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New survey finds grandparents play key role in lives of children with autism
Date:4/6/2010

  • More than 31% said they provided some direct child care at least once per week. Proactive grandparents

  • Participating grandparents kept themselves very well informed about ASDs; 99% said they "read or do research to better understand Autism Spectrum Disorders" because of their grandchild's diagnosis.

  • Grandparents were very active in advocating for their grandchildren on the autism spectrum, with nearly 50% taking part in autism walks or fundraisers, 33% involved in political advocacy, and 31% attending conferences or workshops on autism.

    Financial impact

    A significant majority of grandparents reported contributing to their grandchild's general or special financial needs.

    • More than 22% reported going without something they had hoped for in order to provide for their grandchild's financial needs. In fact, 18% had become primary babysitter so their adult child could work, 11% had raided retirement funds, and 8% had borrowed money.

    • Nearly 60% had made sacrifices not provided in response choices, such as working more hours or taking on a second job, providing respite care, or leaving funds in a special needs trust.

    • About 25% of grandparents reported spending up to $99 per month to meet their grandchild's autism-related needs, while 30% paid even higher amounts. There were some grandparents spending more than $500 per month.

    "It is hoped that the results of this survey will help researchers, policymakers and advocates learn about the experiences and opinions of grandparents of children with an ASD, and advance efforts to advocate for improved services and resources," said Dr. Law.


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  • Contact: Megan Lustig
    mlustig@spectrumscience.com
    202-955-6222 x2586
    Kennedy Krieger Institute
    Source:Eurekalert

    Page: 1 2 3

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