Navigation Links
Northwestern Medicine hosts the National Marfan Foundation's Annual Conference
Date:7/30/2012

The National Marfan Foundation is gearing up for its 28th Annual conference, held at Northwestern Memorial Hospital in Chicago, August 2-5. Hosted by Northwestern Medicine and the Ann and Robert H. Lurie Children's Hospital of Chicago, the four-day conference has something for everyone with Marfan syndrome (MFS) and related disorders, including access to many of the top MFS experts in the world. Among the notable MFS experts will be Northwestern's own Marla A. Mendelson, MD, cardiologist, and cardiac surgeon, S. Chris Malaisrie, MD.

"In addition to the medical presentations and small-group workshops, conference attendees have the opportunity to make an appointment for a free evaluation with some of the top Marfan experts," said Marla Mendelson, MD, medical director of the Program for Women's Cardiovascular Health at Northwestern Memorial's Bluhm Cardiovascular Institute. "It's extremely important that people with Marfan syndrome get an accurate diagnosis and appropriate treatment advice to prevent serious and even life-threatening consequences."

MFS affects men and women, young and old, and people of all races and ethnicities. MFS is most often genetic, although one in four instances occurs in people with no family history. It's an abnormality in the body's connective tissue. Connective tissue helps support all parts of the body and helps regulate growth and development. Therefore, MFS patients can experience problems in many areas, including the eyes, heart, bones, lungs and spinal cord. One of the most serious complications of MFS involves the heart's main blood vessel, the aorta, which is a major source for pumping blood throughout the body. When MFS is present, the aorta can stretch and grow weak, leading to an aortic aneurysm. An aneurysm may tear, leak blood, or even worse, burst. A very serious condition called aortic dissection can lead to severe heart problems or even death as well.

"This comprehensive conference offers a CME course for physicians and healthcare professionals on current diagnostic and therapeutic challenges for patients with Marfan syndrome and related disorders," said Chris Malaisrie, MD, cardiac surgeon at Northwestern's Bluhm Cardiovascular Institute. Malaisrie adds that early intervention is imperative, and that the cardiovascular abnormalities are by far the most serious, requiring major medical and potentially surgical intervention.

"Children and teens with Marfan syndrome can encounter multiple physical and psychosocial challenges related to their disorder," said Luciana Young, MD, cardiologist and director of echocardiography at Ann and Robert H. Lurie Children's Hospital of Chicago. "Due to the risk for aortic dissection, many young MFS patients require restricted physical activities. And, psychosocially speaking, children and teens may struggle with issues of self-esteem related to their physical appearance."

Drs. Mendelson, Malaisrie and Young reiterate that this conference is designed for people with MFS and related disorders to come together and learn from experts. There are workshops for children, teens and young adults to give those with MFS and related disorders a platform to discuss their issues and bond with one another. Nearly 7,500 individuals with MFS, families, spouses, siblings and medical professionals have attended this event since it kicked off in 1982.

Northwestern Medicine is the shared vision that joins Northwestern Memorial HealthCare and the Feinberg School in a collaborative effort to transform medicine through quality healthcare, academic excellence and scientific discovery.


'/>"/>
Contact: Todd Medland
tmedland@nmh.org
312-926-0735
Northwestern Memorial Hospital
Source:Eurekalert

Related medicine news :

1. Northwestern launches comprehensive program for patients with bicuspid aortic valve disease
2. First targeted nanomedicine to enter human clinical studies
3. Normalizing tumor blood vessels improves delivery of only the smallest nanomedicines
4. AFAR announces the 2012 Hartford Centers of Excellence in Geriatric Medicine awards
5. DNA Testing Finds Allergens, Toxins in Traditional Chinese Medicines
6. Not taking gastroprotective drugs prescribed with anti-inflammatory medicines
7. Nearly 1 in 4 grandparents store prescription medicines where children can easily find them
8. Wilderness Medicine founder offers health tips for summer season
9. Internal medicine physician specialists release policy paper on reforming Medicaid
10. Awards to 5 IU School of Medicine physicians address critical need for geriatricians
11. Annals of Internal Medicine tip sheet for May 8, 2012, online issue
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/27/2016)... ... June 27, 2016 , ... "FCPX editors can now ... of Final Cut Pro X," said Christina Austin - CEO of Pixel Film Studios. ... Final Cut Pro X users can now reveal the media of their split ...
(Date:6/27/2016)... ... June 27, 2016 , ... A revolution is ... emergency ambulance transport experience for the millions of people who require these medical ... the taxi industry through the use of technology. Now, SmartEMS has put forth ...
(Date:6/26/2016)... ... June 26, 2016 , ... On June 10-11, 2016, A ... 2016 Cereal Festival and World’s Longest Breakfast Table in Battle Creek, MI, where the ... history as home to some of the world’s leading providers of cereal and other ...
(Date:6/26/2016)... ... , ... Brent Kasmer, a legally blind and certified personal trainer is helping to develop a ... fitness app plans to fix the two major problems leading the fitness industry today:, ... type program , They don’t eliminate all the reasons people quit their exercise ...
(Date:6/25/2016)... ... , ... Austin residents seeking Mohs surgery services, can now turn to Dr. ... Russell Peckham for medical and surgical dermatology. , Dr. Dorsey brings specialization to include ... in Mohs Micrographic Surgery completed by Dr. Dorsey was under the direction of Glenn ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... 2016   Bay Area Lyme Foundation , ... Center for Tick Borne Illness , Harvard Medical ... Hacking Medicine, University of California, Berkeley, and the ... five finalists of Lyme Innovation , the ... 100 scientists, clinicians, researchers, entrepreneurs, and investors from ...
(Date:6/24/2016)... June 24, 2016 The Academy of Managed ... recommendations that would allow biopharmaceutical companies to more ... that make formulary and coverage decisions, a move that ... new medicines. The recommendations address restrictions in ... on the drug label, a prohibition that hinders decision ...
(Date:6/24/2016)... 24, 2016 Research and Markets has ... Companion Diagnostic Tests" report to their offering. ... Diagnostics The World Market for Companion Diagnostics ... diagnostics. Market analysis in the report includes the following: ... Vitro Diagnostic Kits) by Region (N. America, EU, ROW), 2015-2020 ...
Breaking Medicine Technology: