Navigation Links
Pediatric cancer and palliative care: parental preferences compared with health-care professionals
Date:10/17/2011

Parents of children in the palliative stage of cancer favour aggressive chemotherapy over supportive care compared with health care professionals, states an article in CMAJ (Canadian Medical Association Journal) (pre-embargo link only) http://www.cmaj.ca/site/embargo/cmaj110392.pdf.

Cancer is the second most common cause of death for children aged 5 to 14 in North America. When it is unlikely the cancer will be cured, parents and health care professionals must often choose between continuing aggressive treatments or providing supportive care alone to alleviate discomfort.

"The choice between palliative chemotherapy and supportive care alone is one of the most important and difficult decisions for parents of children whose disease cannot be cured," writes Dr. Lillian Sung, Division of Haematology/Oncology, The Hospital for Sick Children (SickKids), Toronto, with coauthors.

The researchers sought to compare preferences between parents and health care professionals in making these decisions. They included 77 parents whose children (under the age of 18) had no reasonable chance of recovering from cancer as well as 128 staff physicians, senior fellows, nurses and social workers who work with pediatric cancer patients.

They found that 55% of parents favoured chemotherapy over supportive care compared with 16% of health care professionals. Health care professionals viewed supportive care more positively than parents did. The researchers suggest that "parents may focus more on hope for their child compared with health care professionals, who are more aware of eventual outcomes given their experiences with many similar children."

"Despite the high importance ranking they assigned to their child's quality of life, parents reported that they would accept chemotherapy even if it reduced both quality of life and survival time," write the authors. "This finding shows the complexity of decision-making."

They conclude that it is important for health care professionals to be aware of differing attitudes to aggressive chemotherapy and to gather and communicate information to parents regarding quality of life and survival during decision-making.

In a related commentary http://www.cmaj.ca/site/embargo/cmaj111557.pdf, Caprice Knapp and Dr. Kelly Komatz, University of Florida, write that "little is known about decision-making preferences surrounding end-of-life care for children" and that this research study adds to the limited information on end-of-life decision-making in pediatric palliative care.

"This study is important because it highlights the incongruity between the preferences of parents and health care workers," state the authors. "However, it may be that this incongruity masks a greater concern: miscommunication or unrealistic expectations."

Sung adds that the findings provide an opportunity "to educate families that chemotherapy and palliative care do not have to be mutually exclusive. We aim to work with families to maintain hope while optimizing the child's quality of life."


'/>"/>

Contact: Kim Barnhardt
kim.barnhardt@cmaj.ca
613-520-7116 x2224
Canadian Medical Association Journal
Source:Eurekalert

Related medicine news :

1. Researchers discover new way to kill pediatric brain tumors
2. MCG to conduct first FDA-approved stem cell trial in pediatric cerebral palsy
3. Pediatricians Want Redesign of Hot Dogs, Candy to Curb Kids Choking
4. NIH grant will create behavioral health registry for pediatric inflammatory bowel disease
5. Sponsors for the 2010 Pediatric Cancer Research Foundation “Reaching for the Cure” Annual Cinco de Mayo Run/Walk Fundraising Event
6. Pediatric Home Service (PHS) Named Quality Respiratory Care Provider
7. The Pediatric Dengue Vaccine Initiative Introduces www.DengueWatch.org - a News hub for Tracking Dengue Fever Epidemics Worldwide
8. Long Island Pediatric Group Announces Policy Changes That Will Help More New Yorkers
9. Pediatric sports injuries: the silent epidemic
10. Americas Pediatrician Dr. Bill Sears Answers Michelle Obamas Call to Action to Help Eradicate Obesity
11. Autism Consortium study in Pediatrics shows CMA finds more genetic abnormalities than current tests
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/23/2017)... ... 2017 , ... Studies show evidence that carotenoids and antioxidants derived either from ... these patients. , But how often do ophthalmologists and optometrists in Sweden recommend the ... of or with early symptoms of AMD? A study published recently in ...
(Date:6/23/2017)... ... 2017 , ... Everybody has their own personal preference when it comes to ... some people don't like it at all. FindaTopDoc took a look at what makes ... can give readers a taste of their deepest, darkest fantasies and has the ability ...
(Date:6/23/2017)... ... June 23, 2017 , ... Georgia State University will ... 20. , The two-day conference is focused on advancing scientific knowledge about the ... lives and eliminating racial breast cancer-related disparities. The conference theme is “Illuminating Actionable ...
(Date:6/23/2017)... ... June 23, 2017 , ... Ross Insurance ... With the Federal Emergency Management Agency’s (FEMA) recent update of flood zones, more ... 2012, the Biggert-Waters Act was enacted to reflect the actual risk in flood ...
(Date:6/23/2017)... ... June 23, 2017 , ... ... planning services to communities in the greater Chicago metropolitan area, is embarking on ... to underprivileged youth in Chicago. , Founded in 1897, Hephzibah Children’s Association is ...
Breaking Medicine News(10 mins):
(Date:6/8/2017)... 2017  Less than a month ago, amateur hackers ... companies, including hospital networks, in over 150 countries. ... the largest online extortion attempts ever recorded. With the ... is imperative that providers understand where the risks lie, ... — and many other very real cyber threats.  ...
(Date:6/7/2017)... 7, 2017  Novavax, Inc., (Nasdaq: NVAX ) ... 2 trials of its RSV F protein recombinant nanoparticle vaccine ... have been published in the journal Vaccine ... in prior scientific conferences). The Company previously announced top ... is developing the RSV F Vaccine with the goal of ...
(Date:6/3/2017)... INDIANAPOLIS , June 3, 2017  Eli ... today announced that results from the Phase 3 ... kinase (CDK)4 & 6 inhibitor, in combination with ... treatment with fulvestrant alone in women with hormone-receptor-positive ... advanced breast cancer who have relapsed or progressed ...
Breaking Medicine Technology: