Navigation Links
Parkinson's Disease Patient's Story Goes Multimedia, Proceeds to Benefit PD Research
Date:4/23/2010

He Volunteered for Experimental Brain Surgery. Now, a Parkinson's Patient Agrees to Donate His Book About His Experience to Further the Search for a Cure and Better Treatments for PD.

(PRWEB) -- “Deep Brain Diary: My Life as a Guy with Parkinson’s Disease and Brain Surgery Volunteer” is Bill Schmalfeldt’s personal story about living with a neurological disease that afflicts over a million Americans.

Written in the style of a diary, Schmalfeldt talks about how he discovered he had the disease at age 45, why he decided to participate in an experimental clinical trial that involved brain surgery, and his recovery and life afterwards. He takes you into the operating room with him, remaining awake for the seven-hour surgery to implant probes deep into his brain to alleviate some of his symptoms. With a wry and sardonic sense of humor and writing style, Schmalfeldt weaves an easy-to-read tale of his personal struggle with the disease, pulling no punches over his frustration over the mixed results of his surgery.

Now, “Deep Brain Diary” is available not only in hardcover, but as a paperback, a PDF download, an Amazon “Kindle” book, and soon, as an iPad book offering.

“This book is written not only for the Parkinson’s disease patient,” Schmalfeldt said, “but for anyone who knows, cares for, or loves someone who has this beast of a disease. I just want folks who are touched by PD to realize that they are not alone. If they’ve been embarrassed by drooling in public, I’ve been there. If they’ve been humiliated by staring onlookers during an episode of dyskinesia (uncontrollable movements caused by medication), I’ve been there. If they’ve found themselves frozen in place while walking, I’ve been there. Parkinson’s affects each patient differently. But the one thing I want people to take away from this book is that Parkinson’s disease is NOT a death sentence. It’s a LIFE sentence.”

Schmalfeldt said that the book was also meant to highlight the importance of clinical trials in the search for cures, as well as new and better treatments for diseases. In 2007, Schmalfeldt volunteered for a clinical trial at Vanderbilt University Medical Center in Nashville to test the safety and tolerabilty of deep brain stimulation in early PD.

“In my clinical trial, we started out with 30 people. Fifteen of us were randomized to the surgical group, 15 were randomized to the control group, meaning they would continue to take their regular medication and then be compared at various intervals with those of us who had the surgery to see if our rates of progression differed,” he said. “The theory this clinical trial is trying to prove is that doing deep brain stimulation (DBS) surgery earlier in the course of PD will be beneficial to patients, and may even slow down or reverse the progression of the disease.”

Schmalfeldt noted that the study is currently seeking the funds to expand to medical centers around the country, enrolling hundreds of new Parkinson’s patients. Schmalfeldt said 100 percent of the author proceeds from sale of his book will be donated to the National Parkinson Foundation as well as the Vanderbilt University Medical Center’s DBS Research Fund.

“Deep Brain Diary” is available as a 249-page hardback at Lulu.com as well as from online booksellers such as Amazon.com, Barnes & Noble.com and Booksamillion.com for $35. The paperback version is available at Amazon, Barnes & Noble and Books-A-Million for $15. A PDF download is available for $5 at Lulu. An Amazon “Kindle” version is available for $5. The book is currently being formatted for Apple’s iPad book store as well.

“Deep Brain Diary” is Schmalfeldt’s first try at non-fiction. His previous works, “…by the people…”, “Undercover Trucker: How I Saved America by Truckin’ Towels for the Taliban,” and “Hunky Dunk,” are available at Amazon, Barnes & Noble and Books-A-Million.

He blogs daily at http://parkinsondiary.com.

###

Read the full story at http://www.prweb.com/releases/2010/04/prweb3913364.htm.


'/>"/>
Source: PRWeb
Copyright©2010 Vocus, Inc.
All rights reserved  

Related medicine news :

1. Novel Parkinson's Treatment Strategy Involves Cell Transplantation
2. Autologous Bone Marrow Stem Cells Transplant into Parkinson's Disease Patients is Safe and May Improve Their Quality of Life
3. New Treatment for Parkinson's Disease Gait Presented at the American Acadamy of Neurology Annual Meeting
4. Brain Abnormalities in Parkinson's Patients Develop Before Symptoms Occur, According to Feinstein Scientists
5. Despite Earlier Doubts, Feinstein Study Shows Fetal Transplants May Benefit Parkinson's Patients Over Age 60
6. Biosensor chip enables high-sensitivity protein analysis for disease diagnosis
7. Review Panel Leaves Controversial Lyme Disease Guidelines Unchanged
8. Team finds promising new drug target for Alzheimers disease
9. MUHC leads pan-Canadian initiative on respiratory disease
10. £3M awarded for climate model to predict disease outbreak
11. B-vitamins Help Protect Against Stroke, Heart Disease
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Parkinson's Disease Patient's Story Goes Multimedia, Proceeds to Benefit PD Research 
(Date:5/26/2016)... ... 2016 , ... W.S. Badger Co. Inc ., the maker of certified ... Work Works Award for its use of effective workplace strategies to increase business and ... administered by the Families and Work Institute (FWI) and the Society for Human Resource ...
(Date:5/26/2016)... (PRWEB) , ... May 26, 2016 , ... ... and clinical outcomes, hosted members and suppliers for its inaugural Member Conference at ... on their mission of elevating the operational health of America’s healthcare providers. , ...
(Date:5/26/2016)... (PRWEB) , ... May 26, 2016 , ... Connor ... women’s basketball as a partner for the Tamika Catchings Legacy Tour that ... the industry leader in hardwood basketball surfaces in all forms and levels of the ...
(Date:5/26/2016)... ... May 26, 2016 , ... The Woodlands at John ... a new model of care for living and healing, celebrated its grand opening, today. ... in a Real Home provided by Empowered Staff. , “This is an incredibly fulfilling ...
(Date:5/26/2016)... (PRWEB) , ... May 26, 2016 , ... There are ... more than 32 million cancer survivors worldwide. On Sunday, June 5, 2016, communities around ... annual National Cancer Survivors Day®. , National Cancer Survivors Day® is an annual ...
Breaking Medicine News(10 mins):
(Date:5/24/2016)... 2016   , Study ... overall bowel cleansing and superiority in , ... of the ascending colon ... Norgine B.V. today announced new positive data from the ... bowel preparation) versus standard 2 litre PEG with ascorbate. The study ...
(Date:5/24/2016)... LAWRENCEVILLE, N.J. , May 24, 2016 /PRNewswire/ ... an oncology drug development company, today provided an ... Ib dose escalating clinical trial combining GEN-1, the ... for the treatment of newly-diagnosed patients with advanced ... by interval debulking surgery.  GEN-1 is an IL-12 ...
(Date:5/24/2016)... KONG , May 24, 2016 /PRNewswire/ ... COMBO ™ , la première ... des cathéters destinés à l,intervention portant sur ... (FAV)   OrbusNeich, entreprise mondiale ... permettant de changer la vie, a élargi ...
Breaking Medicine Technology: