Navigation Links
PATH B -- a comprehensive support program for patients diagnosed with chronic hepatitis B
Date:7/28/2011

  • Hepatitis B is one of the most common infectious diseases in the world, with 10-30 million new infections every year[1], yet there remains a lack of reliable resources for patients and caregivers

  • PATH B is a new programme that provides information and tools to guide patients through the stages of chronic hepatitis B; from diagnosis to long term disease management

London, UK, 28 July 2011 - The European Liver Patients Association (ELPA) and the World Hepatitis Alliance (WHA), announced today on the 4th annual World Hepatitis Day that 'PATH B "Patients and Professionals Acting Together for Hepatitis B" My journey with chronic hepatitis B', a comprehensive educational resource designed to improve the lives of people living with chronic hepatitis B, is to be launched in August 2011. PATH B aims to increase patient understanding of the consequences of chronic hepatitis B and improve patient-physician dialogue, with the goal of enhancing chronic hepatitis B disease management, resulting in a better quality of life.

The PATH B programme, the first of its kind, was developed by an independent advisory board that includes people living with hepatitis B, as well as patient advocacy group representatives and leading hepatologists from France, Germany, Greece, Italy, Spain and the UK. The program was organised and funded by Bristol-Myers Squibb.

An example of the PATH B resource, an interactive PDF, can be previewed now at http://www.elpa-info.org/ please click This is hepatitis banner on the home page and then go to News.

Challenges Faced by Chronic Hepatitis B Patients

Hepatitis B is one of the most common infectious diseases in the world.[2] There are 350-400 million people infected with chronic hepatitis B worldwide,[1,3] yet it remains a disease that is often under diagnosed and under treated. In fact, an estimated 50% of those diagnosed are not being treated, even though they meet guideline criteria for treatment.[4]

"There is a large information gap for chronic hepatitis B patients between their initial diagnoses and the long-term management of their disease," said PATH B advisory board member, Achim Kautz, ELPA Board Member. "For the first time, this toolkit seeks to fill that unmet need for complete and reliable information that patients can depend on through every step of their disease."

"As a clinician, I have seen that patients who are more knowledgeable about their disease feel empowered and in control and tend to have better outcomes," said PATH B advisory board member, Dr. Mark Wilkinson of Guy's and St Thomas' Hospital, London, UK. "This programme is one of the most comprehensive support tools for patients diagnosed with hepatitis B available, and helps patients and physicians engage in important conversations about managing their disease in the long-term."

Although this resource was developed primarily for patients it can also be a helpful resource for physicians to enhance dialogue with patients on disease progression, treatment and the importance of adherence and persistency.

About PATH B - Patients and Professionals Acting Together for Hepatitis B

PATH B consists of a hepatitis B journey roadmap that guides patients through every step and aspect of hepatitis B and treatment options. The six stages of the roadmap cover key aspects of a patient's journey with essential information on hepatitis B including:

  • have hepatitis B?
  • Understanding my tests
  • Being diagnosed with hepatitis B
  • After my diagnosis
  • Starting my treatment
  • My long term management

Other key features of the resource include an interactive Patient Diary and the View Your Progress 'test' tool, which allows patients to record blood test results, giving a visual chart on how they progress with their Viral load and ALT .

The 'PATH B My Journey with Chronic Hepatitis B' education resource will be available to view and download in English from PATH B partner societies from August 2011. More language versions, including German, French, Spanish, Italian, traditional Chinese, Turkish and Portuguese will be launched across Europe later this year.

PATH B Partner Organisations

European Liver Patients Association (ELPA)
World Hepatitis Alliance (Alliance)
British Liver Trust
Associaci Catalana de Malalts d'Hepatitis (ASSCAT)
Chinese Healthy Living Centre
Associazione EpaC onlus
SOS Hpatites


'/>"/>

Contact: Veronica Yao
v.yao@togorun.net
44-207-554-1799
TogoRun
Source:Eurekalert  

Related medicine news :

1. New Rural RHIO Aims to Achieve Meaningful Use With Prognosis ChartAccess Comprehensive EMR
2. State of Oregon Department of Human Services Selects Netsmart Technologies for Comprehensive Behavioral Healthcare Integration Project
3. Harvard School of Public Health unveils comprehensive, public online library of firearms research
4. Top 10 Pharmaceutical Company Awards Comprehensive Cardiac Safety Study to iCardiac
5. Haven Behavioral War Heroes Hospital to Offer Comprehensive Psychiatric Treatment for Military Service Members
6. Improved device provides more rapid, comprehensive analysis of circulating tumor cells
7. Dr. Appz Launches Comprehensive Productivity App for iPhone
8. Savi and ODIN to Deliver Industry's Most Comprehensive RFID Software Platform
9. Microscan Upgrades Visionscape, the Most Comprehensive Machine Vision Software for Multi-platform Use
10. Comprehensive Plan May Help Control Childrens Asthma
11. 3M and Maryland Hospital Association's Quality Indicator Project Partner to Deliver Comprehensive Quality Solution
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
PATH B -- a comprehensive support program for patients diagnosed with chronic hepatitis B
(Date:10/12/2017)... Francisco, CA (PRWEB) , ... October 12, 2017 ... ... Dr. Cheng, are now treating sleep apnea using cutting-edge Oventus O2Vent ... apnea, a serious sleep disorder characterized by frequent cessation in breathing. Oral appliances ...
(Date:10/12/2017)... Wis. (PRWEB) , ... October 12, 2017 , ... ... standard products to meet the demand of today’s consumer and regulatory authorities worldwide. ... of probiotic experts and tested to meet the highest standard. , These ...
(Date:10/12/2017)... Bethesda, MD (PRWEB) , ... October 12, 2017 , ... ... Award of Excellence to Carol Friedman, PhD, FACMI, during the Opening Session of AMIA’s ... 4 – 8. , In honor of Morris F. Collen, a pioneer in the ...
(Date:10/12/2017)... ... October 12, 2017 , ... ... that we intend to develop to enable prevention of a major side effect ... hearing loss, especially in pediatric patients. For cisplatin, hearing loss is FDA listed ...
(Date:10/12/2017)... ... ... HMP , a leader in healthcare events and education, today announced that ... ‘Best B-to-B Healthcare Website.’ Winners were announced during the Eddie & Ozzie Awards luncheon ... editorial and design excellence across a range of sectors. This year’s program included the ...
Breaking Medicine News(10 mins):
(Date:10/2/2017)... Denmark , Oct. 2, 2017 The Rebound ... in the struggle to reverse the tide of prescription drug ... for regulating their medicine intake and stepping down their dosage ... set to launch in December 2017; the first 100,000 people ... Learn more at http://www.rebound-solution.com/ ...
(Date:9/27/2017)... , Sept. 27, 2017  Commended for their devotion ... notable awards. Ranked as number one in the South Florida ... time in Inc. 5000 yearly list, the national specialty pharmacy ... Armando Bardisa will soon be honored by SFBJ ... Set to receive his award in ...
(Date:9/25/2017)... , Sept. 25, 2017  EpiVax, Inc., a ... design, and immune-engineering today announced the launch of ... development of personalized therapeutic cancer vaccines. EpiVax has ... exclusive access to enabling technologies to the new ... will lead EpiVax Oncology as Chief Executive Officer. ...
Breaking Medicine Technology: