Navigation Links
New report on creating clinical public use microdata files
Date:9/15/2011

OTTAWA, ON September 15, 2011 The demand for transparency through publicly available healthcare data is on the rise. This is the case for administrative and clinical data for research, and for clinical trials data used to support new drug approvals. Broad data access has a measurable impact on research and policy making. A new report by Dr. Khaled El Emam, the Canada Research Chair in Electronic Health Information at the University of Ottawa and the Children's Hospital of Eastern Ontario Research Institute, looks at the creation of clinical public use microdata files (PUMFs).

"We have shown how to create useful clinical public data files while providing strong protections for the privacy of individuals," explained Dr. El Emam. "The U.S. and the U.K., as well as other countries are steering an international debate right now about open data, and are leading the way in providing access to detailed health information. But there are very few organizations in Canada, all sitting on gold mines of data, which have made that data publicly available. More Canadian agencies need to step up!" The report demonstrates that making the data anonymous is possible and doing so does not put patient privacy at risk.

A PUMF can serve multiple purposes, including: confirming published results, providing broader feedback to improve data quality, use it for training students and fellows in data analysis, providing an easily accessible data set for researchers to design studies, examine the feasibility of certain studies, and prepare for analyses on more detailed data that are not publicly available, and be used as a large data set for computer scientists and statisticians to evaluate analysis and data mining techniques.

The report, available today in the BMC Medical Informatics and Decision Making Journal, looked at a random sample of individual-level data files; part of the discharge abstract database from the Canadian Institute for Health Information (CIHI). Two different PUMFs were produced; one with geographic information and another without geographic information but containing more clinical information. The findings were clear the PUMFs ensured that the risk of re-identifying individual patients was very low and after the changes made to the data to protect patient identity the data was still useful for analysis.

To create the PUMF, the paper describes new metrics for measuring re-identification risks; develops a new efficient algorithm for minimizing the amount of information that needs to be removed from the data; explores the different plausible ways that Canadians' health data can be attacked; and demonstrates tactics that can be used to maximize the value of the data that is released. The report provides an example of the steps that need to be followed to create a PUMF.

"Canada has a single payer system, which means that population-level data sets already exist. Currently gaining access to such data is often limited to certain groups, is complex and time-consuming," said Dr. El Emam. "Making data public is not difficult to do; data quality can be maintained; and the economic and health system benefits are substantial! Worries about privacy are simply not a convincing excuse anymore as it's largely a solvable problem."


'/>"/>

Contact: Adrienne Vienneau
avienneau@cheo.on.ca
613-737-7600 x4144
Children's Hospital of Eastern Ontario Research Institute
Source:Eurekalert

Related medicine news :

1. Many Alzheimers Cases Go Unrecognized: Report
2. 366 Million People Now Have Diabetes: Report
3. World Alzheimers Report 2011: The benefits of early diagnosis and intervention
4. More U.S. Adults Using Illegal Drugs: Report
5. New report: US investment in health research remains stagnant
6. Health Impact Project director comments on new National Research Council report
7. Macy Foundation report calls for sweeping graduate medical education reforms
8. Couples who receive government assistance report less marital satisfaction, commitment, study finds
9. GEN reports on advances in DNA vaccine delivery and production
10. HPV Vaccination Rates Low Among Teen Girls, CDC Reports
11. U.S.-Mandated Report Finds Vaccines Safe for Kids
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... ... , ... “The Journey: From the Mountains to the Mission Field”: the story ... the Philippines. “The Journey: From the Mountains to the Mission Field” is the creation ... has taught all ages and currently teaches a class of ladies at her church, ...
(Date:10/12/2017)... ... October 12, 2017 , ... Planet Fitness, one of the largest and fastest ... to open a flagship location in Covington, LA at 401 N. U.S. Highway 190, ... next to Office Depot in the Holiday Square shopping center. Its location allows it ...
(Date:10/12/2017)... ... 2017 , ... Asante, a nationally recognized health system in ... existing home health joint venture through an agreement, effective October 1, 2017, to ... home health company with Asante, delivering clinically integrated care, for the past eight ...
(Date:10/12/2017)... (PRWEB) , ... October 12, 2017 , ... Leading pediatric ... peers in Washington, D.C., for the 49th Congress of the International Society of ... Vice President of the Center for Cancer and Blood Disorders at Children’s ...
(Date:10/12/2017)... , ... October 12, 2017 , ... ... $3,296 in property taxes a year. In some states—like New York, New Jersey, ... By contrast, many overseas retirement havens have extremely low property-tax rates, which contributes ...
Breaking Medicine News(10 mins):
(Date:10/4/2017)... , Oct. 4, 2017  South Korean-based healthcare product ... training aide "cprCUBE" on Kickstarter. The device will educate ... cardiac arrests with better efficiency compared to the dated ... real-time feedback on efficacy of the compression for a ... has a goal to raise $5,000. ...
(Date:10/2/2017)... 2, 2017  AllianceRx Walgreens Prime, the combined central ... and pharmacy benefit manager Prime Therapeutics LLC (Prime), today ... included the unveiling of new signage at its headquarters ... as at a few other company-owned facilities across the ... patients, some of whom will begin to see the ...
(Date:9/27/2017)... , Sept. 27, 2017  Commended for their devotion ... notable awards. Ranked as number one in the South Florida ... time in Inc. 5000 yearly list, the national specialty pharmacy ... Armando Bardisa will soon be honored by SFBJ ... Set to receive his award in ...
Breaking Medicine Technology: