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Parent Project Muscular Dystrophy Holds 15th Annual Connect Conference in Atlanta
Date:6/22/2009

" target="_new">Parent Project Muscular Dystrophy fifteen years ago - a group of parents and grandparents frustrated by the lack of research and funds devoted to Duchenne muscular dystrophy - we hoped that we wouldn't still be around in 2009. That a cure would have been found and our desperate fight to save the lives of our sons would have ended. That this monster that had invaded our homes and our families would have been defeated. Duchenne has not been cured, but the research that is happening is incredible and the people dedicated to end Duchenne are the most passionate and determined people you could hope to have working for your child's health."

Ms. Furlong is especially proud of the reputation the Connect Conference has established over its 15 year history. "Families attend the Connect Conference, the largest international event dedicated entirely to Duchenne, because of the robust agenda and acclaimed presenters. We present state-of-the-art research, including updates on PPMD's drug discovery program Project Catalyst and the End Duchenne Grant Award Program, a program to ensure promising Duchenne research reaches translation to human studies. Experts come to debate issues surrounding optimal care, and parents reap the benefits of these discussions. PPMD's goal has always been to provide the Duchenne community with a comprehensive approach in the fight against Duchenne - funding research, promoting advocacy, broadening treatment options, and as
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SOURCE Parent Project Muscular Dystrophy
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