Navigation Links
Penn's online survivorship care plans empower cancer survivors, caregivers
Date:4/19/2009

(DENVER) An online tool that provides cancer survivors and their family members with an easy-to-follow roadmap for managing their health as they finish treatment and transition to life as a survivor got high marks from users, according to new University of Pennsylvania School of Medicine research which will be presented this weekend at the American Association for Cancer Research (AACR) 100th Annual Meeting 2009 in Denver. Ninety-seven percent of people who used OncoLife, the first online cancer survivorship care plan tool developed by physicians and nurses from Penn's Abramson Cancer Center rated their experience with the tool as "good" to "excellent," and 84 percent said they planned to share their plan with their health care team.

The findings reveal that OncoLife can serve as one way to fulfill the Institute of Medicine's recommendation that the 12 million cancer survivors across the United States use plans like these to become knowledgeable about the potential late effects and learn about the specialized follow-up care they'll need following their disease.

"This tool empowers patients to open important dialogue with their healthcare providers to better understand the effects of their cancer treatment," says James Metz, MD, an associate professor of Radiation Oncology who serves as editor-in-chief of OncoLink and the department's Chief of Clinical Operations. "Because this tool is Internet based, cancer survivors and healthcare providers now have an easy and reliable way to obtain information regarding survivorship care issues instantaneously."

Penn researchers surveyed 3,343 individuals who created OncoLife care plans during an 18-month period in 2007 and 2008. In addition to cancer survivors, who made up 62 percent of the OncoLife users, health care providers and family or friends of survivors also created care plans on the site. In a survey of the survivors who made OncoLife plans -- whose diagnoses included more than 34 different cac c ncers 97 percent reported finding the information on the site to be helpful.

The researchers say the high number of users who said they planned to share their care plans with their health care providers is encouraging. Since many patients rely on their primary care physicians to deliver this multidisciplinary "survivorship care" after they're released from treatment with oncologists, communication is essential to helping patients get the care they need. Previous Penn research has shown that breast cancer survivors the nation's largest group of cancer survivors give low marks to their primary care doctors' knowledge of late effects of cancer therapies and ways to manage symptoms related to their disease or its treatment. In the new Penn study of OncoLife users, just 13 percent said they had received survivorship information in the past.

OncoLife care plans are available in both English and Spanish through OncoLink (www.oncolink.org), the Internet's first multimedia cancer information resource, which receives 385,000 unique visitors each month. By inputting information about the type of chemotherapy agents patients received, location of radiation therapies and/or types of surgical procedures they had, patients, family members and their doctors or nurses can create an easy-to-understand, personalized survivorship plan. Among topics addressed in the plans are potential late effects of treatments, ways to reduce risk of and monitor for these effects, and recommendations for future cancer screening. The plans also offer guidance on issues like sexuality, fertility, and genetic risk.

"Putting survivorship care plans in the hands of patients allows them to become educated about their risk, have well-informed discussions with their healthcare teams and be advocates for their own care," says OncoLink nurse educator Carolyn Vachani, RN, MSN, AOCN, a member of the research team.


'/>"/>

Contact: Kim Guenther
kim.guenther@uphs.upenn.edu
215-200-2312
University of Pennsylvania School of Medicine
Source:Eurekalert

Related medicine news :

1. Governor Rendell Offers adultBasic Coverage to 35,000 Uninsured Pennsylvanians
2. Health and Business Groups Launch Ad Campaign About Need for Comprehensive Smoke-Free Law in Pennsylvania
3. NNN Healthcare/Office REIT Acquires 2750 Monroe Boulevard in Valley Forge, Pennsylvania
4. Pennsylvania Department of Aging Receives Grant to Improve Alzheimers Support
5. Pennsylvania Needs More Lung Cancer Research
6. Saint Vincent Health System of Erie, Pennsylvania Named One of AARP 2007 Best Employers for Workers Over 50
7. Pennsylvania Game Commission Announces EHD Confirmed in Allegheny and Westmoreland Counties
8. Maryland, Minnesota Go Smoke-free Oct. 1 - Pennsylvania Overdue in Following Suit
9. Pennsylvania Trauma Systems Foundation Accreditation Status for Trauma Centers
10. Health Secretary Urges Pennsylvanians to Get a Flu Shot
11. Governor Rendell Calls for Prompt Action on Prescription for Pennsylvania, Cover All Pennsylvanians Health Care Reforms
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/12/2016)... ... February 12, 2016 , ... According to an article published February ... a significant portion of hernia repairs throughout the United States. Commenting on this article, ... notes that this trend has not only been expected, but it seems to be ...
(Date:2/12/2016)... ... ... The law firm of Morrow, Morrow, Ryan & Bassett is offering scholarships ... is to encourage applicants to pursue a degree in their field of study and ... , “We have available jobs in St. Landry and Evangeline Parishes that can be ...
(Date:2/12/2016)... ... February 12, 2016 , ... ... exclusively to funding innovative lymphoma research and serving the lymphoma community through a ... 250 members of South Florida’s philanthropic community at its 10th anniversary Fashion Luncheon ...
(Date:2/12/2016)... Falls Church, VA (PRWEB) , ... February 12, ... ... in Store?, Feb. 29, 2016 — 1:30 p.m. – 3:00 p.m. EST, ... burner issue in the life cycle of pharmaceutical products, garnering increased attention from ...
(Date:2/12/2016)... ... 12, 2016 , ... As a former television executive, owner Tal Rabinowitz knows ... time to decompress, Rabinowitz found herself drawn to a casual meditation class while working ... her life, implementing a 20-minute-per-day meditation practice with her team. After her tenure at ...
Breaking Medicine News(10 mins):
(Date:2/11/2016)... , Feb. 11, 2016 The primary goal ... future adoption patterns on the usage of liquid biopsy. ... following: - Timeframe of liquid biopsy adoption ... cfDNA and Evs—by organization type - Sample inflow to ... blood, saliva, stool, serum, and so on. - Correlation ...
(Date:2/11/2016)... , Feb. 11, 2016  Walgreens has committed to ... states and Washington, D.C. as part ... that was commended by shareholder advocacy organization As You Sow. ... You Sow. "Many people hold on to unneeded drugs because ... have tragic consequences." --> Conrad MacKerron , ...
(Date:2/11/2016)... MARIETTA, Ga. , Feb. 11, 2016  MiMedx ... medicine company utilizing human amniotic membrane and other birth ... proprietary platforms to develop and market advanced products and ... RBC Capital Markets, 2016 Global Healthcare Conference in ... Petit, Chairman and CEO, Michael J. Senken , ...
Breaking Medicine Technology: