices Industry 13Global Enteral Feeding Devices Industry 14Global Enteral Feeding Devices Industry 15Global Enteral Feeding Devices Industry 16Global Enteral Feeding Devices Industry 17Global Enteral Feeding Devices Industry 18Global Enteral Feeding Devices Industry 19
... SAN DIEGO , May 3 The Wireless-Life ... and policy makers to drive improved healthcare through advances in wireless technologies, ... WLSA,s mission. , , , ... http://www.newscom.com/cgi-bin/prnh/20100428/LA95139LOGO ) , , , ...
... 3 Simmons Browder Gianaris Angelides & ... the resolution of their client Synergetics USA, Inc.,s (Nasdaq: ... Alcon, Inc.  Synergetics announced on April 27, 2010 , ... and a Supply Agreement with Alcon, pursuant to which all ...
Cached Medicine Technology:Wireless-Life Sciences Alliance (WLSA) Applauds Partner Organizations for Supporting Goal of Improving Healthcare Via Wireless Technologies 2Wireless-Life Sciences Alliance (WLSA) Applauds Partner Organizations for Supporting Goal of Improving Healthcare Via Wireless Technologies 3Simmons Firm Announces Settlement of Contingent Fee Antitrust Lawsuit 2Simmons Firm Announces Settlement of Contingent Fee Antitrust Lawsuit 3
... a 28 amino-acid lipophilic peptide with a ... serine residue three, that is primarily expressed ... the mucosa of the fundus of the ... to those of leptin. Ghrelin stimulates food ...
... The Medtronic SelectSecure Lead System (Model 3830) ... Its unique, lumenless design allows for flexibility ... without sacrificing insulation thickness. The SelectSecure lead ... positioning of the lead in select locations ...
... Human sex hormone-binding globulin (SHBG) is ... steroids with relatively high specificity and low ... bound to SHBG) and, to a much ... C18 and C19 steroid structures and regulates ...
... is the glucuronide conjugate of 3alpha-androstanediol, ... [1,2]. 3alpha-diol G has strong androgenic ... bioactivity of testosterone [2]. Serum 3alpha-diol ... reduction of DHT, and in addition, ...
Medicine Products: