Navigation Links
Physicians mending broken hearts
Date:3/29/2009

Pediatric surgeons are able to repair complex heart defects with a survival rate of greater than 90 percent, but that doesn't necessarily mean a happy ending for these children and teens. Some may have a great quality of life and others, with the same condition, may not.

A study conducted at seven pediatric medical centers throughout the United States shows that several categories of patients with heart disease, including African-Americans and lower-income families, have a lower quality of life.

"Advanced treatments often result in unintended complications, particularly when combined with the hemodynamic impact of the heart defect itself," says Bradley Marino, MD, a cardiologist from the Heart Institute at Cincinnati Children's Hospital Medical Center and the study's lead author. "The child's neurodevelopmental, psychosocial, and physical functioning are all impacted by these complications, and they may adversely affect the child's quality of life. If we know the predictors, we can put interventions in place to change the outcome for them."

Dr. Marino presents his findings today at the annual meeting of the American College of Cardiology in Orlando, FL.

To measure how much of an effect these factors have on children, Dr. Marino and his team developed the Pediatric Cardiac Quality of Life Inventory (PCQLI), a self-administered questionnaire that quantitatively assesses health-related quality of life in children and adolescents age 8-18 years, and their parents. The questions are designed so that anyone with a third grade reading level can understand and answer them in fewer than 10 minutes.

Dr. Marino and his colleagues recruited 759 pairs of patients and their parents. The patients were between the ages of 8 and 18 and had at least one prior cardiac surgical procedure. The researchers evaluated the effect of income, socioeconomic status, recent hospitalization, Fontan palliation (a surgical approach to treating hearts with one ventricle), and a greater number of doctor visits in the past year.

Modifiable factors associated with lower quality of life scores among patients after surgery included recent hospitalizations and greater number of doctor visits. Non-modifiable factors included Fontan palliation and both lower income and socioeconomic status.

In children between the ages of 8 and 12, lower scores were associated with African American race, genetic abnormality, non-thoracic surgery and sternotomy the usual, vertical incision in the sternum used for heart surgery. Mental health problems in parents of children and teens of all ages in the study predicted lower quality of life scores.

Dr. Marino defines quality of life as "the impact of the specific illness or medical therapy on the child's ability to function in situational contexts, and to draw personal satisfaction from a physical, psychological, and social functioning perspective."

For a young person, the impact could range from not being able to play basketball with friends to being too embarrassed about a surgical scar to wear a bathing suit. Regardless of the factor or complication, it can influence a child's self-image, development, social interactions all of which make up quality of life.

"Our research will ultimately allow us to use the PCQLI as a screening tool to determine which patients are at risk for problems that affect their quality of life," says Dr. Marino. "We are trying to figure out how to help children at the point of care. We want to carry out research that's going to change how they carry on in their lives and allow them to grow and develop to their maximum potential."


'/>"/>

Contact: Jim Feuer
jim.feuer@cchmc.org
513-520-2967
Cincinnati Children's Hospital Medical Center
Source:Eurekalert

Related medicine news :

1. Catastrophic Head and Neck Injuries Among Focus for NFL Team Physicians and Clinical Staff at Fourth Annual Injuries in Football Conference
2. TMA Physicians and Legislators: Patients Have a Right to Know
3. Physicians Practice and Rose Medical Center Partner to Improve Patient Care in the Denver Metro Area
4. Intensive summer program helps physicians build clinical research careers
5. New book chronicles the journeys of women physicians and scientists to fighting cancer
6. Sound Inpatient Physicians Report on New Clinical Processes to Reduce Healthcare Costs and Enhance Care
7. In Texas, Favorable Regulations for Physicians May Backfire in Light of Market Downturn
8. New Book Chronicles the Journeys of Women Physicians and Scientists to the Front Lines of Fighting Cancer
9. Physicians Favor Patient Involvement in Decision Making, But Cite Barriers Such as Time and Money
10. U.S. Rep. Connolly, Inova Health System Physicians, Public Health Groups Call for Congressional Action to Protect Kids from Tobacco
11. Aspirin recommendation underscores need for physicians and patients to discuss benefits and risk
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... Milwaukee, WI (PRWEB) , ... October 13, 2017 , ... ... movement in medicine known as “patient engagement.” The patient is doing more than filling ... research partners. , “There is an increasing emphasis in health care and research ...
(Date:10/13/2017)... ... October 13, 2017 , ... The International Association of ... of excellence for the field of eating disorders, announces the opening of early ... in Orlando, Florida at the Omni Resort at ChampionsGate. , The ...
(Date:10/13/2017)... ... , ... Lori R. Somekh, founder of the Law Office of Somekh ... law and special needs planning attorneys. “Membership in ElderCounsel helps our office remain up ... network with elder law attorneys nationwide,” said Somekh. , ElderCounsel was ...
(Date:10/13/2017)... ... October 13, 2017 , ... The Visiting Nurse Association (VNA) of Somerset ... of specialty vendors and unique items from across the nation, this holiday-themed event will ... services offered by the VNA. The boutique will be open Saturday, November 4 ...
(Date:10/13/2017)... (PRWEB) , ... October 13, 2017 , ... Yisrayl Hawkins, ... week that explains one of the most popular and least understood books in the ... cryptic and puzzling descriptions that have baffled scholars for centuries. Many have tossed it ...
Breaking Medicine News(10 mins):
(Date:9/25/2017)... 25, 2017   Montrium , an industry ... today—from the IQPC Trial Master Files & Inspection ... that EastHORN Clinical Services has selected eTMF ... TMF management. EastHORN, a leading European contract research ... increase transparency to enable greater collaboration with sponsors, ...
(Date:9/19/2017)... , Sept. 19, 2017 HistoSonics, Inc., a venture-backed medical device company developing ... of targeted tissues, announced three leadership team developments today:   ... ... ... Veteran medical device executive Josh Stopek ...
(Date:9/12/2017)... Sept. 12, 2017   EcoVadis , the leading platform for environmental, ... first annual edition of its Global CSR Risk and Performance Index. The ... EcoVadis, based on Scorecard Ratings that analyzed nearly 800,000 data points across ... ... ...
Breaking Medicine Technology: