Navigation Links
Palliative care skills training needed for health-care staff in sub-Saharan Africa
Date:4/22/2009

A new study, led by Lucy Selman and colleagues from King's College London, has found that patients with incurable, progressive diseases and their family carers in sub-Saharan Africa often do not receive enough information about the patient's disease and its management, which impacts negatively on their ability to cope with illness. The results of the study have been published online by the BMJ today.

The study was conducted in collaboration with five palliative care services in South Africa and Uganda and the palliative care associations of South Africa (HPCA) and Africa (APCA).

A major finding from interviews with 90 patients and 38 family carers was that healthcare staff did not provide enough information to help patients and carers understand the disease, its causes and symptoms, as well as its treatment and management. Patients and carers also felt insufficiently informed about the financial and social support available to them. These information gaps can cause anxiety for the patient and affect the family's ability to provide good patient care.

Patients and carers drew on a wide range of sources for information, including friends and family, peers with a similar condition and the media. Although patients and carers appreciated efforts made by their palliative care team to provide information, many still had unanswered questions.

For example, a patient with HIV reported that hospital staff never properly explained his diagnosis, likely symptoms and future care. Other patients talked about not receiving the results of blood tests, and described the trauma of being broken bad news in an insensitive manner. Carers reported not being told the patient's diagnosis directly, but learning it from his or her medical notes or from simply being sent on an HIV education course.

'The poor knowledge and lack of information provided impacted negatively on patients' and carers' ability to cope with their situation. For both groups, not having the information they needed was related to anxiety regarding the disease and the future', said Lucy Selman, Research Associate in the Department of Palliative Care, Policy & Rehabilitation at King's.

'The study highlights that it is crucial for all clinical staff to receive generalist training in palliative care skills, including communication and basic counselling. Communication with patients and carers should be open and honest, and records be kept of the discussions between healthcare staff and patients regarding their condition. It is also essential that services work closely with families and volunteer carers in the community, empowering them to provide the care the patient needs, including sensitive and accurate communication.'

This study is the first to explore the information needs of patients and carers attending palliative care services in Africa, identify information needs and understand past experiences of communicating with healthcare staff. Patients' diagnoses included cancer (28 cases), HIV infection (61) and motor neurone disease (1).


'/>"/>

Contact: Melanie Haberstroh
melanie.haberstroh@kcl.ac.uk
44-207-848-3076
King's College London
Source:Eurekalert

Related medicine news :

1. Missouri Hospice & Palliative Care Association Recognizes Volunteers in Hospice With Heart of Hospice Awards Luncheon
2. The Department of Pain Medicine and Palliative Care at Beth Israel Medical Center is Named 2009 Center of Excellence Award Winner by the American Pain Society
3. Grants to Increase Access to Hospice and Palliative Care for Rural and Homeless Veterans Awarded by National Hospice and Palliative Care Organization
4. San Diego Medical Community Receives First-Ever Accredited Palliative Medicine Fellowship Program
5. New Palliative Medicine Hotline to Call San Diego Home
6. Most Off-Label Cancer Drug Use for Palliative Care
7. Palliative Care Programs Could Boost Hospitals Bottom Line
8. Integrating palliative care for dementia into primary care
9. End-stage dementia patients deserve the same access to palliative care as people with cancer
10. The Norma F. Pfriem International Fellowship in Hospice and Palliative Care Nursing
11. Beyond the terminal: Palliative care
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/22/2017)... ... 22, 2017 , ... Using the power of the internet, IdrisArkette.com has managed ... a period of just 24 months, thousands of individuals interested in a medical procedure ... , “The internet is not getting quieter. In fact it’s becoming noisier by the ...
(Date:2/22/2017)... ... 22, 2017 , ... ANGLESTRONG , the new recovery management app with ... App Store and Google Play . Florida-based Sober Network, Inc., the ... industry, partnered with Angle to build ANGLESTRONG. The new recovery management app is a ...
(Date:2/22/2017)... ... February 22, 2017 , ... Becker’s Spine Review, the ... featuring Michigan neurosurgeon Jay Jagannathan, M.D., as a “Spine Surgeon to Know.” ... neurosurgeons in Michigan performing minimally invasive back surgery that often results in less ...
(Date:2/22/2017)... ... ... A product of digesting a micronutrient found in soy may hold the ... foods, while others do not, a University of Pittsburgh Graduate School of Public Health-led ... by some types of “good” gut bacteria when they metabolize isoflavones (micronutrients found in ...
(Date:2/22/2017)... Staefa, Switzerland (PRWEB) , ... February 22, 2017 ... ... have difficulty hearing and 72 percent of those report that family members or ... those who think they suffer from hearing loss wear hearing aids. One reason, ...
Breaking Medicine News(10 mins):
(Date:2/23/2017)... NEW YORK , February 23, 2017 ... more states have legalized cannabis for recreational use in 2016. ... the legal cannabis market was worth an estimated $7.2 billion ... annual growth rate of 17%. While adult recreational sales are ... billion by 2020, with a 25% CAGR. The market may ...
(Date:2/23/2017)... KNOXVILLE, Tenn. , Feb. 23, 2017 ... or the "Company"), a clinical-stage oncology and dermatology biopharmaceutical ... Horowitz and Dominic Rodrigues as special ... and Mr. Rodrigues will advise the board on financial ... it had received an investment commitment of up to ...
(Date:2/23/2017)... Feb. 22, 2017 Orthopedic and cardiac ... as aging demographic patterns lead to an increasing ... sports- and exercise-related injuries, chronic back problems, heart ... sales gains. The future of medical implants faces ... following questions and more: - What types ...
Breaking Medicine Technology: