Navigation Links
Patient advocacy groups turn to open-access publishing to advance research quest
Date:10/24/2011

Washington, D.C. Pat Furlong founded Parent Project Muscular Dystrophy (PPMD) in 1995 to link families, like hers, who had been affected by muscular dystrophy with both resources and hope. Now, Furlong has blazed a new trail in the fight to end the disease. She has spearheaded a partnership between PPMD and the Public Library of Science (PLoS) to launch an open-access publication, PLoS Currents: Muscular Dystrophy, this month. The story of the partnership is told in a new article released today by the Alliance for Taxpayer Access.

PLoS Currents: Muscular Dystrophy is a new forum that will promote the rapid exchange of information, hypotheses and experimental results related to the rare disease. Compared to a traditional journal, the PLoS Currents publication process is compressed.

"The idea to make it very streamlined, quick, and hassle-free," says Mark Patterson, director of publishing for PLoS. "This publication does all the essential jobs of a journal including peer review and archiving but it has the potential to do that very fast and, also, much more cheaply."

For families, the new online journal will give them access to the latest information to help them make the most informed choices in treatment for their children, says Furlong, whose two sons died from Duchenne Muscular Dystrophy as teenagers. The project will also link scientists and, hopefully, lead to new advances. "I think we waste too much time, effort and money not learning from studies that didn't produce positive results," says Furlong. "I think this really will help the community and our goal for Duchenne is to accelerate wherever and whenever we can. We felt PLoS offered significant opportunity to accelerate."

Furlong thinks other patient advocacy groups will likely follow the lead of PPMD and look to online journals to exchange information more quickly.

"Pat was quick to grasp the possibilities that an outlet like PLoS Currents presents to share all kinds of credible research results more quickly than ever," said Heather Joseph, Executive Director of SPARC and Spokesperson for the Alliance. "The ability to give a targeted community of researchers fast access to the combination of articles, data, and even negative results presents important new opportunities to make new connections and speed the pace of discovery."


'/>"/>

Contact: Jennifer McLennan
jennifer@arl.org
202-296-2296
SPARC
Source:Eurekalert

Related medicine news :

1. Congress alert: EUROECHO and Other Imaging Modalities: New patient emphasis
2. Vitamin B-based treatment for corneal disease may offer some patients a permanent solution
3. Rehab helps heart patients live longer -- but they have to show up
4. Biomarker detects graft-versus-host-disease in cancer patients after bone marrow transplant
5. PATH B, a comprehensive support program in Europe for patients with chronic hepatitis B launched
6. NIPPV linked to increased hospital mortality rates in small group of patients
7. Hospital patients suffer in shift shuffle
8. ASE-EAE to issue guidelines for the echocardiographic evaluation of cancer patients
9. Start HIV Drug Treatment Early in Patients With TB: Studies
10. Early HIV treatment dramatically increases survival in patients co-infected with tuberculosis
11. Most breast cancer patients do not have breast reconstruction surgery
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... RIDGE, N.J. (PRWEB) , ... October 13, 2017 , ... ... annual Holly Day Market. Featuring a collection of specialty vendors and unique items from ... of personalized and quality-focused health and wellness services offered by the VNA. The ...
(Date:10/13/2017)... VA (PRWEB) , ... October 13, 2017 , ... ... of DevOps and Agile Software Development, has been awarded a contract by the ... Blanket Purchase Agreement (BPA) aims to accelerate the enterprise use of Agile methodologies ...
(Date:10/12/2017)... ... October 12, 2017 , ... Planet Fitness, one of the largest and ... plans to open a flagship location in Covington, LA at 401 N. U.S. Highway ... store next to Office Depot in the Holiday Square shopping center. Its location allows ...
(Date:10/12/2017)... , ... October 12, 2017 , ... ... delivery system that we intend to develop to enable prevention of a major ... to severe hearing loss, especially in pediatric patients. For cisplatin, hearing loss is ...
(Date:10/12/2017)... RAPIDS, Mich. (PRWEB) , ... October 12, 2017 ... ... Wellness, has been named one of Michigan’s 2017 Best and Brightest in Wellness® ... and Brightest in Wellness® awards program on Friday, Oct. 20 from 7:30 a.m. ...
Breaking Medicine News(10 mins):
(Date:9/28/2017)... , Sept. 28, 2017 Cohen Veterans Bioscience ... the use of wearable and home sensors for real-time ... Early Signal Foundation, a nonprofit organization focused on disruptive ... provide an affordable analytical system to record and integrate ... ...
(Date:9/23/2017)... , Sept. 22, 2017 Janssen Biotech, ... complete response letter from the U.S. Food and Drug ... approval of sirukumab for the treatment of moderately to ... indicates additional clinical data are needed to further evaluate ... to severely active RA. ...
(Date:9/18/2017)... KALAMAZOO, Mich. , Sept. 18, 2017 ... , and OptiMed Specialty Pharmacy of Kalamazoo, ... offer a strategic hub service that expedites and streamlines ... personal spirometer, Spiro PD 2.0, and wellness management services.  ... is a medical device used to measure lung function ...
Breaking Medicine Technology: