Navigation Links
New study evaluates community response to personally controlled health information
Date:5/1/2009

Boston, Mass. - A new paper published in the latest issue of the open access publication Journal of Medical Internet Research evaluates consumers' experiences with the Indivo personally controlled health record (PCHR) system - a system developed by researchers in the Children's Hospital Informatics Program (CHIP) more than a decade ago that has been adapted by PCHR providers including Dossia, Microsoft and Google. This is the first report to be published that investigates consumers' response to a platform PCHR and subsequent implications for policy and design.

The two-year study was conducted by CHIP researchers at a university-based health center, where Indivo was promoted to all members of the university community, including undergraduate and graduate students, faculty, staff, retirees and affiliates of the site and setting, regardless of a person's status as a patient of the health center. More than 300 people, ranging in age from 18 to 83, participated in the study via focus groups, interviews, usability testing or a full demonstration of Indivo and shared their experiences, feedback and suggestions with the study team.

"This research comes at an important time," said co-author Kenneth Mandl, MD, MPH, director of the Intelligent Health Laboratory within CHIP. "The Obama administration has made health information technology a priority and we have a unique window of opportunity now, before widespread adoption of PCHRs is realized, to do research - in this case, to see how people in a community access and interact with their health information independent of a clinician or administrator - and determine what changes need to be made and policies put in place, and get it right."

Observations obtained during the course of the study suggest that issues of health and technology literacy, accessibility, privacy, autonomy, quality and accuracy, age, and social support within households and families are all variables relevant to the adoption and use of PCHRs. Broadly, researchers detected:

  • A general feeling of disconnect between people and their health information

  • A dramatic overestimation of the extent to which health information data are digitized and flowing in support of patient care

  • A lack of awareness of the existence of PCHR technology
  • High levels of interest in PCHRs once participants had exposure to one
  • A perception that PCHR benefits outweigh their potential risks
  • Differing opinions/appreciations between older/younger participants around the risks and opportunities associated with sharing health information
  • A need for help understanding technical or clinical issues
  • Concerns about quality, accuracy and locus of responsibility for maintaining records
  • Uncertainty about appropriate and safe read/edit access policies
  • Consumer demands of the technology that exceeded technical sophistication of current PCHRs

The co-authors believe the resonation of the Indivo PCHR platform with study participants is an indication of the rapidity at which PCHRs will be adopted once the technology has progressed further. In the meantime they advocate for continued evaluations of PCHR use and broader discussions about technical and policy approaches, including the development of clear guidelines, lines of responsibilities and methods of educational and technical assistance.

"As we progress toward large-scale adoption of PCHRs, we need to proceed with a critical eye for how to advance the technology but also continuously assess the impact it is having on the existing landscape of health behaviors, knowledge, understanding and relationships," said Elissa Weitzman, ScD, MSc, lead author of the paper and also of CHIP. "When you drop a new technology like this into an already complex system of behaviors, knowledge and assumptions, we can expect it to create a ripple effect that will resonate out from an individual to their care providers and beyond."


'/>"/>

Contact: Keri Stedman
keri.stedman@childrens.harvard.edu
617-919-3110
Children's Hospital Boston
Source:Eurekalert

Related medicine news :

1. Home Study Course Teaches Health Care Professionals How to be Effective Experts & Defendants in Medical Malpractice Lawsuits
2. Pandemic study of 1918-1919 outbreak provides background and death rates for 14 European countries
3. Study Results Published in CUTIS Demonstrate Long-Term Safety and Efficacy of Vectical(TM) (calcitriol) Ointment 3 mcg/g in the Management of Mild-to-Moderate Plaque Psoriasis
4. Growth in Wyoming Long Term Care Costs Outpacing the Rate of Inflation, According to Annual Genworth Financial Study
5. Growth in Wisconsin Long Term Care Costs Outpacing the Rate of Inflation, According to Annual Genworth Financial Study
6. Growth in Washington Long Term Care Costs Outpacing the Rate of Inflation, According to Annual Genworth Financial Study
7. Growth in Virginia Long Term Care Costs Outpacing the Rate of Inflation, According to Annual Genworth Financial Study
8. Growth in Utah Long Term Care Costs Outpacing the Rate of Inflation, According to Annual Genworth Financial Study
9. Growth in Texas Long Term Care Costs Outpacing the Rate of Inflation, According to Annual Genworth Financial Study
10. Growth in Rhode Island Long Term Care Costs Outpacing the Rate of Inflation, According to Annual Genworth Financial Study
11. Growth in Ohio Long Term Care Costs Outpacing the Rate of Inflation, According to Annual Genworth Financial Study
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/26/2016)... Birmingham, Lake Orion, Clarkston, Michigan (PRWEB) , ... ... ... their direction with respect to fertility once they have been diagnosed with endometriosis. ... for tolerable intercourse but they also require a comprehensive approach that can help ...
(Date:6/25/2016)... (PRWEB) , ... June 25, 2016 , ... Austin residents ... the American College of Mohs Surgery and to Dr. Russell Peckham for medical and ... highly effective treatment for skin cancer. The selective fellowship in Mohs Micrographic Surgery completed ...
(Date:6/25/2016)... ... 25, 2016 , ... "With 30 hand-drawn hand gesture animations, FCPX users can ... CEO of Pixel Film Studios. , ProHand Cartoon’s package transforms over 1,300 hand-drawn ... X . Simply select a ProHand generator and drag it above media or text ...
(Date:6/25/2016)... ... June 25, 2016 , ... As a lifelong Southern ... Laude and his M.D from the David Geffen School of Medicine at UCLA. He ... Los Angeles to complete his fellowship in hematology/oncology at the UCLA-Olive View-Cedars Sinai program ...
(Date:6/25/2016)... ... 25, 2016 , ... On Friday, June 10, Van Mitchell, Secretary of the ... to iHire in recognition of their exemplary accomplishments in worksite health promotion. , The ... Health & Wellness Symposium at the BWI Marriott in Linthicum Heights. iHire was one ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... SAN CLEMENTE, Calif. , June 24, 2016 /PRNewswire/ ... pulmonary function testing company, is now able to perform sophisticated lung ... ndd Medical Technologies , Inc. Patients are ... labs.  Thanks to ndd,s EasyOne PRO ® , ARL patients like ... any needed testing done in the comfort of her own home. ...
(Date:6/24/2016)... India , June 24, 2016 ... Needles Market by Type (Standard Pen Needles, Safety Pen ... Therapy (Insulin, GLP-1, Growth Hormone), Mode of Purchase (Retail, ... by MarketsandMarkets, This report studies the market for the ... expected to reach USD 2.81 Billion by 2021 from ...
(Date:6/24/2016)... , June 24, 2016 VolitionRx ... of Dr. Edward Futcher to the ... effective June 23, 2016.Dr. Futcher was also appointed ... Governance Committees.  As a non-executive member of the ... and strategic counsel to VolitionRx in connection with ...
Breaking Medicine Technology: