Navigation Links
Northwestern Medicine hosts the National Marfan Foundation's Annual Conference
Date:7/30/2012

The National Marfan Foundation is gearing up for its 28th Annual conference, held at Northwestern Memorial Hospital in Chicago, August 2-5. Hosted by Northwestern Medicine and the Ann and Robert H. Lurie Children's Hospital of Chicago, the four-day conference has something for everyone with Marfan syndrome (MFS) and related disorders, including access to many of the top MFS experts in the world. Among the notable MFS experts will be Northwestern's own Marla A. Mendelson, MD, cardiologist, and cardiac surgeon, S. Chris Malaisrie, MD.

"In addition to the medical presentations and small-group workshops, conference attendees have the opportunity to make an appointment for a free evaluation with some of the top Marfan experts," said Marla Mendelson, MD, medical director of the Program for Women's Cardiovascular Health at Northwestern Memorial's Bluhm Cardiovascular Institute. "It's extremely important that people with Marfan syndrome get an accurate diagnosis and appropriate treatment advice to prevent serious and even life-threatening consequences."

MFS affects men and women, young and old, and people of all races and ethnicities. MFS is most often genetic, although one in four instances occurs in people with no family history. It's an abnormality in the body's connective tissue. Connective tissue helps support all parts of the body and helps regulate growth and development. Therefore, MFS patients can experience problems in many areas, including the eyes, heart, bones, lungs and spinal cord. One of the most serious complications of MFS involves the heart's main blood vessel, the aorta, which is a major source for pumping blood throughout the body. When MFS is present, the aorta can stretch and grow weak, leading to an aortic aneurysm. An aneurysm may tear, leak blood, or even worse, burst. A very serious condition called aortic dissection can lead to severe heart problems or even death as well.

"This comprehensive conference offers a CME course for physicians and healthcare professionals on current diagnostic and therapeutic challenges for patients with Marfan syndrome and related disorders," said Chris Malaisrie, MD, cardiac surgeon at Northwestern's Bluhm Cardiovascular Institute. Malaisrie adds that early intervention is imperative, and that the cardiovascular abnormalities are by far the most serious, requiring major medical and potentially surgical intervention.

"Children and teens with Marfan syndrome can encounter multiple physical and psychosocial challenges related to their disorder," said Luciana Young, MD, cardiologist and director of echocardiography at Ann and Robert H. Lurie Children's Hospital of Chicago. "Due to the risk for aortic dissection, many young MFS patients require restricted physical activities. And, psychosocially speaking, children and teens may struggle with issues of self-esteem related to their physical appearance."

Drs. Mendelson, Malaisrie and Young reiterate that this conference is designed for people with MFS and related disorders to come together and learn from experts. There are workshops for children, teens and young adults to give those with MFS and related disorders a platform to discuss their issues and bond with one another. Nearly 7,500 individuals with MFS, families, spouses, siblings and medical professionals have attended this event since it kicked off in 1982.

Northwestern Medicine is the shared vision that joins Northwestern Memorial HealthCare and the Feinberg School in a collaborative effort to transform medicine through quality healthcare, academic excellence and scientific discovery.


'/>"/>
Contact: Todd Medland
tmedland@nmh.org
312-926-0735
Northwestern Memorial Hospital
Source:Eurekalert

Related medicine news :

1. Northwestern launches comprehensive program for patients with bicuspid aortic valve disease
2. First targeted nanomedicine to enter human clinical studies
3. Normalizing tumor blood vessels improves delivery of only the smallest nanomedicines
4. AFAR announces the 2012 Hartford Centers of Excellence in Geriatric Medicine awards
5. DNA Testing Finds Allergens, Toxins in Traditional Chinese Medicines
6. Not taking gastroprotective drugs prescribed with anti-inflammatory medicines
7. Nearly 1 in 4 grandparents store prescription medicines where children can easily find them
8. Wilderness Medicine founder offers health tips for summer season
9. Internal medicine physician specialists release policy paper on reforming Medicaid
10. Awards to 5 IU School of Medicine physicians address critical need for geriatricians
11. Annals of Internal Medicine tip sheet for May 8, 2012, online issue
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:8/11/2018)... ... 2018 , ... Financial Voyages LLC CEO Pamela Robinson was ... Year-Business category in The 15th Annual International Business Awards®. , The International Business ... – public and private, for-profit and non-profit, large and small - are eligible ...
(Date:8/9/2018)... ... August 09, 2018 , ... RiverGlade Capital ... Operating Partner and will have an exclusive relationship with the firm. As ... strategic planning, human capital sourcing, and deal origination, evaluation and diligence. He ...
(Date:8/7/2018)... ... August 07, 2018 , ... The American Psychiatric ... to receive the 2018 Board of Directors Student Scholarship . The APNA ... psychiatric-mental health nursing and develop the next generation of leaders in the profession. ...
(Date:8/2/2018)... ... August 02, 2018 , ... Dr. Srini Pillay , best-selling ... of why some people could care less, demonstrating a “whatever” attitude toward life, people, ... reasons for this, one often overlooked reason relates to being overworked. Called self-regulation depletion ...
(Date:8/2/2018)... ... August 02, 2018 , ... ... a range of topics in acute pain management. In The Role of Acute ... OPEN—the Opioid Prescribing Engagement Network—an innovative approach to the opioid epidemic launched in ...
Breaking Medicine News(10 mins):
(Date:8/7/2018)... ... 2018 , ... Penn State graduate, Dr. Kevin Pauza, in ... training and certifying spine physicians across the United States on his technique for ... the Weill Cornell Brain and Spine Center in July, and have begun performing ...
(Date:8/3/2018)... ... August 03, 2018 , ... LifeWIRE’s innovative patents in ... of the 5,000-strong association of app companies and information technology firms across the ... Notification Method System and Computer Program Product” and subsequent patents are among those ...
(Date:8/2/2018)... ... 02, 2018 , ... Periodontist, Dr. Andres Sanchez, welcomes new ... treatment at his Eden Prairie, MN practice. Aesthetic crown lengthening or gingival ... of experience, Dr. Sanchez is excited to welcome new patients for a transformative ...
Breaking Medicine Technology: