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New patient empowerment and educational initiatives unveiled at EULAR 2014
Date:6/11/2014

t political committees, helped by support from the patient organisation German League Against Rheumatism, the Deutsche Rheuma-Liga.5

Dr. Cornelia Sander, representing the Deutsche Rheuma-Liga based in Bonn, Germany said "we have set up a process to support and guide motivated patient representatives who want to bring the patient perspective to the table, and influence the health care system in favour of the patient. When they sit on healthcare related political committees, they will have to face professionals from the health care system and insurance companies," Dr. Sander explained.

In order to support those interested in working as a patient representative, or those already playing this role, the Deutsche Rheuma-Liga offers a 'work description' along with everything a patient representative would need to know, introductory workshops, ongoing research support and, where possible, provides a staff member to accompany new representatives to their first meeting.

"Despite the success of this initiative, we still need to find new ways to recruit younger people with rheumatic diseases as patient representatives, who may have less time to become involved in volunteer work," Dr. Sander concluded.


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Contact: EULAR Press Office
eularpressoffice@cohnwolfe.com
44-078-801-73209
European League Against Rheumatism
Source:Eurekalert

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