Navigation Links
Parents of severely ill children see benefits as caregivers, says study

Benefits often coexist with the negative and stressful outcomes for parents who have a child born with or later diagnosed with a life-limiting illness, says a recent study led by a researcher at the University of Waterloo.

While the challenges are numerous and life-changing and stress levels high, the vast majority of parents who participated in the Waterloo-led research reported positive outcomes as well, a phenomenon known as posttraumatic growth. The findings appear in the most recent issue of the American Journal of Orthopsychiatry.

"What is pivotal is the meaning the parents makewhat it means to them to be a parent who is doing more than parenting: they are care-giving as well," said Professor Susan Cadell, lead author of the study. She is a professor in the School of Social Work at Renison University College at Waterloo. "For many parents this means learning a great deal about their child's illness, the treatment and sometimes it includes advocating for themselves and others in similar circumstances."

More than 270 parents of children under the age of 20 in Canada and the U.S. with diseases and conditions such as cancer, severe cerebral palsy and irreversible organ failure participated by answering a 15-page questionnaire.

On average, respondents spent more than 62 hours a week as caregivers, the majority said their employment status changed as a result of their child's condition, and reported high levels of difficulty in managing cost. Still, caregivers reported growth, as measured by the PostTraumatic Growth Inventory (PTGI), a common tool used to measure positive aspects of stressful situations.

Out of a possible 126 points, with 0 indicating no growth at all, the parents reported an average of 62 points on the PTGI. Areas measured include relating to others, personal strength, appreciation of life and spiritual change.

"The findings indicate that there are a variety of positive aspects in a population where we think not much positive at all is happening," said Professor Cadell. "Our response rate was high because people wanted to talk about their children, families and relationships. This research has the potential to positively impact support for care-giving parents."

Researchers from six universities contributed to the study, including McGill University, the University of British Columbia, York University, University of Victoria and Nipissing University. The study looks at the first three years of data.

With the wealth of information collected during this study, including three more years of data, the research team plans to examine how posttraumatic growth changes over time. The Canadian Institutes of Health Research funded the project. A documentary film involving many of the families is also in the works for use in course work and outreach programs.


Contact: Pamela Smyth
University of Waterloo

Related medicine news :

1. Parents of Kids With Cancer No More Likely to Break Up
2. Gay Adults Rejected by Parents Have Worse Health, Study Finds
3. Nearly 1 in 4 grandparents store prescription medicines where children can easily find them
4. A physicians guide for anti-vaccine parents
5. Parents poor math skills may lead to medication errors
6. Friends Parents Can Sway Teens Odds for Drinking, Smoking
7. Study: Kids Who Sleep in Parents Bed Less Likely to Be Overweight
8. Many Parents of Kids With Autism Dont Put Faith in Pediatricians
9. Pediatric epilepsy impacts sleep for the child and parents
10. Parents are happier than non-parents, new research suggests
11. Parents Often Lose Sleep Over Childs Epilepsy, Study Finds
Post Your Comments:
(Date:11/27/2015)... Denver, CO (PRWEB) , ... November 27, 2015 , ... ... U.S. cities are not changing the way that they are handling security in light ... increasing police and security presence in an attempt to stop an attack from reaching ...
(Date:11/27/2015)... ... ... A team of Swiss doctors has released a report on mesothelioma relapse and ... findings on the website. Click here to read the details now. ... were treated with chemotherapy followed by EPP surgery. Among the 106 patients who relapsed, ...
(Date:11/27/2015)... ... November 27, 2015 , ... "When I was traveling, I ... Hillside, N.J. "Many people catch diseases simply from sitting on such dirty toilet ... protected from germs." , He developed the patent-pending QUDRATECS to eliminate the need ...
(Date:11/27/2015)... ... November 27, 2015 , ... The print ... USA Today in Atlanta, Dallas, New York, Minneapolis, South Florida, with a circulation ... is distributed nationally, through a vast social media strategy and across a network ...
(Date:11/27/2015)... ... November 27, 2015 , ... MPWH, the No.1 Herpes-only dating community in the world, ... Table 1-1 ). More than 3.7 billion people under the age of 50 – ... according to WHO's first global estimates of HSV-1 infection . , "The data shocks ...
Breaking Medicine News(10 mins):
(Date:11/29/2015)... 2015  The GE Health Cloud 1 was unveiled ... North America (RSNA) meeting in ... the new cloud ecosystem and its applications will connect radiologists ... and multidisciplinary teams – both inside and outside the hospital ... of GE. "As the digital industrial leader, we are betting ...
(Date:11/27/2015)... November 27, 2015 --> ... to go online. The potential to save costs, improve ... and far from fully exploited as yet. Here, particular ... records, either via mobile tablet or directly at the ... ) -->      (Photo: ...
(Date:11/27/2015)... ) ... "2016 Global Tumor Marker Testing Market: Supplier ... Segment Forecasts, Innovative Technologies, Instrumentation Review, Competitive ... offering. --> ) has ... Global Tumor Marker Testing Market: Supplier Shares ...
Breaking Medicine Technology: