Navigation Links
October 4th 'Mad Hatter' Tea Party to Benefit Morquio Syndrome Research

ALEXANDRIA, Va., Aug. 27 /PRNewswire/ -- A special "Mad Hatter" Tea Party is being held on October 4th in Alexandria, Va. to raise funds for a little-known disease that affects thousands of children worldwide. A full range of activities for children and adults is planned, including a "Mad Hat" contest and silent auction.

The special family-fundraising event was conceived by Stephanie Bozarth, whose daughter, Annabelle, was diagnosed with the disease called Morquio Syndrome when she was six months old. Event proceeds will benefit The National MPS Society, to fund Morquio research and development of treatment for Annabelle and others affected with the disease worldwide.

According to Bozarth, last year's inaugural fund-raiser raised $50,000 for MPS research. "Based on last year's success, we hope to see more than 250 DC metro children and adults this year on Sunday, October 4, 2009 from 3:00 p.m. to 5:30 p.m. at the Windsor Room in the Embassy Suites Old Town - Alexandria."

Morquio Syndrome is a degenerative disease causing severe bone abnormalities and organ damage. It is caused when a child is missing an enzyme essential in cutting up mucopolysaccharide -- which is normally used in developing healthy bones and cartilage. Physical growth slows and often stops in affected children at eight years old. Children with more severe cases may not live beyond their 20s. Currently, 370 patients are registered with this syndrome and thousands worldwide are estimated to carry the degenerate gene, but are not yet diagnosed.

"With limited awareness of this syndrome, funding is inadequate to move research for treatment forward," Bozarth noted. "Our goal is to raise $50,000 to support Morquio treatment research. There is no cure; however, with treatment there is potential to stop the disease progression and provide relief to the daily challenges faced by people with MPS."

"Mad Hatter" Tea Party guests will enjoy a variety of family entertainment, including garden tea party portraits, Alice in Wonderland face painting, mad hat contests, and a silent auction. Mr. Knick Knack! is the event entertainment, promising a memorable show of rousing sing-alongs and energetic dance.

"The Mad Hatter event will be a bright, cheerful and fun garden tea party -- an exciting celebration of life for all ages. It is our hope that the Alexandria community will support this family activity that has the potential to impact children worldwide," Bozarth added.

The National MPS Society is a 501(3)c non-profit organization whose purpose is to find cures for MPS and other related diseases. They provide hope and support for affected individuals and their families through research, advocacy, and awareness of these devastating diseases.

For more information about the event or to make a tax-deductible donation to support The National MPS Society, please visit the "Mad Hatter" event website at

To learn more about the Bozarth Family story please visit:

    Stephanie Bozarth

SOURCE The National MPS Society
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. CryoService Ltd Liquid Nitrogen Safety Training will Hit the Road Again in October 2009
2. Innovator's Studio launches new forum for Chief Strategy Officers October 26-27, 2009
3. First Midwest Healthcare Business Intelligence (BI) Summit October 27 in Minneapolis; International Panel to Discuss New Regulations, Recession, & BI Best Practices
4. U.S. Expects 160 Million Doses of Swine Flu Vaccine by October
5. PDL BioPharma Announces Record Date for October 1 Dividend Payment
6. Swine Flu Vaccine Wont Be Ready Until October: CDC
7. Allscripts Announces Final Tax Treatment of Special Cash Dividend From the Transactions With Misys plc Completed in October 2008
8. Lillians(TM) Postpones The Dance Fundraising Event; New Date Is October 23, 2009
9. Nolan Law Group Files Lawsuit on Behalf of the Parents of a 14-Month-Old Girl Killed in October 15th 2008 Medical Evacuation Helicopter Crash Near Aurora, Illinois
10. Micro-Bubble Echo Contrast Procedures Continue to Rebound in October 2008
11. Solos Endoscopy, Inc. Increases Sales Revenue for October 2008 by Over 10% as Compared to Last Year
Post Your Comments:
(Date:11/25/2015)... ... 25, 2015 , ... Privately owned Contract Development and Manufacturing ... its current state of the art research, development and manufacturing facility outside of ... manufacturing capacity as well as to support its clients’ growing research and development ...
(Date:11/25/2015)... , ... November 25, 2015 , ... Many people know ... fuzzy-headedness, weight gain, cold hands, and dry skin. But many people who find their ... and exercise regimen instead of their thyroid, especially if they don’t have any of ...
(Date:11/25/2015)... ... November 25, 2015 , ... Since its launch in ... involving adult stem cell therapies to patients with chronic degenerative medical conditions. Now, ... a Registered Trademark (RTM). , Organizations are required to hold a registered trademark ...
(Date:11/25/2015)... ... November 25, 2015 , ... ... prices in an early celebration of the early holiday shopping season. Starting Wednesday ... each (normally $33.95 ea). Black Friday promotional pricing is in addition to any ...
(Date:11/24/2015)... ... November 24, 2015 , ... Eric C. Seidel, DMD ... benefits of the revolutionary BIOLASE WaterLase iPlus 2.0™ system. This advanced laser technology ... by a dentist in Gettysburg, PA . From routine visits to cosmetic ...
Breaking Medicine News(10 mins):
(Date:11/25/2015)... 25, 2015 Research and Markets ( ... Market - Global Forecast to 2020" report to ... accounting for 37.21% of the total market share in ... region is projected to growth at the highest ... attributed primarily to the fast growing water, industrial gas ...
(Date:11/24/2015)... November 25, 2015 The hope ... repeated failure of IVF cycles. After failure of over ... and had lost all hopes that she would be able to conceive ever. ... child conceived after failure of over 15 IVF cycles. ... before they decided to take one last attempt with Gaudium IVF ...
(Date:11/24/2015)... , Nov. 24, 2015  Natera, ... in non-invasive genetic testing and the analysis ... it will present at the 27 th ... December 2, 2015 at 1:00 p.m. ET.  Matthew Rabinowitz, Ph.D., ... financial results, business activities and financial outlook. ...
Breaking Medicine Technology: