Navigation Links
Patient advocacy groups turn to open-access publishing to advance research quest
Date:10/24/2011

Washington, D.C. Pat Furlong founded Parent Project Muscular Dystrophy (PPMD) in 1995 to link families, like hers, who had been affected by muscular dystrophy with both resources and hope. Now, Furlong has blazed a new trail in the fight to end the disease. She has spearheaded a partnership between PPMD and the Public Library of Science (PLoS) to launch an open-access publication, PLoS Currents: Muscular Dystrophy, this month. The story of the partnership is told in a new article released today by the Alliance for Taxpayer Access.

PLoS Currents: Muscular Dystrophy is a new forum that will promote the rapid exchange of information, hypotheses and experimental results related to the rare disease. Compared to a traditional journal, the PLoS Currents publication process is compressed.

"The idea to make it very streamlined, quick, and hassle-free," says Mark Patterson, director of publishing for PLoS. "This publication does all the essential jobs of a journal including peer review and archiving but it has the potential to do that very fast and, also, much more cheaply."

For families, the new online journal will give them access to the latest information to help them make the most informed choices in treatment for their children, says Furlong, whose two sons died from Duchenne Muscular Dystrophy as teenagers. The project will also link scientists and, hopefully, lead to new advances. "I think we waste too much time, effort and money not learning from studies that didn't produce positive results," says Furlong. "I think this really will help the community and our goal for Duchenne is to accelerate wherever and whenever we can. We felt PLoS offered significant opportunity to accelerate."

Furlong thinks other patient advocacy groups will likely follow the lead of PPMD and look to online journals to exchange information more quickly.

"Pat was quick to grasp the possibilities that an outlet like PLoS Currents presents to share all kinds of credible research results more quickly than ever," said Heather Joseph, Executive Director of SPARC and Spokesperson for the Alliance. "The ability to give a targeted community of researchers fast access to the combination of articles, data, and even negative results presents important new opportunities to make new connections and speed the pace of discovery."


'/>"/>

Contact: Jennifer McLennan
jennifer@arl.org
202-296-2296
SPARC
Source:Eurekalert

Related medicine news :

1. Congress alert: EUROECHO and Other Imaging Modalities: New patient emphasis
2. Vitamin B-based treatment for corneal disease may offer some patients a permanent solution
3. Rehab helps heart patients live longer -- but they have to show up
4. Biomarker detects graft-versus-host-disease in cancer patients after bone marrow transplant
5. PATH B, a comprehensive support program in Europe for patients with chronic hepatitis B launched
6. NIPPV linked to increased hospital mortality rates in small group of patients
7. Hospital patients suffer in shift shuffle
8. ASE-EAE to issue guidelines for the echocardiographic evaluation of cancer patients
9. Start HIV Drug Treatment Early in Patients With TB: Studies
10. Early HIV treatment dramatically increases survival in patients co-infected with tuberculosis
11. Most breast cancer patients do not have breast reconstruction surgery
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/31/2016)... ... May 31, 2016 , ... Advertising Age ... and statement solutions provider, for the tenth consecutive year as a Top 20 ... Advertising Age, and SourceLink ranked eighteenth in the “U.S. CRM/Direct Marketing Agency” category. ...
(Date:5/31/2016)... , ... May 31, 2016 , ... ... media enterprise focused on patients with cancer, has added Cancer and Careers ... website visitors with more timely content on continuing successful careers while fighting cancer. ...
(Date:5/30/2016)... ... May 30, 2016 , ... As the CDC relaxes ... children and their efforts to keep their households lice free. , According to ... enacting new policies that keep kids in the classroom despite the fact that they ...
(Date:5/30/2016)... Utah (PRWEB) , ... May 30, 2016 , ... ... for small businesses, announced today the publication of an original infographic, " Health ... and health insurance professionals understand how Zane Benefits complies with various federal regulations ...
(Date:5/30/2016)... ... ... Another ER facility operated by First Choice Emergency Room opened yesterday ... is open 24 hours daily. , First Choice Emergency Room hosted a ribbon cutting ... High School band entertained attendees and accepted First Choice Emergency Room’s donation on behalf ...
Breaking Medicine News(10 mins):
(Date:5/25/2016)... and GERMANTOWN, Maryland , May 25, 2016 ... ; Frankfurt Prime Standard: QIA) today announced that the company ... Diagnostics GmbH to develop and commercialize predictive assays in oncology. ... as a marker to predict effectiveness of anthracycline treatment in ... "We are pleased to partner with Therawis, which developed the ...
(Date:5/25/2016)... May 25, 2016  According to Kalorama Information, the ... in 2015.  Though these are challenging times in ... for success for companies that remain optimistic and ... new growth prospects medical device companies spend a ... development (R&D) than do companies in other industries.  ...
(Date:5/25/2016)... 25, 2016 As illustrated by ... this month, the numbers and momentum of cannabis in ... into the billions, more research and development push the ... State of Legal Marijuana Markets Report  from from ArcView ... much of the increase in sector is attributed to ...
Breaking Medicine Technology: