Navigation Links
PATH B -- a comprehensive support program for patients diagnosed with chronic hepatitis B
Date:7/28/2011

  • Hepatitis B is one of the most common infectious diseases in the world, with 10-30 million new infections every year[1], yet there remains a lack of reliable resources for patients and caregivers

  • PATH B is a new programme that provides information and tools to guide patients through the stages of chronic hepatitis B; from diagnosis to long term disease management

London, UK, 28 July 2011 - The European Liver Patients Association (ELPA) and the World Hepatitis Alliance (WHA), announced today on the 4th annual World Hepatitis Day that 'PATH B "Patients and Professionals Acting Together for Hepatitis B" My journey with chronic hepatitis B', a comprehensive educational resource designed to improve the lives of people living with chronic hepatitis B, is to be launched in August 2011. PATH B aims to increase patient understanding of the consequences of chronic hepatitis B and improve patient-physician dialogue, with the goal of enhancing chronic hepatitis B disease management, resulting in a better quality of life.

The PATH B programme, the first of its kind, was developed by an independent advisory board that includes people living with hepatitis B, as well as patient advocacy group representatives and leading hepatologists from France, Germany, Greece, Italy, Spain and the UK. The program was organised and funded by Bristol-Myers Squibb.

An example of the PATH B resource, an interactive PDF, can be previewed now at http://www.elpa-info.org/ please click This is hepatitis banner on the home page and then go to News.

Challenges Faced by Chronic Hepatitis B Patients

Hepatitis B is one of the most common infectious diseases in the world.[2] There are 350-400 million people infected with chronic hepatitis B worldwide,[1,3] yet it remains a disease that is often under diagnosed and under treated. In fact, an estimated 50% of those diagnosed are not being treated, even though they meet guideline criteria for treatment.[4]

"There is a large information gap for chronic hepatitis B patients between their initial diagnoses and the long-term management of their disease," said PATH B advisory board member, Achim Kautz, ELPA Board Member. "For the first time, this toolkit seeks to fill that unmet need for complete and reliable information that patients can depend on through every step of their disease."

"As a clinician, I have seen that patients who are more knowledgeable about their disease feel empowered and in control and tend to have better outcomes," said PATH B advisory board member, Dr. Mark Wilkinson of Guy's and St Thomas' Hospital, London, UK. "This programme is one of the most comprehensive support tools for patients diagnosed with hepatitis B available, and helps patients and physicians engage in important conversations about managing their disease in the long-term."

Although this resource was developed primarily for patients it can also be a helpful resource for physicians to enhance dialogue with patients on disease progression, treatment and the importance of adherence and persistency.

About PATH B - Patients and Professionals Acting Together for Hepatitis B

PATH B consists of a hepatitis B journey roadmap that guides patients through every step and aspect of hepatitis B and treatment options. The six stages of the roadmap cover key aspects of a patient's journey with essential information on hepatitis B including:

  • have hepatitis B?
  • Understanding my tests
  • Being diagnosed with hepatitis B
  • After my diagnosis
  • Starting my treatment
  • My long term management

Other key features of the resource include an interactive Patient Diary and the View Your Progress 'test' tool, which allows patients to record blood test results, giving a visual chart on how they progress with their Viral load and ALT .

The 'PATH B My Journey with Chronic Hepatitis B' education resource will be available to view and download in English from PATH B partner societies from August 2011. More language versions, including German, French, Spanish, Italian, traditional Chinese, Turkish and Portuguese will be launched across Europe later this year.

PATH B Partner Organisations

European Liver Patients Association (ELPA)
World Hepatitis Alliance (Alliance)
British Liver Trust
Associaci Catalana de Malalts d'Hepatitis (ASSCAT)
Chinese Healthy Living Centre
Associazione EpaC onlus
SOS Hpatites


'/>"/>

Contact: Veronica Yao
v.yao@togorun.net
44-207-554-1799
TogoRun
Source:Eurekalert  

Related medicine news :

1. New Rural RHIO Aims to Achieve Meaningful Use With Prognosis ChartAccess Comprehensive EMR
2. State of Oregon Department of Human Services Selects Netsmart Technologies for Comprehensive Behavioral Healthcare Integration Project
3. Harvard School of Public Health unveils comprehensive, public online library of firearms research
4. Top 10 Pharmaceutical Company Awards Comprehensive Cardiac Safety Study to iCardiac
5. Haven Behavioral War Heroes Hospital to Offer Comprehensive Psychiatric Treatment for Military Service Members
6. Improved device provides more rapid, comprehensive analysis of circulating tumor cells
7. Dr. Appz Launches Comprehensive Productivity App for iPhone
8. Savi and ODIN to Deliver Industry's Most Comprehensive RFID Software Platform
9. Microscan Upgrades Visionscape, the Most Comprehensive Machine Vision Software for Multi-platform Use
10. Comprehensive Plan May Help Control Childrens Asthma
11. 3M and Maryland Hospital Association's Quality Indicator Project Partner to Deliver Comprehensive Quality Solution
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
PATH B -- a comprehensive support program for patients diagnosed with chronic hepatitis B
(Date:4/29/2016)... ... April 29, 2016 , ... Dr. ... of best seller "LOVE, MEDICINE and MIRACLES") addresses touchy topics related to Death ... podcasted thereafter . Dr. Bernie Siegel, author of a plethora of essential ...
(Date:4/29/2016)... Southlake, Texas (PRWEB) , ... April 29, 2016 , ... ... and neck pain, is proud to announce one of their physicians has been invited ... Osteopathic Family Physicians (Texas ACOFP) Family Practice Review conference on April 30, 2016. ...
(Date:4/29/2016)... ... ... Melanoma is the deadliest type of skin cancer. Although only about 1 percent of skin ... More than 10,000 people are expected to die of melanoma this year. The risk increases ... of the most commonly diagnosed cancers in young women. A recent breakthrough in genetic studies ...
(Date:4/29/2016)... ... April 29, 2016 , ... Jvion, ... round of funding led by Eastside Partners, with participation from existing investor Martin ... customer base and accelerate its technology and product roadmap. , “Jvion ...
(Date:4/29/2016)... ... ... Nike Softball Camp at the College of Brockport in New York is ... 10-18. All facets of the game will be covered; hitting, fielding, base-running, and team ... the finest softball facilities in the region. The outstanding professional college staff complement and ...
Breaking Medicine News(10 mins):
(Date:4/27/2016)... , le 27 Avril 2016 ... a progressé de +5% sur le trimestre, soutenu ... de consommables  Croissance de +16% des ... Mauna Kea Technologies (Euronext : MKEA, FR0010609263 ; ... confocale laser, annonce aujourd,hui son chiffre d,affaires pour ...
(Date:4/27/2016)... April 27, 2016 Elekta today ... platform will be the focal point of seven scientific ... European Society for Radiotherapy & Oncology, taking place April ... a state-of-the-art radiotherapy system and a high-field MRI scanner ... see the patient,s anatomy in real time. The MR-linac ...
(Date:4/27/2016)... , April 27, 2016   Zillion ... digital health technology platform, which specializes in live ... into scalable digital products, Zillion enables companies to ... empower consumers to take control of their health. ... video conferencing – including one-to-one, group and webcast ...
Breaking Medicine Technology: