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Northwestern Medicine hosts the National Marfan Foundation's Annual Conference
Date:7/30/2012

E course for physicians and healthcare professionals on current diagnostic and therapeutic challenges for patients with Marfan syndrome and related disorders," said Chris Malaisrie, MD, cardiac surgeon at Northwestern's Bluhm Cardiovascular Institute. Malaisrie adds that early intervention is imperative, and that the cardiovascular abnormalities are by far the most serious, requiring major medical and potentially surgical intervention.

"Children and teens with Marfan syndrome can encounter multiple physical and psychosocial challenges related to their disorder," said Luciana Young, MD, cardiologist and director of echocardiography at Ann and Robert H. Lurie Children's Hospital of Chicago. "Due to the risk for aortic dissection, many young MFS patients require restricted physical activities. And, psychosocially speaking, children and teens may struggle with issues of self-esteem related to their physical appearance."

Drs. Mendelson, Malaisrie and Young reiterate that this conference is designed for people with MFS and related disorders to come together and learn from experts. There are workshops for children, teens and young adults to give those with MFS and related disorders a platform to discuss their issues and bond with one another. Nearly 7,500 individuals with MFS, families, spouses, siblings and medical professionals have attended this event since it kicked off in 1982.

Northwestern Medicine is the shared vision that joins Northwestern Memorial HealthCare and the Feinberg School in a collaborative effort to transform medicine through quality healthcare, academic excellence and scientific discovery.


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Contact: Todd Medland
tmedland@nmh.org
312-926-0735
Northwestern Memorial Hospital
Source:Eurekalert

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