Navigation Links
Parents of severely ill children see benefits as caregivers, says study
Date:4/24/2014

Benefits often coexist with the negative and stressful outcomes for parents who have a child born with or later diagnosed with a life-limiting illness, says a recent study led by a researcher at the University of Waterloo.

While the challenges are numerous and life-changing and stress levels high, the vast majority of parents who participated in the Waterloo-led research reported positive outcomes as well, a phenomenon known as posttraumatic growth. The findings appear in the most recent issue of the American Journal of Orthopsychiatry.

"What is pivotal is the meaning the parents makewhat it means to them to be a parent who is doing more than parenting: they are care-giving as well," said Professor Susan Cadell, lead author of the study. She is a professor in the School of Social Work at Renison University College at Waterloo. "For many parents this means learning a great deal about their child's illness, the treatment and sometimes it includes advocating for themselves and others in similar circumstances."

More than 270 parents of children under the age of 20 in Canada and the U.S. with diseases and conditions such as cancer, severe cerebral palsy and irreversible organ failure participated by answering a 15-page questionnaire.

On average, respondents spent more than 62 hours a week as caregivers, the majority said their employment status changed as a result of their child's condition, and reported high levels of difficulty in managing cost. Still, caregivers reported growth, as measured by the PostTraumatic Growth Inventory (PTGI), a common tool used to measure positive aspects of stressful situations.

Out of a possible 126 points, with 0 indicating no growth at all, the parents reported an average of 62 points on the PTGI. Areas measured include relating to others, personal strength, appreciation of life and spiritual change.

"The findings indicate that there are a variety of positive aspects in a population where we think not much positive at all is happening," said Professor Cadell. "Our response rate was high because people wanted to talk about their children, families and relationships. This research has the potential to positively impact support for care-giving parents."

Researchers from six universities contributed to the study, including McGill University, the University of British Columbia, York University, University of Victoria and Nipissing University. The study looks at the first three years of data.

With the wealth of information collected during this study, including three more years of data, the research team plans to examine how posttraumatic growth changes over time. The Canadian Institutes of Health Research funded the project. A documentary film involving many of the families is also in the works for use in course work and outreach programs.


'/>"/>

Contact: Pamela Smyth
psmyth@uwaterloo.ca
519-888-4777
University of Waterloo
Source:Eurekalert

Related medicine news :

1. Parents of Kids With Cancer No More Likely to Break Up
2. Gay Adults Rejected by Parents Have Worse Health, Study Finds
3. Nearly 1 in 4 grandparents store prescription medicines where children can easily find them
4. A physicians guide for anti-vaccine parents
5. Parents poor math skills may lead to medication errors
6. Friends Parents Can Sway Teens Odds for Drinking, Smoking
7. Study: Kids Who Sleep in Parents Bed Less Likely to Be Overweight
8. Many Parents of Kids With Autism Dont Put Faith in Pediatricians
9. Pediatric epilepsy impacts sleep for the child and parents
10. Parents are happier than non-parents, new research suggests
11. Parents Often Lose Sleep Over Childs Epilepsy, Study Finds
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/26/2017)... ... 2017 , ... “Just What Happened in the Garden of Eden”: retells the stories of three ... the creation of published author, Penelope Colt, mother, trader, horse farmer, artist and a former ... she was three. At six, they moved to Dayton, Ohio, where Penny graduated high ...
(Date:5/24/2017)... ... May 24, 2017 , ... Last month, representatives from Rendina ... and town officials to celebrate the grand opening of the 87,000 square foot ... part of its ongoing relationship with RWJBarnabas Health, New Jersey’s largest health system. ...
(Date:5/24/2017)... ... May 24, 2017 , ... Altec Products, Inc., a leader ... – a one-day technology conference in San Diego, CA. , At nVerge 2017, ... to fully utilize and enhance their Sage ERP solutions by providing improved visibility and ...
(Date:5/24/2017)... ... May 24, 2017 , ... Dr. Manju R. Kejriwal, ... ClearCorrect orthodontics, with or without a referral. Dr. Kejriwal understands the emotional and ... convenient, clear braces in Cincinnati, OH. Patients no longer need to feel the esthetic ...
(Date:5/24/2017)... ... , ... Myers Jackson is well known for auctioning homes that people move ... on the planet. The luxury home market is alive and well and there are ... search of “11 Spyglass Hill Auction will enlighten you on the dynamics of how ...
Breaking Medicine News(10 mins):
(Date:5/9/2017)... , May 9, 2017 Zimmer Biomet Holdings, ... musculoskeletal healthcare, today announced it has earned a spot ... 2017" list. The Company was ranked among 500 U.S. ... Employers and Healthcare Equipment and Services. The ... on an anonymous, independent survey of over 30,000 employees ...
(Date:5/8/2017)... 2017 MACRA replaces the outdated sustainable ... service reimbursement. Black Book Research crowdsource-surveyed 8,845 physician practices ... The Market for MIPS Compliance Technology is Booming ... with 3 or more clinicians seek to buy Merit-Based ... the magnitude of the changes, the hunt is on ...
(Date:5/6/2017)... N.Y. , May 5, 2017  Hill-Rom Holdings, ... will add approximately 100,000 square feet to its Welch ... September 2016 its commitment to bring more than 100 ... , where Welch Allyn has maintained a significant presence ... help accommodate these new positions, a large portion of ...
Breaking Medicine Technology: